Happy Fathers Day

 My dad and I  grand canyon summer 2005

  Dear dad


    I  want u to know that even  when we do not  agree on stuff    in the end u are my Dad and I  love u.


 love  AZ

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America its time to listen

  As many  of  you  long time readers  know, in my youth I was a Toy Story  fan.     I  have seen the movie  so many times that I know   all the lines and    when I can not sleep on  occasion I play the  first couple of scenes in  my head.  


   In this  movie  there is a claw  at the  Arcade   and   when  Buzz Lighter goes  into the claw  game    and asks for the boss  the   Aliens  say 


                  " The claw is our  master  He   decides   who will  go  and who will stay."  


   Woody   says  " This  is  ludicrous"  
 Woody  has  always  been  my  favorite character and    as a adult  I agree  with him.




      I am not  just  quoting  Toy story  for fun there is a  meaning.  Back  in  2006 around  Christmas time NPR  released a  story about  Misty Cargill    a  women who  was  25 years old  had a boyfriend and  worked at a job and loved bowling.      She also  needed a Kidney  transplant.     So  she needed to be  placed  in   a  metaphorical "claw  game.     Only this  time the claw  game  is  made up of many  people, doctors who deiced that she would be  better   stay  put with  the  kidney she  had because  she  had   an Intellectual disability.        On Sunday  Misty  died   at 31 years old. 31  when my parents were that  age they  were  just starting on their careers and  raising a family.    


  The  report in 2006   says that   she  did not  get denied based on discrimination.  I say that  is   not true.      Six  years  later  another girl with  ID was   denied to  have a   transplant surgery because    of ID.

 America  needs to  listen  to its disabled  citizens 

        I am  tired of this.    I am  tired  of  people  saying that  disabled people  are  not  worth the same  type of medical  help as  our  able body  counterparts. I am  saddened that there  is a possibility that     one day  society will have   wiped out   people  like me.  I can not imagine   the day  when   their is  parental  testing  for Cerebral  Palsy  and  that  parents are forced  to terminate.  It could  happened. It already  happens  for  conditions  like Down Syndrome.   People are trying to find  the cause of  Autism and   I  do not have to  be a genius to  figure out what is  next.  Soon    there will be a test for that as well. Society needs to stop trying to find cures  for disabilities.  Instead we need to have more conversations   about  inclusion  and  respect.   That will not happened  around here  because where I live kids with  Intellectual disabilities are segregated in separate  classrooms.    or when they are mainstream they have  bad teachers  who are invested  in    making sure inclusion fails.      This  is not in the south   in  the   1940's  this  is   2012   where we have a black president but  the  problems  still  happened.  Wake  up  America     lets  start a conversation with people with  disabilities   about  how we want to shape  our  future.   Let  it be broadcast   on TV  and online.   Lets  start  talking  about what needs to be done  by  listening to the people that  live with  the disability every day .  Let's  talk  now   before  it's  to  late.




 images are  from 


  alien 
http://johnlange.files.wordpress.com/2011/06/toy-story-aliens.jpg
 clipart 
http://cdn2.fotosearch.com/bthumb/IMZ/IMZ164/rco0030.jpg

Able to go to college Episode two : Top of the hill

  So  guys sorry   about the long wait but at  long  last I have a new Episode for you  guys.     This  episode  is an important  one because   it  shows  a myth that i had  about  college when I was a senior.  

 This is what I  thought   awaited me after high school  I was so wrong 

 High school was  tons  of fun  for me I  mean  we had  ralles  Senior  Activity Day  among other things.  At home  I had  video games and   tv and stuff to  keep  me entertained.

 One of   the big myths that I had  was that   once you  graduate high school  you  do not have any  fun.

 Oh  how  wrong  I was.

  Two  year later I  know that  is  not the case.  As  you can  see  there was  rock climbing on the  college campus  for a day.   Last fall I  went  on the  rock  wall  but   on that day I did not go on the rock wall. As far as videogames  go I  still  play them   like  I did  in high school.   Although  I must admit I do not have as much time to play because in college,  I am  in  a general education  program,  I have tons of homework and  stuff to do.     Its  only the  third  week  of school  and I am  having this much fun   who knows  what  fun awaits  me the  rest of the semester.

 




 No  fun sign
  http://image.shutterstock.com/display_pic_with_logo/123328/123328,1222362071,1/stock-photo-smiley-having-no-fun-sign-17923828.jpg

Proof of focus

  So  today  I had ST. ( yeah  I know  u  need  able to go college  videos )   and  we  were doing  a  reading  that we got  from  IMOB  about  RJ Mitte , an actor  with CP  who plays  someone with CP   on   Braking  bad.      Today we were working on  breathing and    how to do  it when u  have a  long sentience  without  commas  This  was the sentience.


