Some photos to end 31 for 21

 Buddy  Walk 2011

Big Wave    pumpkin painting

 i won  this  along  with a mystery box and  tickets to Disneyland 

I am  proud i have blog every day this month  i will try to do it more often  in November    keep those comments coming  they help me blog 

  halloween  pics  coming soon

October is also Spina Bifida Awareness month

  I know3 people with Spina  Bifida.    All three  of them  are in college      Blog wise    Cassie  at  Beyond  Messures  has   been blogging about  featuring all  kinds of people , including some  cute kids with SB.   Her son  Caleb    is  a  cute  six year old  with SB

Having Cerebral Palsy is not the end of the world

         

Me at  the Bridge School concert 

      I  have lived  with  CP for  two decades  now.    It was  something I   was born  with.      When  I was diagnosed  as a toddler  with  it  my life did not end.      My  mom sometimes wonders   what  i be doing  if  I did not have  CP collage wise  and  I  told  her   I  might  have still  wound  up in  Community  collage  nothing wrong with that.     Someone apologized  to me   when  I  told her I have  CP. There is nothing to feel sorry  for  I am  not  broken  I  still have  feelings /fears. (No    I am not always  happy   )   Having  CP  does not make me less  of a person.     




  Does  CP  make it hard for me to talk  yes   Does it make   hard   for me  to play sports?  yes.  Does it make my handwriting  bad  yes .    Is it frustrating  at  times  yes.    Isn't  frustration apart of  life  yes.


 I think  having  CP has  made  me appreciate the little things in life. For example  if  I see a dragonfly  I  will watch  it for a while  I  took this pic last fall  of a inchworm.     This does not mean  I have a  intellectual disablity, I  did  get an  88 on  a statics test.  Things come a lot harder  for me   simply  means  that i get to  celebrate  things  more.  I am not a optimistic  person, yet  when it comes to  CP   I  do not feel  like it is the worst thing that has  happend to me ( in fact it is the easier then   OCD which  is  not lifelong)  My  view on life  may be different  then others peoples  but     all I know   is this  if  I had a chance to  be average I would do it for a day, yet I would want to go back to being me  Cp  and all.    










   A  penny for your thoughts 

CP or something else

Visit msnbc.com for breaking news, world news, and news about the economy

  interesting stuff 

Today is my Cousin sixth b day

  happy b day  R  hope    all  is  well  give your mom and sis a hug for me 


  AZ 


  in honor  of  R  b day  here are six things that would make  my  life easier


 Free  Speech Therapy


 Friends and  Parties


  Being able to  handle  my OCD 


   Help   when   I need  it 
    More Comments on the  blog 
     Being  Able  to drive  


    Happy  b day   R 


  To see what    would make  special need  mom  happy  click here

Work first play later

  Today I had a math test   which i  take in the disabled  help center at  my college Then we had a  party.   An  open  house  of sorts it was  fun I  demonstrated the Smart Pen.     I   really   enjoyed myselef today  What did you do today 

A revist of church basketball

  For anyone  reading a long time  you  may  remeber  that  from  fifth  thew  eight   grade  I  played in   Church  basketball.  I really  liked   it.  I  was a die hard basketball  fan   so  putting me on an  inculsive   basketball team  seemed right.   I was the only  phiscaly disabled  kid on  the church  team.   The team taught  me good values  such  as  working hard   listening and minding and other things.    All three  years  I  was  on  the   B  team, and  yes  every year  I  tried to   make  the  A  team  at  tryouts.       I  am  reminded  of    chruch  basketball  because  a kid  with   unique  needs   has  a twin  that  will be  playing  on said  team   but  the kid well  was not  going to  try.      This  is a ashamed because  really  ought to try  because    as  you can see  from the photos   I wasn't a disabled  basketball  player   I  was  a  basktball  player   just like my  peers  plane and  simple.

Bridge School Benifit Concert

  Over the  weekend  my  parents and  i  went to the Bridge  School  Benefit Concert.   It was    quite the experience. 

