Hello guys I want to say first off Happy February (my favorite month of the year) the ressson for not posting is the fact that the comments are not rolling so before u leave could u help me out my commenting.
Showing posts with label CP. Show all posts
Showing posts with label CP. Show all posts
Wednesday, February 2, 2011
I hate keys
Tuesday, December 7, 2010
Pulse Pen light
This is what I pick up in the Assertive technology lab. It is called a smart pen. It records audio and sound. I am essentially taping the lecture and can bring up cretin points on my pen by tapping on the paper It is hard to explain so i am going to show you videos of it
This video is cool because I worked on the K sound when I was in speech therapy. I also sometime subsitute t for K
This video is cool because I worked on the K sound when I was in speech therapy. I also sometime subsitute t for K
Monday, December 6, 2010
Life and times of a collage student with disablites
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![](https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-E6eNSR3hO79fiZZWb5CV3yqB9vJzsKbbt4aqYGnyNI8d3yMuDcVh4JuKExghNyPFykBi4hVWBDB8fkVI1bFdHZWNkCz-gxL-ebnONseZz52p3p7fWi-RPAZhziy9RtFZXIhmQ74S7oq7/s320/front+proch.jpg)
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I ate this once when I couldn't find waffles |
A typical day for me starts long after my sister go to their high school. I wake up around 9:00 and jump into the shower to begin my day. I get dressed and head down stairs where i take my morning medication and have some brekfast. If we have any waffles in the house I will put them in the toster put way to much syurp on them and gobble them down while watching my shows on the DVR. If I am done with breakfast by 10:45 I grab my hat and head to school. I enjoy the walk to school it is about an hour give or take but it is good excersise I have to go up a big hill but the only the first third is steap. If it is late I take a bus or my parents drive me, if they are home. I go to the local Comminty collage which i am hoping to change and start over as a freshman at a four year school next fall.
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First stop for me when I get to collage |
The first order of business when I get on campus is to go to the Asstive technology center and get Something cheak back tomorrow to see what it is . I then go to my class which starts at 12:10. It is Intermediate Algebra. I sit up front in a seat that is reserved for me, The sign that is in the picture is taken off but no one sits there. The instructor is a guy named Will (not his real name) He is really nice and has high expectations for me. He does not think I a pain to teach and trust me enough to let me lend money. After his class I head upstairs for an English class with Jone( again not real name) the class is pretty easy for me. It is a step below collage English but I will be doing Freshman English in January. I have two friends in that class who went to my rival high school but we get along alright. I also have an old friend that I had in high school when I was friends with DD. I thought that collage would be so scary but Mr T was right I would be fine.
Tuesday post will be on what I pick up at the office
Tuesday, November 16, 2010
Favorite pics of me brought to you by To the max
Monday, November 15, 2010
Saturday, October 23, 2010
Calling all readers
So today was the day of our local Buddy walk that I again did not make. I am hoping that I will not have to be an odd one at a walk because I am hopping to plain a Cerebral Palsy walk this March ( march is Cp Awareness month) I have a place in mind but I need your help esp if u help organize a Buddy walk. How do u do it A good place to start anything please leave comments so I can get this thing rolling
Friday, October 22, 2010
Smarter then I Speak
What if I told you that you had to watch people kick a ball back and forth for an hour and a half? Would you agree to it? Would you enjoy it? It sounds rather boring but millions of people worldwide enjoy watching soccer. The difference is that the kicking of a ball has purpose in game of soccer compared to watching people kicks balls back and fourth. The purpose is a goal that the players are trying to achieve for there team. Similarly, in life goals severe as a purpose outside of the victory that is felt upon achieving them.
Goals are different for different people in various aspects in their lives. One of my biggest goals in life is improving the clarity in the articulation of my speech. Speech has never been something that I could have taken for granted as a result of me being diagnosed as a toddler with Cerebral Palsy. Cerebral Palsy is the result of having a lack of oxygen before, shortly after, or during birth. Because I was born prematurely, the likely hood of me getting this chronic illness increased. As an infant using my mouth mussels to eat was a challenge and to this day my speech is unclear and I always bite on my drinking straws. I cannot say all the sounds fluidly in the English language but understand everything that is said to me. This is really frustrating for me and to make matters worse I am my hardest critic. To me everyone’s speech sounds clearer than my even those with disabilities. Due to the reasons above my speech clarity is a goal that I have.
