Lets say a genius who spoke Latin were to come to the United States. Now lets just say for the sake of the argument that there was no one elese who spoke Latin. Is the genius still a genius. Of course many people would say he just needs needs to learn English. Well what if there was a person who could not speak at all and had no device, could he be a genius?
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It angers me as a person living with a speech delay when I hear someone who has no speech due to disabilities, especially CP, and do not have any device and are placed as limited intellecual ability. It really angers me because the person does not have a opportunity to prove there intellengence one way or the other. Why am I pissed off let me tell you my story.
bookgal princess and az We were so cute |
I was born September 1991 a month prematurely resulting in mild Cerebral Palsey. As a newborn I could not suck from a bottle to well a feeding tube was placed though my thoat so I could eat. When my parents took me home I had a hard time breast feeding and my mom had to pump her milk out and put it in a bottle. My mussles were soo weak that feeding took forever.
When I was a toddler I had diffculty communicating. I leaned sign langue to comincate. I remeber saying and signing craker in the kitchen. Useing signing I was able to express my wants and needs until my speech came along.
With me and my speech imparment repeating words is frustrating espacaly when no one understands me. I hear myslef specaking clearly, My mind makes the ideas and the words that come out are fuzzy. I rember saying answers in class being told I was wrong and someone said the same thing and got it right. That means that I got the anser right.
Now for me I have a voice . Its not the best but its a voice. As frustrated as I must feel it must be ten times more frustrating for people without a voice. I feel for those people and can not igmane being inside and not having a way to commicate and because of not being able to comincate getting llabled as worthless. Having the school system write you off being isolated from your peers. Being talked to in a high pitch voice every day when you are not a kid. Then because of your phiscal limitations being labled as being as smart as a toddler. That is not fair nor is it right. I know all about history understand spainsh and english have a talent for writing can play chess yet I can not say the L R K G sound esaly. Does that me not smart no. Now igmane if i could not talk or had a device yes I would not be able to write read and play chess not because I was not smart but because i had not had the oppertunites to learn. If you are reading this and have a child who can not communicate my advice is to go to the ends of the earth for your kid, Buy the i pads the dynvoxs help your child find their voice. If your the parent or know someone whoes older who can not commmicate do the same thing. The sonner you get it the better but do not give up on an older person in fact you need to get the information them faster to make up for loss time. In the meantime contiue talking to the person as would with a person as there cronolical age. ( So obsouly talk to a baby like a baby
All pepole deves a chance to connect with others. It does not matter how smart they are everyone wants to connect with others. Think about it this way if the person is said to have an intellecual disablity and you talk to them about stuff that is to hard for them then they it will be to hard, but if the child is smart but has not fond their voice they will obseve it like a sponge. Please remeber speech is very conplex and hard but the spoken word is the end result. The process may still be in place.
3 comments:
AZ, I just found your blog and I'm so happy to read this post. I have a 6 yr-old daughter, Maggie, with severe cerebral palsy. She is beautiful and smart, just like you. You can see her at http://maggiesmonth.com/meet-maggie-2/
This year our goal is to help Maggie find her voice. You are a second witness to how important we feel this is for her. We're working both on helping her find her physical voice through vocal therapy, and helping her express her heart through an IPAD. It's exciting and sometimes frustrating. We'd sure love any other advice you might be willing to give us as parents. Blessings to you and your dreams! You go girl!
Thank you for your words and thoughts. As Maggie's grandma I am so anxious for her to be able to express her feelings. We who can speak with ease take it too much for granted. Keep speaking out for those who cannot yet do it for themselves.
keep on helping her find a way to express herself
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