Today is the annual Cerebral Palsy Connection. I am here to tell you that instead of getting one day of stuff on CP. I will be posting four weeks worth of Cerebral Palsy information about my life. I will be posting about my middle school Memories some video from life as a college , and some flashbacks from the past 20 years. In case you are wondering why four weeks worth March is Cerebral Palsy Awairness Month along with the all to important Spread the word to end the word. So please book this page susbie and do whatever you need to do so you can get to this page for the next four weeks Mon-Fri. I will not post on the weekend.
Thursday, March 1, 2012
Thanks for stopping by but please stick around
Today is the annual Cerebral Palsy Connection. I am here to tell you that instead of getting one day of stuff on CP. I will be posting four weeks worth of Cerebral Palsy information about my life. I will be posting about my middle school Memories some video from life as a college , and some flashbacks from the past 20 years. In case you are wondering why four weeks worth March is Cerebral Palsy Awairness Month along with the all to important Spread the word to end the word. So please book this page susbie and do whatever you need to do so you can get to this page for the next four weeks Mon-Fri. I will not post on the weekend.
Wednesday, February 22, 2012
Living with NLD Past Present and future
A Filmmaker with Nld recently asked me some questions about living with NLD because she is making a documentary about this disability and since have not blog specifically about my NLD before I thought I would share the anwsers with you guys
This is a long post so make sure you have a lot of time to read
* When did you discover you have NLD and how did it affect you in school when you were a child? Were you ever bullied because of NLD?
I was born prematurely and was diagnosed with mild Cerebral Palsy as a toddler I received early intervention for the CP which include OT PT ST hippo therapy My parents could tell that I was bright so after I Graduated from the county program for disabled preschoolers I entered a Private school for pre-k til first grade
When I was in first grade symptoms of Nld started. I sat on my teachers lap a lot and needed a lot of intervention. I was still learning but having a hard problems with behavior anxiety and of course making friends. I got diagnosed the winter of first grade so around 1998. The school did not want me anymore so I left and was in public school ever since. I knew I had NLD as a youngster but it took until I was a freshman in high school to understand what it really meant to have it.
For the next ten years of my schooling I had problems with social skills behavior problems and anxiety: however I was still in the general education classrooms and I am now in college. I was bullied all the way though elementary school mostly because of my speech issues which were from CP. In middle and high school I was bullied most in special education classes which teachers thought I was the bad student.
*How does NLD affect you know in the following areas:
Executive Functioning/Organization Skills/Time Management
Binders are a mess
Visual/Spatial Issues (Getting lost, math, etc)
I am good with directions but learning math was extremely difficult for me as a elementary student. in high school I really struggled with Geometry but I got though it and passed it the first time. I sometimes bump into people.
Social Skills—friendships
This has been a hard struggle for me. I get my social time with others with disabilities and the whole high school drama thing actually happened outside of school. It was hard because of clicks and stuff that con sits of people of all types of disabilities. My behavior problems are a part pf this and for high school this was part of OCD and anxiety
*What's the most frustrating part of having NLD? How do you compensate for these issues?
Lack of friendships are the hardest part for me. I compensate by going on facebook and blogging and talking to myself
*Do you feel that NLD has in some way helped you in your life? How? What do you like best about having NLD?
I know what it feels like to be picked on so I think the challenges I have faced have motivated me to help others. I like how NLD allows me to focus on things I enjoy such as Toy Story Harry Potter and disability advocacy.
*I'm really impressed with you activism promoting disability rights in general and within NLD and CP communities? Why have you chosen to be this active? What do you get out of it and what do you think other get out of it?
Thanks . I chose this because I started reading blogs of parents mostly who had children with DS and it looked like a lot of fun. That was back in 2007 and some of those bloggers who I originally read are no longer around. I get a way to express myself and others get a chance to meantime. I really love being a disabled advocate and hope to keep doing it for Meany years to come
*Why did you blog about your life and why did you choose to include NLD/CP? Those were my disablites at the time I started blogging
*What would you like to do when you graduate from college?
I want to be a special education teacher that helps kids with developmental disabilities be include in there high schools for the Marjory of their day including academics. I am also a writer so I might write a book.
* Are there any specific issues about NLD that you would want to see included in a documentary film about NLD?
dating and Nld as i have never dated before but would like to find a husband some day
*What would you want an audience who's never heard of NLD to know about the disorder and about the people who have it?