  The Bridge  School  is a school  for  kids   pre preschoolers though  middle schoolers  with severe disabilities.  These   students  may be   vary  smart but   they need help   to  express themselves.  I am  friends with a mom  of  a son  with CP  who  goes  there.      I did not go to  Bridge  because I   have  mild CP.    I had  begged and begged my mom  to go  and we got the tickets on the  lawn. We  naively thought that would be ok.   

  It was not. When we  got there,  about an  hour into the show, we went to    the lawn; it was  packed.   There was no  room to sit on the grass  to watch  the music  we went so far up that we could not   see the stage and   I could not see the  projector.    I turned  to my mom  and   said we  could  go home.   My sensory  stuff was not  going  well and  I do not mean the noise.   It smelled horrible   from  smoke and other  drugs.

  My  mom  took  me back to the   bottom of the hill  where  there were all these booths  for food.    I wanted  to  get   a t shirt so  we  stood in line  for  one.     I have  a ATM card   so  I had to sign   my name.  The lady  helping  me says,

 " YOU HAVE THE NICEST HANDWRITING I  HAVE SEEN ALL NIGHT." 

   The  irony of that statement  is that I have CP and NLD aka   poor  find motor control. That gave my  mom  a chuckle.  I  took it as a compliment but I laughed to.

   We then proceed to the parent  booth where I met   the  twins  of the lady  who  i knew from face book. ( They really should start playing it's  a small world  now).   we then found some picnic tables and waited for my dad who   stayed up on the lawn.

   While we were  waiting  I got   a churro, and my dad brought back some garlic fries  while we listened  to Carlos Santana shortly  thereafter we left.

 My thoughts   I   really liked the cause it was  going  to  but disliked all the  drugs.    Next Year I  think  I will go to the dinner party  and   try to reserve seats   near the stage.  I  really like  watching  the news reports that the school  i  watch them  often enough that I can match  names and faces.  I hope  I can meet all the kids sometimes  or   whose knows maybe  I will work there down the line  only time will tell.

Learning to read part three My least favorite sound

   I was recently asked  what my  least favorite  letter/ sound  is  and after  much thought i  think it is C


 I  have been  working on C   for a long  time.     It  has been  hard   work  and  i have memories of trying to say  Car  cat cookie    instead of  Tar tat  tootie.  

 Do not be fooled by the Graphic "c" is  a hard soud

 I  remember in  K  my teacher  had this  phonics book  of  letters in the alphabet.  I was  in a mainstremed class    and   I  remember  her introducing the  C book and  explaining  the  sound and adding    you  should be able to  say it.  I remember asking her why  I could not  say  C and  being  told  I was different/ I know  i owe you  guys   my inclusion story  and  i  will get to it. In the mean time  tomorrow's post will b about the concert I  went to   so stick  around.


http://thumbs.dreamstime.com/thumblarge_481/12669910387XzCc7.jpg

Recycle post Forever Kids

   I posted this last october   tonight i am  going to a concert so stick around  for new  post  later

 I am  19 years old.  With me  being an American  i am  considered  an  adult? or am I?   

kid or adult  you decide

Now  if  I did not  have any disabilities   the  answer  would be  at   yes  I am an adult    no questions  asked.  But add a disability  in there and  the     word  changes  back to  kid.   As of now this does not bother  me as i  miss high school   and  do a lot of things  like a kid ie live at home   do not drive   mom and dad  give me chores  and the like.      I do not think the word adult will scare  me though and I think  I will  take more  offense  to the word kid  more and  more with wisdom and   time   after high school.

   now  lets  talk about other with  intellectual  disabilities  it  may  be  me  or is it  that people will often  refer to them  as  kids  not  meaning  any harm.   It is  so much  better than the R word   for sure.  But  to say  they  are  kids.  I am  not sure about this so  i will look up   Adults in the   dictionary  this  is from  Dictionary .com

–noun

4.

a person who is fully grown or developed or of age.

5.

a full-grown animal or plant.

6.

a person who has attained the age of maturity as specified by law.