Goals are the gas in a person’s engine, in that they provide the drive for people to work hard. When I was little ,I thought that if I worked really hard that when I was an adult I would speak normally. I did not mind speech therapy back than. I went and worked hard and did things that the speech teachers asked me to do. I tried so many techniques from lying on my back trying hard to say sounds to having stuff in my mouth to work to strengthen my mouth mussels. I did not mind working hard because my thinking was I had to do this in order to speak like grown ups do. Looking back on it, I would say that it was hard work but I complied with the grueling work and stuck to it in hopes of achieving my goal. My fuel was my goal and with it I forged ahead with speech therapy.
Just like in cars, without goals there is no inner fuel; thus there is a lack of motivation to work hard . In seventh grade my speech teacher told me that I would always have unclear speech do to Cerebral Palsy. The speech teacher and I got along well and I trusted her so I took the information at face value. The remainder years I had at speech therapy though the school system were a waste of time for me and the speech pathologist. I no longer had a goal so the work became extremely frustrating. During my junior year of high school ,I stopped going to speech therapy for a while. I had a class that period that I went to anyway so I went there instead of therapy. I was taking Advance Placement United States history from a guy who had a hard time understanding ,me and I once I told him that I had left speech he got vary concerned for me and encouraged me to return to speech. So I was back to sitting across from my speech pathologist understanding to put my tongue in the roof of my mouth and being unsuccessful. I hated speech therapy after seventh grade because the light that was supposed to be at the end of the tunnel, me speaking clearly was no longer in site so the work became grueling and painful for me to sit though. On the rare occasions that I did work hard the vain mussels in my neck popped out , yet it seemed pointless because my speech would always be gibberish. It became a chore to go to speech therapy because I no longer had a goal.
Goals are necessary for people to make hard work meaningful. By the end of the fall 2010 semester I want to achieve the goal of getting into speech therapy and working diligently at improving the articulation of my speech. I want to do this by enrolling at Peninsula Associates , a speech center walking distance from my house. A big barrier to achieving this goal will be being able to afford the assessment and speech lessons. It may also be hard to focus if I have a lot of homework or other stuff in my mind. I can get around the finical barriers by getting SSI or getting my insurance pay for the therapy. As far as the attention barrier I can try to get focus as I am in the waiting room, and plan ahead by keeping up to date with my school assignments. Now that I know speaking clearly can be a goal to me, recent research shows the brain in more plastic than my seventh grade teacher thought, I think I can improve the diction in my speech so that I could work in any profession I chose ,as well as being a advocate for people with disabilities.
Wednesday, October 13, 2010
Friday, August 13, 2010
Laughter is always the best medicence
the story: In speech one day my speech teacher Ms.F in a effort to see that I am not the only one who speaks badly told me about a deaf lady who was a stand up comic. We looked on youtube heard her speek the bell rang and I had Mr.T next period so i rushed to his classroom and forgot about it
August 2010: I am web sufeing on youtube and frond this and it hit me that this was the same lady Ms.F had told me about. I watched it and all I can say is that her experince is so similar to mine. My favorite part is about the red ballon and Mike. This video will make you cry laugh and be in awe. Enjoy it my friends
August 2010: I am web sufeing on youtube and frond this and it hit me that this was the same lady Ms.F had told me about. I watched it and all I can say is that her experince is so similar to mine. My favorite part is about the red ballon and Mike. This video will make you cry laugh and be in awe. Enjoy it my friends
Monday, August 9, 2010
Tuesday, August 3, 2010
Tell a story Tuesday
I am going to try and start something blog world and i need your help. I am going to try and recommend books on the disability experience. If you have any good books in this category leave a comment and who knows your recommendation may lead to a post on that book now for my first book Accidents of Nature.
Thursday, July 15, 2010
Full Furstation
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warning this post contains a vent |
I have the hardest speech in my entire class. Has been a statement I could have said from pre k to senior year of high school,without frustration. As when I was young as long as kids played with me (which they did ) at recess, lunch or free time. As I entered middle school , I told myelg that they do not have a disability ( I got passed up in speech class and that was discouraging , but not to bad) and that lasted through high school, what also helped was the typical kids who could understand repeat things to the teacher.
( Another reason that inculsive education has worked for me) But as I say it about my current class CDS 2010 my Frustration level is full.
