October is also Spina Bifida Awareness month

  I know3 people with Spina  Bifida.    All three  of them  are in college      Blog wise    Cassie  at  Beyond  Messures  has   been blogging about  featuring all  kinds of people , including some  cute kids with SB.   Her son  Caleb    is  a  cute  six year old  with SB

Having Cerebral Palsy is not the end of the world

         

Me at  the Bridge School concert 

      I  have lived  with  CP for  two decades  now.    It was  something I   was born  with.      When  I was diagnosed  as a toddler  with  it  my life did not end.      My  mom sometimes wonders   what  i be doing  if  I did not have  CP collage wise  and  I  told  her   I  might  have still  wound  up in  Community  collage  nothing wrong with that.     Someone apologized  to me   when  I  told her I have  CP. There is nothing to feel sorry  for  I am  not  broken  I  still have  feelings /fears. (No    I am not always  happy   )   Having  CP  does not make me less  of a person.     




  Does  CP  make it hard for me to talk  yes   Does it make   hard   for me  to play sports?  yes.  Does it make my handwriting  bad  yes .    Is it frustrating  at  times  yes.    Isn't  frustration apart of  life  yes.


 I think  having  CP has  made  me appreciate the little things in life. For example  if  I see a dragonfly  I  will watch  it for a while  I  took this pic last fall  of a inchworm.     This does not mean  I have a  intellectual disablity, I  did  get an  88 on  a statics test.  Things come a lot harder  for me   simply  means  that i get to  celebrate  things  more.  I am not a optimistic  person, yet  when it comes to  CP   I  do not feel  like it is the worst thing that has  happend to me ( in fact it is the easier then   OCD which  is  not lifelong)  My  view on life  may be different  then others peoples  but     all I know   is this  if  I had a chance to  be average I would do it for a day, yet I would want to go back to being me  Cp  and all.    










   A  penny for your thoughts 

CP or something else

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  interesting stuff 

Today is my Cousin sixth b day

  happy b day  R  hope    all  is  well  give your mom and sis a hug for me 


  AZ 


  in honor  of  R  b day  here are six things that would make  my  life easier


 Free  Speech Therapy


 Friends and  Parties


  Being able to  handle  my OCD 


   Help   when   I need  it 
    More Comments on the  blog 
     Being  Able  to drive  


    Happy  b day   R 


  To see what    would make  special need  mom  happy  click here

Work first play later

  Today I had a math test   which i  take in the disabled  help center at  my college Then we had a  party.   An  open  house  of sorts it was  fun I  demonstrated the Smart Pen.     I   really   enjoyed myselef today  What did you do today 

A revist of church basketball

  For anyone  reading a long time  you  may  remeber  that  from  fifth  thew  eight   grade  I  played in   Church  basketball.  I really  liked   it.  I  was a die hard basketball  fan   so  putting me on an  inculsive   basketball team  seemed right.   I was the only  phiscaly disabled  kid on  the church  team.   The team taught  me good values  such  as  working hard   listening and minding and other things.    All three  years  I  was  on  the   B  team, and  yes  every year  I  tried to   make  the  A  team  at  tryouts.       I  am  reminded  of    chruch  basketball  because  a kid  with   unique  needs   has  a twin  that  will be  playing  on said  team   but  the kid well  was not  going to  try.      This  is a ashamed because  really  ought to try  because    as  you can see  from the photos   I wasn't a disabled  basketball  player   I  was  a  basktball  player   just like my  peers  plane and  simple.

Bridge School Benifit Concert

  Over the  weekend  my  parents and  i  went to the Bridge  School  Benefit Concert.   It was    quite the experience. 

  The Bridge  School  is a school  for  kids   pre preschoolers though  middle schoolers  with severe disabilities.  These   students  may be   vary  smart but   they need help   to  express themselves.  I am  friends with a mom  of  a son  with CP  who  goes  there.      I did not go to  Bridge  because I   have  mild CP.    I had  begged and begged my mom  to go  and we got the tickets on the  lawn. We  naively thought that would be ok.   

  It was not. When we  got there,  about an  hour into the show, we went to    the lawn; it was  packed.   There was no  room to sit on the grass  to watch  the music  we went so far up that we could not   see the stage and   I could not see the  projector.    I turned  to my mom  and   said we  could  go home.   My sensory  stuff was not  going  well and  I do not mean the noise.   It smelled horrible   from  smoke and other  drugs.

  My  mom  took  me back to the   bottom of the hill  where  there were all these booths  for food.    I wanted  to  get   a t shirt so  we  stood in line  for  one.     I have  a ATM card   so  I had to sign   my name.  The lady  helping  me says,

 " YOU HAVE THE NICEST HANDWRITING I  HAVE SEEN ALL NIGHT." 

   The  irony of that statement  is that I have CP and NLD aka   poor  find motor control. That gave my  mom  a chuckle.  I  took it as a compliment but I laughed to.

   We then proceed to the parent  booth where I met   the  twins  of the lady  who  i knew from face book. ( They really should start playing it's  a small world  now).   we then found some picnic tables and waited for my dad who   stayed up on the lawn.

   While we were  waiting  I got   a churro, and my dad brought back some garlic fries  while we listened  to Carlos Santana shortly  thereafter we left.

 My thoughts   I   really liked the cause it was  going  to  but disliked all the  drugs.    Next Year I  think  I will go to the dinner party  and   try to reserve seats   near the stage.  I  really like  watching  the news reports that the school  i  watch them  often enough that I can match  names and faces.  I hope  I can meet all the kids sometimes  or   whose knows maybe  I will work there down the line  only time will tell.