Showing posts with label Life is not fair. Show all posts
Showing posts with label Life is not fair. Show all posts

Sunday, April 14, 2013

My Best friends and a fallen hero

 


FOR GAVIN 


 Growing up.  I  never had solid friendships   A  tall  black  feisty  stubbon hard  headed  disabled  girl was the last person kids wanted to befriend .  When  I was  15  I  started reading blogs, and that  summer  I    started  my own blog.   I have been blogging online ever since ,  I also have  found good friendships with  amazing  people  all connected to  one thing, disability. Over the years  I have met numerous  women , and men who have become  my friends. They have read my blog  and  commented and  I have  read   and commented on their blogs.


 One  such person  is  Kate Leong.    She  has had it hard.  Her  oldest son  has CP  Her youngest has had to overcome a speech  impairment and penut allergy.     Her oldest son, Gavin  David Lenog died tonight after having  heart  problems.   I have  watched her Facebook post since  Wednesday, the day he got sick,  hoping that  he would pull through.  Unfortunately he was pronounced brain dead.   He was  Five   and a half.   He is a  little boy who will never live to be six.


  My Aunt came to town this weekend  and   I  was  happy to see them.  On Friday Gavin took a turn for the  worse.  I read about it  as  i  had a meeting   with my  school DSPS program.  I felt like  I was in a fog. I  had hope that  Gavin  would pull through. I  told  my consular about it.  My speech therapist about it my parents  my aunt.  I have    had  the pic above to honor him.

  I feel pain  for a kid I  never "met"  because of the blog spere. I  may not have met  him in person because  he lived  across  the country   I   knew  he loved music . I was happy  when  he started to walk around  Christmass last year . And I was thrilled when  just last week  he used a switch to say I want water  at school.  Then  this   happend. I am soo  mad at God.  Kate has  already  had a still  born.  She had been trying for  more  kids   without fail and  now  her super hero is  gone.   I do not understand why god makes  life so hard for people. I am  soo mad. Please  keep   this  family in your prayers,

 For any of you longtime  readers  please know that you have been my greatest friends.   A  special  shout out  to  Ellen ,  Kate ,  Jan , Nicole,  Michelle,  Debby, Shannon , Tim, Rick and  those who  I forget  thank-you  for reading  and  inviting me into your homes  and   share  your kids with me.  You may be older then  me; however you are my best  friends .    Kate  you  are amazing  thanks for sharing Gavin's  story  with me and countless others.  I   hope you can find  peace on this difficult day.
 Kate  this  picture is  for you.