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I really like my first day picture of CDS |
The thing is that all of the students in the program are young adults with disabilities and most of them have been in SDC classes in high school. I am one of the smartest students in the classes and I comprehend everything that goes on. It should make sense since I understand everything that I should be able to express myself , but that is not the case. All the teachers do not understand me 100 percent of the time and it is difficult to show them how smart and funny I really am. A good example is today during PE.
We were in the cycling room and coach A (we had a four coaches today) helps me and says "AZ you make me feel like Cinderella," as he put my foot through the straps on the bike pedals" Am i the handsome prince ."
" No," I say You are the ugaly troll. I have been playing a lot of Lego Harry potter on the Wii.
The ugly frog,"
"No troll,"
"Mole?"
" No? "
The other kids call out but they do not say troll
I got off my bike and wrote the wrong spelling of troll
I show it to coach B "Troy,"
"No troll
" Finally coach got it."
I walked back across campus with Coach A and we talked about the frustration i have about my speech during the classes in the class and he suggested slowing down and articulating. Coach A says that he talks to fast and ask that we all try to do our best and slow down. I can do that but it still does not guaranteed that I will speak smartly. I hate speaking stupidly I need more ST with a good speech therapist.
got pics from the flowing
sign:https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhgXxe25XgWypThBwqhxbaBjYmL4LPZNaXX7EZRSEC3DrFAHg3FUrI3eKYBhJxuzfO5t_YfUcD3yKhq3Dq9eS94o63y6Vnl_Wh7zDQuBzkKHjy7f4HBsKSxJLs1gkylbIPhvtR_uA4LNDN/s400/Frustration.jpg
troll http://i.clevver.com/photos/229747/130/98/lego-harry-potter-years-14-screenshots-of-year-1-vignette.jpg
Wednesday, July 14, 2010
Teach your childeren well
Today I learned a great skill in self advocating. I have had some problems with some of the kids and staff at CDS(all the students have disabilities in the program ) understanding my speech and teasing ( more on this soon) so I made a power point on CP and presented it to the class and head teacher. It went well and the great thing was that I did it without direct input from other adults. I did go down to the speech center yesterday and they said to educate others but they did not mention creating a power point . I am feeling proud of my self and hope that any parent reading this who has a special need kid remember that eventually they need to be an expert on there disabilities to the point where they can educate others.
Friday, July 9, 2010
Soo you say u understand me eh
I speak english a little spainsh and of course Gibberish
I have a hard time saying my name and speaking clearly for that matter but I think I have also grown when someone does not understand me.
It started last Th as I went to a local speech center to sign up for speech ( more on this latter) and I was talking to a ST and another one walked in and knew of my old ST from high school and so I introduce my slef and she said oh and I could tell she did not understand me and I ask her. The ST was so impressed. I do have a sixth sense and it is so cool.
cool cartoon gotten |
I have a hard time saying my name and speaking clearly for that matter but I think I have also grown when someone does not understand me.
It started last Th as I went to a local speech center to sign up for speech ( more on this latter) and I was talking to a ST and another one walked in and knew of my old ST from high school and so I introduce my slef and she said oh and I could tell she did not understand me and I ask her. The ST was so impressed. I do have a sixth sense and it is so cool.
Monday, June 21, 2010
It should not be a fight
I have seen and heard Many stories about parents who have to fight for there child to be in mainstream and after reading such accounts I wonder why does it have to be a fight on there part to let disabled kids go to inclusive school.
I have always been included since kindergarten. It was a no brainier for my parents and the two school districts because I have normal intelligence. I would not trade inclusion for special education, (although I must admit I wish I had more life skills when I graduated high school ) because I have met so many wonderful teachers, students and faculty as well as being apart of all of my school communities. I have so Many great memories of being in the mainstream and going on field trips and discovering new things. I just graduated from inclusive high school but have left behind a club and lessons that others have learned from me.
I have had help and support from special education teachers and staff and have participated in ST a one to one aid and Work ability while being able to read write and learn with people in my community, people who live near me and in my city because I have been in inclusive education
I care so much about inclusion because Cerebral Palsy could have caused me to have a intellectual disability are be so disabled that the best place for me would have been a separate class or a special needs school. I care because I have friends with disabilities both online and in real life who are not included . I see what a shame it is that other people will not have the chance to get to know them.
