Able to Go to college Episode one : AZ's new backpack

 

  So  this  is the  first episode of Able to go to college.    The video says week  two  because I did not film the  first week of school :(.   Now  on with the post.    



                Now these days  there are a lot of different  types of backpacks.  Some  are  rolling  while   some are a shoulder bag Some   ladies  carry there stuff in a  purse.  For me  I need a backpack  because  due to  NLD  I am  vary  disorganized  in  fact some people have   called  me. 

A Tornado

  And  people  have also  called  my backpack a  

A BLACK HOLE

                                                                       

   the  day I got my  orange  backpack summer 2010 

         Since I  am  hard on my stuff  my  back packs do not last  long.    I  got the  orange  backpack   summer 2010.    I  took  it with  me to   my summer school  program  for students  with  disabilities.  I   also took  it  when i started regular college  classes, but    Fall 2011  it began to show  me  signs that  it needed to go into  retirement.  The  front  two  zippers did not  work  anymore  and there were  holes in it.    The  orange  back pack  was  with me   as  I entered college  but     now    I needed a  new one .



   So earlier in the week  my  dad and I   went on a mad backpack hunt.   We went all over    but   no such  luck  because I am   picky .     I   went looking  at my book store in my college.  I  found  two  backpacks of the same modal  but  different colors.  I  ended up  picking the blue one.     I got on  the bus thinking that   I was   going  home .but   I  got on the wrong  bus.    The bus went  near by    my old   school so I  was not worried.  I  called my dad  because  he was    home  but the plumber was   at our  house  so  he sent Princess  and she came to  get me.

Got  images from

    Tornado

http://dir.coolclips.com/Nature/Natural_Disaster/Tornadoes/cartoon_tornado_CoolClips_natu0206.jpg

  Black hole

http://www.dailygalaxy.com/.a/6a00d8341bf7f753ef0168e55ba4a3970c-800wi

 Captions were  done with help from Carolyn Fiory

girls with autism

     

Hay  guys  missed  me    I   was   on  spring break  more on this latter   but anyway  I  saw this interesting video   what are  your thoughts

CP Awarness Month Highlights

             Another   month has come and  gone.     This  has been a fun  month  with me blogging weekly. I like it and  it has not hurt my  academics at all. I  took a bio  test  today and got a  96%, and no I did not  pay the professor.     
                
 I told you about  Able to go to college. The series is coming soon.   Maybe  next week.


  Connotation and  Denotation faced off   in this  post .


 I  got some  news    about  my   grades.


   I  re posted  about  LM  for Down Syndrome day 




 IT was CP Awareness  Day  and I   thought of some ways  that  having a disabled child  was easier than   a  average one 




 Guest  Posts 


  Laura  sharing Seth's story


  Stacey Menz  talking about  PT and CP  




 What  were some of your  favorite  post  from this  month.

A message from a PT

       I have had the pleasure  of  knowing Stacey Menz since  fall  2011.    For those of  you who do not know  Stacey is a PT  based   in the same town  that I   grew up  in.  I  wish I had her for  PT when I was younger  because she is really good.  Stacey works  at  Starfish Therapies. I asked her  to  write a post about  CP  and she did  so without further ado here  is the post on  CP

 this  little  guy  will be  the star of a video at the end of the post 

Every person with cerebral palsy looks differently not just in terms of their physical appearance (just like any other person) but also in terms of what they can do really easily and what they have a really hard time doing. This is because it depends on the area of the brain that was affected. Each area controls different parts of the body so it would make sense that an injury in one area of the brain will have a different affect than an injury in a different area of the brain. Despite these differences there are similarities that are important to consider when assisting a person with cerebral palsy to achieve their goals in life, whatever those goals may be.