 

me  in Las Vegas summer 2005   age 13

 There  is no  mentioning  of intellectual abilities  or  going  off  to  work  or completing  collage  or any of that  so why should  people with disabilities be called kids  is it hard and  some times  it seem like they are children  ?  Sometimes   there are  people  I know  with disabilities  who  fit  this .  But  they are adults   in age.  They   can  vote   ( provided there in  a Democratic society)  can  work   and  do leave high school.   Disabilities   should not  hinder   the word adult being   associated with them.   We  may need help  flinging  adult  roles and  living on our own.  But  the definition does not   state that does it?

  The  reason why I  bring  this up is   from my history  lessons  and family stories. You know like how white used to do it to blacks   back before the civil rights movement  when  white addressed  blacks  as  boy, or girl  and    blacks had  to address   white adults   as  sir  or  mam.   Just a  thought  most of  you  reading this  have disabled  youngsters  so you  probably do not have to  worry about this  yet What do  you think?

 

plans for tomarrow

    help   LM  with  something 

 hw 
  Concert   
 hope everyone has a   good  saturaday

Guess who i met

 Me on the way up  on Mount Tam  Summer 2010

         Late breking news   From  today  but first a pre story


  A  few months  ago
           Mom: AZ   do you  know who    S  W is 
               AZ: No
                 Mom:  He has  CP and the speaker  at  the  annual breakfast  for   Community Gatepath"


 Cool
     A couple weeks later  I saw this.













 and i  asked  "Mom  are we going to Gatepath  so i can  meet him.




  Mom:  no  i have to present  far away


  These past two  weeks


  AZ:  I  have to go to the breakfast  I  have  to  go  to  the breakfast


    Last night


  Dad:  AZ you  can go to the breakfast.   Your mom will   drop you off and I  will  pick you up.


 Today


  MOm  and  i got there late but i was able to get a ticket  and  a seat at  a table in the back and I heard  Steve Wampler  speak.  He is the first person  with CP  to  climb   El Captin in  Yosimitee.    This is not an esay task  for anyone  but   get this    he  only  has  use of  one  hand .    He was able to  grip on with both hands  and  pull up in a  chair.     It took him  six days  but  he made it.     Off the moutian  he  is a husband and  a father  to two  kids.    It  was soo nice for me to meet someone  else with CP  that I can look up to.  He has a new  movie  coming out  next year  and I  told him  he should  come back to the area to screen it.  I really  enjoyed   meeting him and hearing  his story.  I do not  know what my life will be like as I  get older  but    meeting   Steve shows me that    i may  end up  leading  an  adverage life( married , kids,  a career) and  a chance to inspire others    

I need to remind myself

 That   I am amazing.   You  know   somettimes   you get mad  or sad  or  scared    try thinking  that  your amazing.  I have yet to find    great friends and thats  gets me down   but  at the end of the day I  think   if i remember how   great    and things will be ok

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  A  penny  for your thoughts

Princess is powerfull

   I thought I would give  u an update on   my youngest sister  princess.   Princess is   a senior at my  high school  this  year.  She is  playing  v ball and  is  really good.  She   won best in torment  earlier this  year.   She does not  want to  do college  v ball  even though  she is good enough to  She is  stressed  about College  apps  but she will be fine.        

   How  are your  other kids  doing?

Buddy Walk recap

  Happy  Monday everyone  


   On   Saturday  I  went to my  first ever  Buddy Walk.   I looked forward to it all week and    i am glad  I went.  I work up coughing   on Friday  morning and   the first thing  i thought was  i might miss the walk  I did not miss  it and am glad  I  did not    I went with a family that I had met  from my special olympics  young athletes  days.   The family  has one son  and two little girls,   the little boy  with DS I  sat  next to him  and  we sung songs on the way down.  He is  Sesame Streets  biggest  fan  so  when  I sung  the theme song and  paused after  " Can you tell me how to get. '  he  new  what to say it was  soo cute.  Once we arrived The  weather was  beautiful and there   were lots of cute kids there.  I met  a little  four year old who  has  battled cancer twice and  is a savior .   some people get  really into buddy walk.  There were people with signs and banners celebrating the abilities of their love  one  with  Down Syndrome.  The Family I went with  had a sign  that was  right  in front.    It was a fun  walk.


