Cerebral Palsy Party Day Three: Inventions that increase independence

   Long time readers may remember that  I used to have a baby sitter, T,  T  stayed with us from the time  I was in  Kindergarten til  I graduated from high school.

  T and AZ   at  AZ's High School Graduation  2010

 One of the things  that T did for us kids was laundry which meant after  she left I  had to do my own  washing. This  posed some challenges for me  due to find motor and forgetfulness.  When it came to soap  I could never  navigate the soap.  I would load the clothes in the washing machine  then  have someone help me pour the soap into the right compartment.



  When my family discovered pods, pictured below,  they totally allowed me to be independent in my laundry.  Pods are soap packs that you put into the main compartment with the clothes.    It makes it easy to  wash. These can be found at many stores and are not  too  expensive.  These help me  be independent.          

  You  put the thing on the right  in the wash.

 Tide  DID NOT SPONSOR  THIS POST .  THE VIEWS EXPRESSED HERE ARE MY OWN

Palsy Party Day Two : Never a good word

 Today is Spread the Word to  End the word.

 The word is Retarded.  It is not a nice word.

 In a US  History class at my private college.  Which  was not inclusive.   My professor used this  word.  My  stomach  dropped.    He said  something about  the fact that   Cotton gin  was not  invented  retarded   the  growth  of cotton.


 Now  you  may be wondering  why this upset me, it still does  because  my reaction to it  was a reason why I was not permitted  to attend  the next year.  First off  the professor  yelled at me  saying it was a fine word to use in that case. Second  the administration  defended him, including the  disability person.

   I am sorry but when is that word ever okey. Why is it that a term that is considered hurtful to  people, children and adults,  ever be okey to use.    If   a student with an intellectual disability  was in the class they may not understand that you were not talking about them.  That is why it is never a  good word to use.

  Please go sign the pledge  and eliminate this dreadful word from your vocabulary.

Palsy Party 2016

    Hello guys it  has been quite around here.  I am sorry.   I am in 13 units  which is challenging.  I am  going to  try to blog every weekday  for CP awareness.   Anything you want to hear about in particular  let me know in  Particular  let me know in the comments BE SURE TO TUNE IN  TOMORROW AND THE REST OF THIS MONTH.

Hay guys

  HI long time no blog.  I  tend to use my  FACEBOOK  page more  for stuff so  be sure to like that page.


   How   Am I doing.

 Really well .  I am a Senior in college and will be graduating in June along with Princess.   This quarter I am in  three classes and  playing basketball in HMB.

I am in Music, History of Early Christianity,   Judo, and  anthropology  . So far 2016 has been  busy but good.  I am enjoying  History because we get to keep a website. Click Here to see  the website
 that I am keeping for class.

 Also  I am in the beginning stages of trying to publish a  children's book about CP. More details will be released as I get them.

Year in Review

Happy  New Year Everyone. It is time  once again to look back on my year.

 January 2015   I tried a new school.  I met with a new school consular   who  gave me some exciting news, read through to the end to see what it was.  I did not  start this school but  I  thought about going it would take a few months before I worked up the courage to  go but  I had the confidence to  try  and that has made the  difference.

 February   2015 Beat  our cross town  rivals in basketball

 March 2015  Had a fun  basketball tournament  and went to the Warriors Special needs night where I  scored a ton of baskets Went to Tahoe and celebrated  National CP Day.

April 2015   Started  School and loved every second of it .    I went go Karting and had a fun Easter  with friends.

May 2015   My Grandma came to visit.

June 2015  The  warriors win the NBA Championships. My parents go to Puerto Rico.   I begin Summer Classes at my new school.  Met up with Friends at the  Magical Bridge Playground.  Princess goes to Tonga with her  friends.

July 2015: Find out that I will be a Senior if  I pass all my classes in the  Fall.  I also learn that I will graduate   2016. (more on this soon)

 August 2015 :  I played Unified  golf with a former  Teammate from High School .   Completed a big project  and finished all my summer classes

September  2015 :    Tuned 24. Began Senior Year and  Princess  goes to Italy  for studied abroad.













October 2015 : I have fun at the Big Wave Harvest Festival  and  Carving  Pumpkin Event.  I  dress up as Yoshi for Halloween.

 November 2015  Get some disheartening news about   my future  but  people at my junior college and current school  rally around me and convince me not to Drop out of School.

 December 2015:  Finished and Passed all of my classes and  Princess returns  home safely !  Have a Star Wars Marathon.  I get a ton of clothes for Christmas. I can not wait for the  New Year.  2016  could very well be the best year  of my life.
 I do plan to use my Fb page more often in  the New  Year so Go Like i

Resolutions 

 Caring the  Torch  Spring 2015

 BE  Positive

 Gain Independence

 Lose Ten Pounds  and Eat Better

Stuff  I wrote

 CP Can  Earn Money 
 The Best Word in  a Textbook
 Dear CP 
 The Invisible Student 

The REAL Experts:An partial explanation of why Disabled people are mad at the Mighty

 Hi guys its been awhile but something pressing has come up  that I want to tell you about. For those in the disability  blogging community   you probably have heard of  the Mighty , but what not  may  be as clear is the problem that some disabled people have (using that  for a reason please  bare with me).

 My family and I have  watched all six of the orginal Star Wars over the holidays.  It is a great series  and lends itself  good way  explaining  part of  what is going on.

     If you wanted to know what being a Jedi is like who would you go to for an explaination?

a  R2D2

B A  wookie 

C  Luke Skywalker 

D  Hans Solo 

        If you were  to ask me this at the begining of the month  I would not know  who  to ask because I  do not know the characters.      If I  told you that   Luke  is a Jedi  The answer should be pretty clear  that you were to ask  Luke to explain the Jedi's role.    This  seems like common sense for any other able bodied  question on the experts. 

     When the person has a disability they are thought to have no voice which gives rise  to Parents being  their child's voice.  I am not saying that parents should not advocate for their kids.    What I am saying  is that they aren't the experts on disablities nor  are the doctors  and specialist   or  teacher experts, asuming  that none of them had   a disability, The real experts are the ones that live  it 24 seven or people with disabilities.  The only experts are the disabled. 

   Do Able bodied people   play an important part  in a person's life.?  Yes They are the ones that  use their   skills abilities and privilege in helping their child navigate  this   society.   But they do  have privilage and sometime their use of  privilage  does more harm then good.  For example  when people  poke fun of their disabled kid or dicuss personal issues  online for anyone else to see then they  violate others privacy  in the name  of advocacy.   An example of this  is anything relating to the bathroom  should not  be online for anyone to see. Itpersonal  and  not  for the public.  Another thing is  Insperational Pron.  I will  write a post on it  soon.   This is why disabled people are mad.

Tune in tonight

  For  A and  E  new series  Born this way. Staring Sean McElwee of  Who's The Slow Learner 
  and  six other  adults with Down Syndrome.


 Tonight  at  10 /9 central on A&E

AZ with  Sandra and  Sean