Friday, June 3, 2016
Wednesday, June 1, 2016
Legacy
Once upon a time there was a young women who went to a grad fair. Seeing all the graduation ceremonies they left because there were things for other graduations , Black Grad, Asian Grad but no graduations for those with disabilities. Being a disabled advocate she went to the disability program and mentioned it to the staff. The staff liked it so they put it on. Today was that day. It was a fun day. This will be an annual celebration at the school. This is pretty good legacy to leave behind.
For those of you that are worried that this means this graduate will not be included in the traditional ceremony, Don' t worry she will walk across the stage in ten days.
Thursday, May 26, 2016
Happy b day Book girl
Book girl is amazing. She always is looking out for me. She is awesome. Happy b day Book girl Love you lots.
AZ
AZ
Sunday, May 8, 2016
Happy Mothers Day 2016
Hi guys sorry I have been absent. OCD has not been kind to me these past few months and I am graduating and generally really busy. But I wanted to blog for Mothers day.
My mother is the best mom I could ever ask for. She is strong beautiful and wise. There have been many times where I wanted to quit college. After an horrible college experience I did not want to go back to school. My mother was there and was firm in her stance. I would finish college no matter what. I am now graduating with my BA in June.
Whenever I am in one of my ocd meltdowns there is only one person that I want to talk to it is my mom. My mom may not be trained in mental health. She does her best and helps talk me through things. I know its not easy to deal with - for both of us- but she does it well.
For all mothers of disabled kids, and fathers too. Thanks for loving us, helping us,. Thanks for holding us, talking to us, playing and planing. Motherhood is not an easy job for any parent but you do it and we love you for it. For any mother of a disabled kid who thinks that they are not doing enough for their kid. Let me assure you that you are doing the best you can.
And for my mother.
Thanks for everything that you have done for Princess Bookgirl and me. Love you always.
AZ
My mother is the best mom I could ever ask for. She is strong beautiful and wise. There have been many times where I wanted to quit college. After an horrible college experience I did not want to go back to school. My mother was there and was firm in her stance. I would finish college no matter what. I am now graduating with my BA in June.
Whenever I am in one of my ocd meltdowns there is only one person that I want to talk to it is my mom. My mom may not be trained in mental health. She does her best and helps talk me through things. I know its not easy to deal with - for both of us- but she does it well.
For all mothers of disabled kids, and fathers too. Thanks for loving us, helping us,. Thanks for holding us, talking to us, playing and planing. Motherhood is not an easy job for any parent but you do it and we love you for it. For any mother of a disabled kid who thinks that they are not doing enough for their kid. Let me assure you that you are doing the best you can.
And for my mother.
Thanks for everything that you have done for Princess Bookgirl and me. Love you always.
AZ
Friday, March 25, 2016
National CP Day 2016 : Wishing Out Loud Please Do not pretend
On this national CP Day I have a request. Do not pretend.
I am a 24 year old college senior, who graduates in June. I understand a lot of things. I love to read and devalued Harry Potter Books in my youth. I am very good writer, despite not having the best proof reading skills. While math is not my strong subject, I can count change pretty well and worked at a Cash Register.
Me Jumping rope. Notice my right arm is bent |
The Biggest thing that happens though is my speech. I have a speech impairment. My muscles in my mouth are tight. I do not open my mouth wide when I am talking. I have dysarthria that is the result of Cerebral Palsy.
Please Do not pretend that you understand me when I am speaking.
My real name is hard to say. Its four syllables long with an R in one of its syllables. I hate my name but have no ideas for a new name. I am still considering a new name.
Me Eating a Banana. That is how big my mouth is |
In the meantime if I come up and introduce myself to you and you're not sure what I said, or anyone with a speech impairment please I ask you to to asks us. to repeat what we said We know when you can not understand and it sucks. I know you think that we can not understand the difference and its an awkward situation; however, it hurts.
When you pretend to understand me. I feel disrespected, I feel like what I have to say is not important - which makes it hard especially since I'm nearing the age to enter the l job market. Please presume that I am making sense. Please be a little patient and work with me; ask me to show you, or write it down. Enlist the help of others around you. Let's work together to get my point across. Because what I have to say is important.
Thursday, March 24, 2016
Cerebral Palsy Party An interview and a chance to work with AZ
Hi guys so today I am featured on Tonia Says. Go check it out.
I am also looking for people to work with me. Cerebral Palsy Party is a book that I have written that explains what CP is to children ( think between the ages of 5-10 ) There are no good books to explain what CP is. Its a picture book without pictures. I am looking for an artist to help bring my book to life.
Here is the flyer
Please share this post to help me find an illustrator.
Don't forget to Wear Green Tomorrow for national CP Day.
Wednesday, March 23, 2016
Cerebral Palsy Party What inclusion look like
Hi guys today is #whatinclusionlookslike twitter chat today. 2pm so I thought I'd show you /tell you.
Inclusion is having parents read your bedtime stories and expose you to books about different cultures and races. Inclusion is knowing that college is expected of you when you graduate high school
Inclusion means having access to the playroom at the same time as your siblings.
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