I have heard from a favorite teacher of mine that when they taught at another school the kids with disabilities were there but they never got to see or talk to them. The kids missed out on getting to see and talk and make a connection with the person who has been a great mentor and friend to me. The teacher has been working as teacher for a while but I was their first student my level of disability it was not easy but like they said at the end of the year " Oh the stories we could tell" and I am a character in that story along with the other students.(maybe mine are the annoying and hard stories but hopefully there are some great ones of just me and the whole class) I have not heard any stories yet from that class but I would buy the book .........I think..... lol
Inclusion should not be so hard because unlike a driver's test which should be earned because the result of it not going badly are deadly inclusion dose not hurt anyone . In fact inclusion benefits everyone involved the students teacher s and school community. In all classes i have been in (AP US history include) everyone isn't at the same level so why is it that people say it is easier not to have kids with intellectual disabilities at the same classrooms. With mortifying assignments or simplfilng the information all kids would be able to learn better. Inculsion was not a fight for me and should not be a fight for anyone else.
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My mom came to my kindergarten class when we had our career unit I am sitting on my teachers lap listening to what she does in the hospital |
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Ms P (red) was my sped teacher all t throughout high school here i am with her halloween 2009 |
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Field trip fun. |
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Art work 2009 the teacher used to be a sped teacher I took ceramics during my Senior year of high school |
I have heard from a favorite teacher of mine that when they taught at another school the kids with disabilities were there but they never got to see or talk to them. The kids missed out on getting to see and talk and make a connection with the person who has been a great mentor and friend to me. The teacher has been working as teacher for a while but I was their first student my level of disability it was not easy but like they said at the end of the year " Oh the stories we could tell" and I am a character in that story along with the other students.(maybe mine are the annoying and hard stories but hopefully there are some great ones of just me and the whole class) I have not heard any stories yet from that class but I would buy the book .........I think..... lol
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School is not the only area that inclusion should apply to but to all types of recreation for peers of similar ages. I played soccer in AYSO from pre k to 8th grade every fall |
Inclusion should not be so hard because unlike a driver's test which should be earned because the result of it not going badly are deadly inclusion dose not hurt anyone . In fact inclusion benefits everyone involved the students teacher s and school community. In all classes i have been in (AP US history include) everyone isn't at the same level so why is it that people say it is easier not to have kids with intellectual disabilities at the same classrooms. With mortifying assignments or simplfilng the information all kids would be able to learn better. Inculsion was not a fight for me and should not be a fight for anyone else.
Wednesday, June 2, 2010
I passed AP history ,but aged out of speech
I have cerebral palsy which is mild ;however, it still noticeable in one way when I open my mouth to say something. Not saying anything for me isn't a option because i love to talk and i am funny which means strangers will always wonder what is wrong with me or think that i have low intelligence which is soo not the case. AS Deb pointed out her speaking has no consistency with intelligence
This has happened a lot of times during my course of my life. I remember adults talking to me or asking my parents what I say it far more what happens. It happened recently at a restaurant with some family friends. I order something off the adult menu(which makes sense considering my age) . I had an adult drink but come meal time I got a thing I wanted from the kids menu. Now most people would not be bothered by this but looking back I wonder if the waitress gave me something from the kids menu because she thought I was not a adult or that I would not know the difference because I had a intellectual disability I wonder.
I did pass Advanced placement united states history and it is true. I passed my test with a three. with high school ending I aged out of free speech therapy and there are still things I could work on. Mr.T stutters a little bit but he is still smart and wise and the administrates trust him to teach AP and he is a great teacher. I may talk unclearly but that dose not mean I am dumb.
pic is from http://www.buzzle.com/img/articleImages/295742-3812-20.jpg
Saturday, May 22, 2010
I do not get by
Remeber the Beatles song I get by with a little help from my friends well for me I do not get by with help because I do not feel that I have friends to lean on. I do have the kid from my b ball team who is my best friend but he is only a eighth grader. I have typical friends but they are not scared of transiton so it is hard to go to them for help. Plus I have the suspiction that i tag along with them instead of being true friends with them. I have some socal skills but as a senior in high school (with five days left) I can not work in groups I still act like a child. i am no where near ready and hanging out with Mr T is out of the picture as well so how am I going to survive.