I like parents and teachers to know that students with NLD are not bad people are not trubble makers I would also say to teachers to treat all students with respect. I am currently blogging about my middle school years and will go though all this in depth later
*Are there any misperceptions of people with NLD that you would like to see addressed?
see above
This is a long post so make sure you have a lot of time to read
Me in Kindergarten |
I was born prematurely and was diagnosed with mild Cerebral Palsy as a toddler I received early intervention for the CP which include OT PT ST hippo therapy My parents could tell that I was bright so after I Graduated from the county program for disabled preschoolers I entered a Private school for pre-k til first grade
Me in first grade shortly after I was diagnosed with NLD |
For the next ten years of my schooling I had problems with social skills behavior problems and anxiety: however I was still in the general education classrooms and I am now in college. I was bullied all the way though elementary school mostly because of my speech issues which were from CP. In middle and high school I was bullied most in special education classes which teachers thought I was the bad student.
*How does NLD affect you know in the following areas:
Executive Functioning/Organization Skills/Time Management
Binders are a mess
Visual/Spatial Issues (Getting lost, math, etc)
College Stat test I passed it with a B. With NLD that is huge |
Social Skills—friendships
This has been a hard struggle for me. I get my social time with others with disabilities and the whole high school drama thing actually happened outside of school. It was hard because of clicks and stuff that con sits of people of all types of disabilities. My behavior problems are a part pf this and for high school this was part of OCD and anxiety
*What's the most frustrating part of having NLD? How do you compensate for these issues?
Lack of friendships are the hardest part for me. I compensate by going on facebook and blogging and talking to myself
*Do you feel that NLD has in some way helped you in your life? How? What do you like best about having NLD?
I know what it feels like to be picked on so I think the challenges I have faced have motivated me to help others. I like how NLD allows me to focus on things I enjoy such as Toy Story Harry Potter and disability advocacy.
*I'm really impressed with you activism promoting disability rights in general and within NLD and CP communities? Why have you chosen to be this active? What do you get out of it and what do you think other get out of it?
Me and my cousin in 2007 the year i started blogging |
*Why did you blog about your life and why did you choose to include NLD/CP? Those were my disablites at the time I started blogging
*What would you like to do when you graduate from college?
I want to be a special education teacher that helps kids with developmental disabilities be include in there high schools for the Marjory of their day including academics. I am also a writer so I might write a book.
* Are there any specific issues about NLD that you would want to see included in a documentary film about NLD?
dating and Nld as i have never dated before but would like to find a husband some day
*What would you want an audience who's never heard of NLD to know about the disorder and about the people who have it?
I like parents and teachers to know that students with NLD are not bad people are not trubble makers I would also say to teachers to treat all students with respect. I am currently blogging about my middle school years and will go though all this in depth later
*Are there any misperceptions of people with NLD that you would like to see addressed?
see above
Tuesday, February 14, 2012
Happy Valentines Day
Hay guys sorry I have not posted much the reason for this is college has started and that means homework I have some big plans next month so stick around.
Sunday, February 5, 2012
Why I am supporting the Patriots
he grew up in San Mateo CA and went to the same church that I went to for CCD and basketball. I played on a inclusive basketball team there and now a little guy with DS plays there because I recommend it to them when he played soccer on our county special olympics team
Wednesday, February 1, 2012
A little video
FYI today is women in sports day that is why I posted the video stick around in march as I will be blogging a lot about CP that month because March is CP awareness month
Friday, January 27, 2012
rocky road
So the lack of blog post should single readers that I am back in school. but unlike last semester it has been really rocky thanks to OCD.
I behind on homework but if i get caught up I will cach up on here .
Anyway for the good news
basketball looks promising we have a tournament next weekend.
I love my biology class the teacher is super nice more on this soon.
I am also enjoying most of my other classes
I behind on homework but if i get caught up I will cach up on here .
If anyone has a facebook page click here for my blog page on facebook.
Tuesday, January 17, 2012
Guess who I met
So last Tuesday I went to San Francisco's pier at night. It was nice because it was not crowed or anything but I was not there to sight see. I was not there because I like the city but yet I was there to go the Aquarium by the bay but I was not there to see fish.
I was there to see a movie and not just a movie but a Q and A with the film maker do you know who yet?
I will give u a hint he is also a father,
He is a fabulous photo journalist his work has been in Time Magazine
got this from http://elmercqegs.files.wordpress.com/2011/03/time_magazine_logo.jpg |
It Was DAN HABIB OF INCLUDING SAM.
I was so excited to meet him and listen to him speak. He is soo good with presenting there were some kids there and it was really nice that he took the time to interact with him. He had recognized me and during the presentation asked me to stand up and I got a standing ovation. I really loved going it was soo cool because I finally got to 'meet' him . Of course we have been Facebook friends for a while now. I really love having IRLs. I was in my element going to stuff like this really solidifies that I want to be a disabled advocate on the rights of inclusion of students with disabilities. I am norm, something I am a part of is going to be having another youth summit and this time I will be attending. The best part was that the evening changed people's attitudes and got the conversation started. Thanks Dan for coming hope to see you again soon
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