   The only bad  part was knowing that  this great celebration   was not  for me, so selfish  I know.  There is no walk for CP and  I wish  there was.  Camp  Pals  was there  and they are going to have a camp pals  in   CA  summer 2012 which sounds like  fun except wait  I  do not have down syndrome.  I  signed the mailing list    maybe  my sisters  , or me. would  like to be  a consular  and  have a good time at Camp Pals.


 I really liked the  Buddy Walk  and   I  like to ask this of  the  organizers.     Why not have  a  Buddy  Walk for all  disabilities   or   people with Cerebral Palsy  lets     get a walk together.   I think its something everyone who  has   a child with Down Syndrome   should go  to.     Everyone needs  a buddy no  matter how  meny chromosome they have.


 got image  from http://www.dsconnection.org/images/NewsEvents/buddy-walk-logo_big.gif


off to go watch   The Time Square Video

This should make for an interesting Monday

 I left my  cell phone at the Buddy Walk. (apparently the phone  wanted   a new  buddy :)). I also  lost  
   
   My  alarm clock 


  My  phone  so  i can call  people for a  ride  from my evening class.
  
My  Camera so     if i  mange to make it to stats  i can not take a pic of  my  buddy's   classwork  which is   allowed so  i do not have to  do  hw


 I will  let u all  know  how it  all goes  

Eventful saturday

Bay area buddy walk and dramma more detalis latter

Terrific Tripplets

   Check them  out

Learning to read part two My first independent book

     Growing up   my family had a lot of  kids book  lying around  our house.    Among with the Disney   we had  lots  of    step into  reading books .    Out of  all of them  the book  I  remember  reading for the first time  was Tiger is  a Scaredy Cat.  

  Looking back    I say it was a sad  irony that I  remember  this  book   as  I  deal with  fear.      But that was  my 'first independent book.     I also have memories   of  reading this book in  pre  K.  

    Do you remember your first book        What books are/were your    kids   favorite ,

Learining to Read part one : intro

 This hurts  my hard sounds  a  three  year old can say :(

      Let me  start out by saying that I love to read.    It should be no surprise.  These next few  post   will be about how  I learned to  read.  I   read   in a way dispute  never learning  phonics .    Well  not in the traditional way.  I  know what the letters  are supposed to sound like  but   producing those sounds is a different  story.  This  is  due to   Cerebral  Palsy.  Not all   people with CP   have speech  issues.    They  range  from   no problems to   using     speech  devices to  talk.     I  would  classify myself  as   somewhere in the middle.    I  do not need a speech device  but sometimes people do not understand me.  This  can get  frustrating.   I do  a lot  of substituting   which  means that    I  would  say cat   as  "tat"   or  dog as  dod.  I  also  do this  for L's and R  which  i  replace with a  W.   Let me  make this  really  clear the reason  for my lack of substituting sounds has nothing to  do with intelligence. I am  smart  just see  Monday's  post.  Now   I hear myself fine  and understand myself  100 percent of  the time.   Now this sounds contradictory but despite being able to  hear    all the sounds    so  I can sound out  words  I am a bad speller. Not sure why  this is    but  I  would like to be a better speller and I want to  take a spelling class in the  near future.    Anyway  this  might seem  that  I  would be  a uphill battle to  make me understand  reading  but  it really wasn't.( at least that's not what I remember) 

        I  hated  learning  phonics  for me   it was  a reminder to me that I was 'different' in fact  I  remember being told that by my teachers,     For parents of kids  with articulation  delays  do not stress  phonics.  It is helpful to know phonics  but  it is not required.   Model the  sounds  read to your kids   but  do not  stress   hearing the phonics  from them.    People  who  are non verbal can still read as well  as long as people    know how to teach them.

 Here is a school that    proves this








 got image  from

chart http://mommyspeechtherapy.com/wp-content/uploads/2010/08/sound_dev_chart.jpg
bookwormhttp://www.sewterific.com/images/BacktoSchool/BTSBookwormLove.jpg