" RJ Mitte was using acting as a means to build friendship with kids his own age while living in a new city."    

me  taking a break from  writing  summer 2005 

  Now this  is  a hard  one  and  The ST  said that  there were three  easy  pauses  my job   was to discover  them. 


 I  came  up  with   this  


" RJ Mitte was using acting  as a means to build friendship with kids his own age while living in a new city.


       its a  transition  word    i  said 


    The  ST was sooooo Happpy.


  See  not only have I been on Dean's  list  I  remember what  Ms.S  said.

Today is my moms b day

 HAPPY B Day  mom  I  love u

Happy b day Book gal

 Love  u  sooooooo  Much. I  can not  belive  u  are  19  today   happy  b day


 love

 AZ

Talking and understanding are not mutally exculsive

                        Lets  say  a genius  who  spoke  Latin  were to come to  the United States.  Now  lets   just say  for the sake of the argument that  there was  no one elese  who spoke  Latin.    Is the  genius  still a  genius.    Of  course  many  people would say   he just  needs    needs to  learn  English.       Well  what if there was  a  person  who  could not speak  at all  and  had  no device,  could he  be  a genius?
`  
It  angers  me as a person living with a speech  delay  when  I hear  someone  who has  no  speech  due to  disabilities,  especially  CP,  and do not have any  device  and  are  placed   as  limited  intellecual  ability.  It  really   angers me    because   the person does not have a  opportunity to  prove  there intellengence one way or the other.  Why am  I pissed  off  let   me  tell you  my story.

 bookgal  princess  and  az We were so cute 

          I was  born   September   1991   a month  prematurely   resulting in mild Cerebral Palsey.  As  a newborn  I could not suck  from a bottle  to well  a feeding tube was  placed  though my thoat so  I could  eat.   When  my parents  took me   home  I  had a  hard  time  breast feeding and my  mom had to pump her milk out  and put it in a bottle.  My  mussles  were soo  weak that   feeding took  forever.




 When  I was a  toddler   I had diffculty communicating. I leaned sign langue  to comincate. I  remeber saying and  signing  craker  in the kitchen.  Useing  signing  I was  able to  express  my wants  and  needs  until my speech   came  along.




 With me and  my  speech  imparment  repeating  words  is   frustrating  espacaly when  no one  understands  me.    I  hear myslef  specaking clearly, My  mind   makes  the ideas  and  the words   that come out   are   fuzzy.   I  rember  saying answers  in class being  told  I was  wrong and   someone said the  same thing  and got it right.      That means that I  got  the anser  right.  


  Now  for me  I have a voice . Its  not  the best  but its  a  voice. As  frustrated  as I must  feel  it must be  ten  times more frustrating  for  people  without a voice.  I feel for those  people  and   can not igmane  being inside  and  not having  a  way to  commicate  and   because of  not being able to comincate  getting  llabled as  worthless.    Having the school system  write  you  off being  isolated  from your peers.  Being  talked to in a high  pitch  voice  every day when  you  are not a  kid. Then  because of  your phiscal limitations  being  labled   as  being as  smart as a  toddler.  That is not  fair  nor is it  right.  I  know  all about  history   understand  spainsh and  english  have a  talent for writing   can  play chess    yet I can not  say the  L  R   K   G sound   esaly.  Does  that  me   not smart  no. Now  igmane   if  i could not talk or  had a device yes  I would not be able  to   write  read and play chess  not because  I   was  not smart  but because i  had  not had  the oppertunites  to  learn.     If  you are reading this and have a child  who can not communicate  my  advice  is   to  go to the ends of the  earth  for your kid, Buy the i pads   the dynvoxs help your  child  find their voice.   If your  the  parent   or  know  someone  whoes  older  who can not commmicate   do the same thing.  The sonner  you  get it the better but do not give up on an older   person in fact you need to get  the information them faster to make up for loss time. In the  meantime  contiue talking to   the person   as  would with   a person as  there  cronolical  age. ( So obsouly  talk  to a baby  like  a baby
 All pepole deves  a chance to connect with others.  It  does not  matter how smart they are everyone  wants  to connect  with  others.    Think about  it  this way   if the person  is  said  to have an intellecual disablity  and you  talk to them about  stuff that  is  to hard for them  then  they it will be  to hard, but if   the child is smart  but has not fond their  voice they will  obseve  it like a sponge.  Please  remeber  speech  is  very  conplex  and hard but   the   spoken word  is   the end result.   The  process  may still be in place.