At Special Olympics there are kids who could realte but DD has single handly made it so I do not have acess to them. The girls are disabled and whats more they have fromed a click and make my life a liveing hell. I got into a fight with them saying that they belong in Slytheren( from harry potter) and they belong to the vampire hunters( They realy enjoy twilight) The coach then repermand me for makeing this wrose because I also cussed at them ( was tempted to use the R word but I did not ) So I do not know how I am going to deal with the transition from high school. If anyone has a time machine can you please let me use it to go back to the begging of senior year instead of where i am now
At Special Olympics there are kids who could realte but DD has single handly made it so I do not have acess to them. The girls are disabled and whats more they have fromed a click and make my life a liveing hell. I got into a fight with them saying that they belong in Slytheren( from harry potter) and they belong to the vampire hunters( They realy enjoy twilight) The coach then repermand me for makeing this wrose because I also cussed at them ( was tempted to use the R word but I did not ) So I do not know how I am going to deal with the transition from high school. If anyone has a time machine can you please let me use it to go back to the begging of senior year instead of where i am now
Saturday, March 20, 2010
Today is Cerberal palsy awaness Day
Ten things I learned about living with CP
1 Buttons are overrated
2 Never tell me that life is tough
3 Ruler is a tough word to say,
4 Rulers are hard to use
5 Special Olympics is fun and challenging
6 Gum is imposable to chew and swallow
7 Not all people with CP are in wheelchairs and walkers
8 Table for twelve is a assume show.
9 Repeating things shuk
10 Inclusion is key
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Tuesday, March 9, 2010
March is Cerebral Palsy Awareness month lets try to reach for the stars
Hope to be back to blogging on Friday making post for next week Stay toon
Thursday, February 18, 2010
Transition to adult life
I have been wanting for a long time to write about how i feel about leaving high school for a long time and Ellen's post about her run in with the lady with Down Syndrome gave me fuel for my story here it goes.
All high school seniors there is a big fear about what lies ahead. Think about it from the time you are five and six you go to and from school Monday through Friday come home are under adults supervision while you are at home. In the case after high school a new routine takes place one that involves growing up and moving away from home or getting a job and going to community collage. Normal people handle this well. My brother did and now he is back near by ( well now he is in AZ) but he still lives at home with his mom.
Now through in CP ,NVLD, OCD and a fear about the future it is hard. I personally do not want to levee high school and leave the familiar that i have had since I was a newborn. I am not that independent and the aspect of a roommate in collage scares me. The fact that i have normal intelligence means that I can not stay until I am 21 which means fall next year I am going to be lost.
Now that I am a senor my parents and i have to plan for the rest of my life. This has to be the scariest part of transition as the future seems like a big black abyss. i am so scared like i have ever been. I love things to stay the same so these next months are going to be scary. I know i do not want to live in a group home and although I want to live at home next year I doubt I will always be comfortable living at home so I will need to learn how to live on my own. I want to get married and have some kids so I can coach there teams help with scouts etc will that happen i sure hope so. I want to be a self advocate and an author for the disabled and make the world more inclusive but i will need some help. I hope some adults at school will continue to help me as I transition from there but until i leave in May I am going to enjoy every last minute of my high school experience. My advice to all parents is to enjoy the kids as they are kids and listen to them and help make their dreams come true.
All high school seniors there is a big fear about what lies ahead. Think about it from the time you are five and six you go to and from school Monday through Friday come home are under adults supervision while you are at home. In the case after high school a new routine takes place one that involves growing up and moving away from home or getting a job and going to community collage. Normal people handle this well. My brother did and now he is back near by ( well now he is in AZ) but he still lives at home with his mom.
Now through in CP ,NVLD, OCD and a fear about the future it is hard. I personally do not want to levee high school and leave the familiar that i have had since I was a newborn. I am not that independent and the aspect of a roommate in collage scares me. The fact that i have normal intelligence means that I can not stay until I am 21 which means fall next year I am going to be lost.
Now that I am a senor my parents and i have to plan for the rest of my life. This has to be the scariest part of transition as the future seems like a big black abyss. i am so scared like i have ever been. I love things to stay the same so these next months are going to be scary. I know i do not want to live in a group home and although I want to live at home next year I doubt I will always be comfortable living at home so I will need to learn how to live on my own. I want to get married and have some kids so I can coach there teams help with scouts etc will that happen i sure hope so. I want to be a self advocate and an author for the disabled and make the world more inclusive but i will need some help. I hope some adults at school will continue to help me as I transition from there but until i leave in May I am going to enjoy every last minute of my high school experience. My advice to all parents is to enjoy the kids as they are kids and listen to them and help make their dreams come true.
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