Monday, April 15, 2013

Gavin David Leong the Fallen Supper Hero: A boy who will never be six

      He is a boy  who will never be six. 
He is a boy  who will never cuddle  with his mom,
  Sit with his dad,  
Or   play with his brother,  
 He is a boy who will never be six.

He is a boy who left this earth too soon.
 He is a boy who  made a difference. 
 He was a  boy who did not need to  pretend to be a supper hero,
 because he was   
He is a boy who will never be six. 

   Experts say he was deaf, 
 but he heard  his mother's voice. 
 Experts said that he never walked
  Yet,
 on December ,12 ,2012 he  walked across the kitchen floor.
 Experts said  he was not going to learn much 
 Yet he understood how  to hit a switch to ask for water
 He was a fallen hero . 
A boy who will never be six. 

OH God  how I hope and pray 
that you surround his family with love and grace 
 helping them feel in place 
 with their supper hero gone 
 A boy who  will never be six
 He will never be forgotten,  
 never 
ever 
erased.

I never knew this hero,
 I met him online .
Everyday I would read his stories 
on his family blog 
Chasing Rainbows .
I met him 
Meny met him 
 He touched so many lives 
 Like heros do. 

Gavin 
Oh Gavin 
David Leong .I   mourn  for you
 You were so brave 
 and so true.
 There is nothing that I  wouldn't  do to support your family
 ED,   Kate, and Brain 
 You will always have a place in my heart  along with Gavin
  Know  guys that  the  cyber special needs community
Morns with you.
We mourn  for a boy.  
Moans for a boy who did not  have to pretend he was hero. 
 because he was a supper hero.
 A boy who will never be six.
Rest in Peace Gavin.   


Sunday, April 14, 2013

My Best friends and a fallen hero

 


FOR GAVIN 


 Growing up.  I  never had solid friendships   A  tall  black  feisty  stubbon hard  headed  disabled  girl was the last person kids wanted to befriend .  When  I was  15  I  started reading blogs, and that  summer  I    started  my own blog.   I have been blogging online ever since ,  I also have  found good friendships with  amazing  people  all connected to  one thing, disability. Over the years  I have met numerous  women , and men who have become  my friends. They have read my blog  and  commented and  I have  read   and commented on their blogs.


 One  such person  is  Kate Leong.    She  has had it hard.  Her  oldest son  has CP  Her youngest has had to overcome a speech  impairment and penut allergy.     Her oldest son, Gavin  David Lenog died tonight after having  heart  problems.   I have  watched her Facebook post since  Wednesday, the day he got sick,  hoping that  he would pull through.  Unfortunately he was pronounced brain dead.   He was  Five   and a half.   He is a  little boy who will never live to be six.


  My Aunt came to town this weekend  and   I  was  happy to see them.  On Friday Gavin took a turn for the  worse.  I read about it  as  i  had a meeting   with my  school DSPS program.  I felt like  I was in a fog. I  had hope that  Gavin  would pull through. I  told  my consular about it.  My speech therapist about it my parents  my aunt.  I have    had  the pic above to honor him.

  I feel pain  for a kid I  never "met"  because of the blog spere. I  may not have met  him in person because  he lived  across  the country   I   knew  he loved music . I was happy  when  he started to walk around  Christmass last year . And I was thrilled when  just last week  he used a switch to say I want water  at school.  Then  this   happend. I am soo  mad at God.  Kate has  already  had a still  born.  She had been trying for  more  kids   without fail and  now  her super hero is  gone.   I do not understand why god makes  life so hard for people. I am  soo mad. Please  keep   this  family in your prayers,

 For any of you longtime  readers  please know that you have been my greatest friends.   A  special  shout out  to  Ellen ,  Kate ,  Jan , Nicole,  Michelle,  Debby, Shannon , Tim, Rick and  those who  I forget  thank-you  for reading  and  inviting me into your homes  and   share  your kids with me.  You may be older then  me; however you are my best  friends .    Kate  you  are amazing  thanks for sharing Gavin's  story  with me and countless others.  I   hope you can find  peace on this difficult day.
 Kate  this  picture is  for you.

Monday, April 8, 2013

News at home

            Hay  guys  I am back,  As  I type this today , Sunday,  its the last day of  spring break  so  its  back into  school and stuff  and blogging.

               First I can  not help post   these  cute pics of  me and my Dog on World CP Day.   I  made these using a cool app  called    Pic
Stich









  Over break   my family got a new car.






 And I  have only have three classes now.   One classI was behind in and the other one  well  i do not  want to go into details here yet  but I am still upset.  So  now  I am going to try and apply to a college with some  Withdrawals  so  it will be interesting to see i  if i get in.   Now that I have some time I should be able to  put my application in  within the week.  Exciting stuff.   How have you  guys been? Do you like my   new blog  header  let me  know  in the comments