Monday, March 25, 2013

What would you say to a new parent in honor of national CP Day

 CP did not prevent me from being a cute baby
   So today is the  day to  go green to honor those  like me who live  with CP.   To celebrate  I  have asked  some people on Facebook.  what advice they would give to a new parent  who just received  a CP  diagnoses.   Here is what they  said. 






  First I asked in a CP group on facebook

 "That no matter what she needs to remember that regardless of the"Label" her child  is still her child the same as yesterday and nothing will change that , and though therapy etc is important, so is being a kid - remember to still have plan old FUN!"
  Fall 1999  swinging away


"Cp does not give you limits, live life to its fullest "

 




"Your child has cp, they are not cp. it is simply a part of who they are,its does no define them"





 "Expect your child to be able to do everything(albit on an extend timeline) until she clearly shows that she just isn't  physically capable  if doing it. If you want other to treat your child like they're any " normal kid then you a s the parent need to treat her that way"


 "For me.. I wish someone had told me to work on his communication. That milestones will be there just different ones. Its Ok to cry and it's ok to ask for help. treating them normal is so important.. [my son]is not able to walk.. but I always put him on the floor to play.. he would roll around.. sometimes whacking his head on the roll cause he didn't have the control at
  cousins  may 2012
 first.. but he didn't cry so I didn't make a fuss. because I treated him like any other kid.. he know is a pro at rolling.. he even log rolled, pushed him self from his room into the back yard to get to his puppy.. he's a normal kid.. with a few hiccups he's working out."





"Remember Dr's are practicing for a reason. I personally will not get a surgery without talking to people who have experienced it before. I was told, "If it sounds too good to be true, look into it, it might just be."


" You still have the same child you had before the diagnosis..."



I  then asket my mom  and she said 




"I would tell them to be thankful for their child and prepared for the amazement of the power of unconditional love. Your child will teach you many life lessons and demonstrate the strength and resolve of the human spirit. With  AZ, I learn every day just how amazing she is!"




 










I also asked other people with  CP  ( cause  we are the experts  right ) 



"it's not the end of the world, and your child is whole and perfect just the way they are:)" 

 piano concert spring 1998
"just to love the child as much as you would without the cp, and the biggest thing is even though it's important to listen to doctors, don't let the doctors tell you the future of the child. help the child reach it's full potential no matter what that may be."



















  My thoughts 


  Aloha  Spring 2000
  Assume that    your child can understand.   Know that  raising your child  will have its ups and downs.  your kid will bring  you moments of laughter and moments of joy and  that they are not  broken  and  do not  need to  be fixed.   Also know that your not alone millons of other families are dealing with CP  as well.





1 comment:

severity said...

This is my favorite post so far this month! thank you for sharing!