World CP Day 2013

  Hay  guys  so today  is  World CP Day  and this year its  special because I am a champion for  CP day.     Today is the day to  wear  green and  talk about the abilities of people who live with CP.  The  video  this  year is  a very  unique one because it shows the great  abilities that  people with Cerebral Palsy  have.  I want to thank everyone for sharing their photos with me.    It was so fun to be able to see all  of the people with CP and learn about their abilities. Thankyou.

  I also want to thank  Kate  for letting me   honor  her son Gavin.   For those of you who do not  know the story.  Gavin    passed  away this past  April at five and a half years old .  His  family   called him  their super hero.   For more information please visit Kate's  blog  to learn more about Gavin and his amazing family.


   Hope  you enjoy the video



 Rest in  peace  Gavin

 Have a great day everyone and remember to wear  green.


 Ps.   Sorry if there are spelling mistakes.

Invasion of the Super heroes: A call for pictures for World CP Day to honor Gavin

                       So  remember how I said last year that  the World CP  day   montage will be something  I will do   next year Well

 Its  back and  this year its bigger then ever.  Now self advocates, parents  will be able to join in the fun for World  CP  day which  is  on October 2  this year.  Its  going to be twice as fun because now  people  can submit two photos  and they will both be in the montage. but  before I tell you  the details  its  time for a story,


       Meet  Gavin 

 He was a five and half  little boy who  had CP and a unknown  genetic condition. I  say was because  last April, on his  mother's birthday, Gavin  left the earth.   His family misses him very much.

Gavin's family with their supper G  t shirts on the fire truck that was named after him,
 Proof that Gavin is  a supper hero

 Gavin loved the water and charmed everyone he met.  He was  a supper hero  to his mom  dad and little brother  Brain.

 Gavin was supper happy in water 

 So  a few weeks ago I was thinking about  having a world CP  video that would  honor Gavin   I talked to his mom  Kate  via  Facebook and  she  thought that  having a supper hero photo would be good.   So that is exactly  how  you can  enter  two photos,
  One   can be of anything  like  last year while  another  is a   photo  that has words on it  that say 


 Supper   (       )

 or  

 ( Name) is a  supper  blank.   

  EX :                                    Do not put a copy wright symbol  on your photograph

  You  do not need  a copyright symbol  

      If you have  fb   Pic monkey  is  an easy app for this.   Let me know if you need help with this and I will try to  walk  you through it; however  I  will not have time to  put words on the pictures so you need  to do it 

 Once you have  done this  email me  at azchapman1991@gmail.com  and  check back  October second for the  video montage featueing   Supper amazing  people  with Cerebral Palsy 




     Updated  August first 

   I have only  gotten two pics  so   I am  going to make it easy on you  guys  Here are your instructions

1 Send me  two different pics 


2Tell me what the text should say   and what picture it goes with 
3Make  sure the text is spelled correctly

Gavin David Leong the Fallen Supper Hero: A boy who will never be six

      He is a boy  who will never be six. 

He is a boy  who will never cuddle  with his mom,

  Sit with his dad,  

Or   play with his brother,  

 He is a boy who will never be six.

He is a boy who left this earth too soon.

 He is a boy who  made a difference. 

 He was a  boy who did not need to  pretend to be a supper hero,

 because he was   

He is a boy who will never be six. 

   Experts say he was deaf, 

 but he heard  his mother's voice. 

 Experts said that he never walked

  Yet,

 on December ,12 ,2012 he  walked across the kitchen floor.

 Experts said  he was not going to learn much 

 Yet he understood how  to hit a switch to ask for water

 He was a fallen hero . 

A boy who will never be six. 

OH God  how I hope and pray 

that you surround his family with love and grace 

 helping them feel in place 

 with their supper hero gone 

 A boy who  will never be six

 He will never be forgotten,  

 never 
ever 
erased.

I never knew this hero,

 I met him online .

Everyday I would read his stories 

on his family blog 

Chasing Rainbows .

I met him 

Meny met him 

 He touched so many lives 

 Like heros do. 

Gavin 

Oh Gavin 

David Leong .I   mourn  for you

 You were so brave 

 and so true.

 There is nothing that I  wouldn't  do to support your family

 ED,   Kate, and Brain 

 You will always have a place in my heart  along with Gavin

  Know  guys that  the  cyber special needs community

Morns with you.

We mourn  for a boy.  
Moans for a boy who did not  have to pretend he was hero. 

 because he was a supper hero.

 A boy who will never be six.

Rest in Peace Gavin.   

My Best friends and a fallen hero

 

FOR GAVIN 

 Growing up.  I  never had solid friendships   A  tall  black  feisty  stubbon hard  headed  disabled  girl was the last person kids wanted to befriend .  When  I was  15  I  started reading blogs, and that  summer  I    started  my own blog.   I have been blogging online ever since ,  I also have  found good friendships with  amazing  people  all connected to  one thing, disability. Over the years  I have met numerous  women , and men who have become  my friends. They have read my blog  and  commented and  I have  read   and commented on their blogs.


 One  such person  is  Kate Leong.    She  has had it hard.  Her  oldest son  has CP  Her youngest has had to overcome a speech  impairment and penut allergy.     Her oldest son, Gavin  David Lenog died tonight after having  heart  problems.   I have  watched her Facebook post since  Wednesday, the day he got sick,  hoping that  he would pull through.  Unfortunately he was pronounced brain dead.   He was  Five   and a half.   He is a  little boy who will never live to be six.


  My Aunt came to town this weekend  and   I  was  happy to see them.  On Friday Gavin took a turn for the  worse.  I read about it  as  i  had a meeting   with my  school DSPS program.  I felt like  I was in a fog. I  had hope that  Gavin  would pull through. I  told  my consular about it.  My speech therapist about it my parents  my aunt.  I have    had  the pic above to honor him.

  I feel pain  for a kid I  never "met"  because of the blog spere. I  may not have met  him in person because  he lived  across  the country   I   knew  he loved music . I was happy  when  he started to walk around  Christmass last year . And I was thrilled when  just last week  he used a switch to say I want water  at school.  Then  this   happend. I am soo  mad at God.  Kate has  already  had a still  born.  She had been trying for  more  kids   without fail and  now  her super hero is  gone.   I do not understand why god makes  life so hard for people. I am  soo mad. Please  keep   this  family in your prayers,

 For any of you longtime  readers  please know that you have been my greatest friends.   A  special  shout out  to  Ellen ,  Kate ,  Jan , Nicole,  Michelle,  Debby, Shannon , Tim, Rick and  those who  I forget  thank-you  for reading  and  inviting me into your homes  and   share  your kids with me.  You may be older then  me; however you are my best  friends .    Kate  you  are amazing  thanks for sharing Gavin's  story  with me and countless others.  I   hope you can find  peace on this difficult day.
 Kate  this  picture is  for you.