 Me as a middle schooler with   book gal in   the backround

The similarity I am going to chat about is that for a person with cerebral palsy to learn a new skill whether it is how to walk, how to talk, how to write, etc, it takes a lot of practice. In this way it is no different than someone who is learning how to play the piano or to shoot a basketball or write cursive. All new skills take practice and repetition until they become more second nature. With new skills, each piece of the skill requires conscious thought. Remember the first time you learned to drive a car. You had two hands on the steering wheel, you were sitting upright and barely dared to breath. The radio wasn’t on because it might distract you, and the person who was in the passenger seat wasn’t allowed to so much as whisper. It took all your thought and concentration to move the car out of the driveway and down the road. Now, after countless hours and miles of practice think about all the things you do in the car. I’m sure all of us have at some point and time driven somewhere, parked and thought ‘how did I get here.’ Driving has become automatic and we don’t have to think about every little nuance anymore, unless the conditions change and then we are on higher alert.

 My  mom  me and book gal I did PT when I was this small

This is how learning every movement is for a person with cerebral palsy. Each motion or activity requires constant thought. Nothing is automatic. So not only is going about the day physically exhausting for a person with cerebral palsy because of the extra energy they have to expend to create movement or speech, it can also be mentally exhausting if they have to consciously tell their brain to tell their body each motion and movement.


This is where the practice comes in. The more a person practices an activity the easier it has the potential to become. And, the more the activity is broken down into small pieces and each piece is mastered and then put back together as a whole, the easier the activity has the potential to become. I have seen this in many cases. I have a kiddo where we are working on walking without assistive devices. He is able to do it for short periods but he needs to think about each step and think about his balance after each step. He has a hard time shifting his weight onto one foot so he can lift the other and will often lean out to the side to make this easier, but that then makes keeping his balance harder. So we will take lots of time to practice shifting his weight to one side and then the other while keeping his head and trunk up straight. After we practice that piece he gets to practice walking a short distance and he finds it just a little bit easier to shift his weight, take a step and keep his head and trunk up so that he has an easier time keeping his balance.
Every time a skill is practiced it is reinforcing the pathway that sends the message from the brain to the muscles. The more this road is used, the more efficient it becomes which also helps skills to become more automatic.

I inspire greatness

The take-away message is that practice and repetition are good. But I also hope you understand how much effort goes into a person with cerebral palsy learning each new skill and movement. Not just the physical effort, but the mental effort. I am amazed every day by the determination and will of the people I work with. They inspire me to work harder. I hope they inspire you.

Raiseing a disabled child is sometimes easier than rasing a adverage child

My mom   my sisters and  me spring 2005

1   I do not need a curfew.  I do not go out that much and if  I  do  its with my parents  so  they do not need  to stay up worrying  when I will be home  on weekends. 

2  There are a lot of people that have helped me  over the years. OT  Therapist PT ST they  have wondered though my life  helping me and  my parents. 

3 Most of the  things I do outside of  the home are  supervised  thus  they  do not have to worry.

4    Sometimes  my sisters tend to think that they  know everything.  I know  I  don't.

 

5 I have never been  to  a house party therefore  I  have never   been around  drugs  

 6 I have  yet to have a boyfriend  so    my dad does not have to worry.

 

 Got  any other ideas? I  want to hear  them  comment below 

Great video of me

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Yesterday

  So  yesterday I   got to watch the  Muppet  movie  via  Apple TV.


 I really  liked it.  It is about a  muppet who was raised in a human family  thus  he has a hard time  fittining  in  he is  really short. Then  he   watches the Muppet show  on  TV and  he  does not   feel so  alone.  It leads him ....    What you think I would  ruin the movie for  you..




 Anyway   one  of my  favorite  songs that Kermit,  you know  the frog, sings  is  It's not that easy being green.  I  remember watching   the song on Sesame Street  back when I was younger and liking the song but not understanding.  Now   17 years  later  I do  understand its  not that easy to be  different. It's really hard when society  tells  you that you are not wroth  the same because of   stroke  before birth.   Since  green  is the CP  color.   I feel like  Kermit is sining this song  especially  for  kids with  CP even though it applies to  all disabilities.