Monday, March 7, 2016

Cerebral Palsy Party 2016 : Friendship

  Hi  guys,

 Today I am  going to talk about friends,  I have mentioned earlier but it is fine time to post an update.  A lot  of things have changed since I last blogged about this.


   You may remember that  I used to go to a school that wasn't inclusive.  It was a private university.   What you may not have known is that I made great friendships there.  One of them was a  biology student.  In fact one of the two reasons , the other being my mother, why I went back in the fall  of 2015, was to be around   this guy.   He is that awesome.  He wants to be a doctor and I think he will be the best doctor in the world, he is smart caring and does not judge .    He graduated last year, and will be applying to medical school next year.    But in the meantime he will be spending some time helping  disabled kids and endangered animals in  South America for a few  months .   He leaves  tonight.   On the  last day  before  he heads to the airport, he  spent some time with me.  So  yes   he truly is a friend.
                     I think the key to a friendships is that we are   equal.  He  helps me  if  I need help, but  I do my part to help him as well.   For example ,  he  may drive me to a restaurant, but I  pay for the  meal.   He listened  to me when  I was having difficulty at my school, and I listen to him as  he has problems.   I am so  glad that I have a friend in him.  I will miss him and eagerly await his  return in May.

http://www.informationnine.com/wp-content/uploads/2014/12/237.jpg

Friday, March 4, 2016

Cerebral Palsy Party Day Five Becoming Bullet Proof.

  So  I just finished watching an amazing documentary and film.   Bulletproof   is about a bar tender  who  is under threat by a gambler  who wants to take over the  bar to make an hotel.    Sounds like an ordinary movie   right.     It is but it isn't as the cast is comprised of people with and without disabilities.    All the main characters  have  a disability  whether its  Cerebral Palsy  Williams Syndrome or Down Syndrome.


     Since its Cerebral Palsy Awareness Month.   I am  going to talk about AJ.  AJ is man that has CP.   He is in a wheelchair and tends to be trapped  at his home a lot with his mom and sisters. AJ acted in many  plays when he was younger  so when he heard about the program,  which  shoots in  the  LA  area, he  begs and begs for a chance to go to camp ,  I tend to  do this a lot too.  The Film  Becoming Bulletproof  follows his journey to make   Bulletproof.


         I  really liked this movie.  As a disabled  advocate I have always been all for inclusion  of people with disabilities both  among disabled people, physical  and intellectual,  along with people without disabilities. This movie does both which is refreshing to see.  One of the things that  was hard to hear as a person with CP was when AJ says that he feels like he doesn't have a chance to give back. As a young person with CP  I totally understand where he is coming from.  I feel fortune that I am able to give back  but it is hard because some people are unwilling to accept the help.


 This is a great movie that comes highly recommend.

  Here are some links

 the Trailer





  The movie  Bulletproof

Bulletproof RECUT FINAL 720 MED from Zeno Mountain Farm on Vimeo.


  A link to   the organization  Zeno   Mountain  Farm 

Thursday, March 3, 2016

Cerebral Palsy Party Day Three: Inventions that increase independence

   Long time readers may remember that  I used to have a baby sitter, T,  T  stayed with us from the time  I was in  Kindergarten til  I graduated from high school.

  T and AZ   at  AZ's High School Graduation  2010


 One of the things  that T did for us kids was laundry which meant after  she left I  had to do my own  washing. This  posed some challenges for me  due to find motor and forgetfulness.  When it came to soap  I could never  navigate the soap.  I would load the clothes in the washing machine  then  have someone help me pour the soap into the right compartment.



  When my family discovered pods, pictured below,  they totally allowed me to be independent in my laundry.  Pods are soap packs that you put into the main compartment with the clothes.    It makes it easy to  wash. These can be found at many stores and are not  too  expensive.  These help me  be independent.          




  You  put the thing on the right  in the wash.






 Tide  DID NOT SPONSOR  THIS POST .  THE VIEWS EXPRESSED HERE ARE MY OWN


Wednesday, March 2, 2016

Palsy Party Day Two : Never a good word

 Today is Spread the Word to  End the word.






 The word is Retarded.  It is not a nice word.

 In a US  History class at my private college.  Which  was not inclusive.   My professor used this  word.  My  stomach  dropped.    He said  something about  the fact that   Cotton gin  was not  invented  retarded   the  growth  of cotton.


 Now  you  may be wondering  why this upset me, it still does  because  my reaction to it  was a reason why I was not permitted  to attend  the next year.  First off  the professor  yelled at me  saying it was a fine word to use in that case. Second  the administration  defended him, including the  disability person.

   I am sorry but when is that word ever okey. Why is it that a term that is considered hurtful to  people, children and adults,  ever be okey to use.    If   a student with an intellectual disability  was in the class they may not understand that you were not talking about them.  That is why it is never a  good word to use.

  Please go sign the pledge  and eliminate this dreadful word from your vocabulary.

Tuesday, March 1, 2016

Palsy Party 2016




    Hello guys it  has been quite around here.  I am sorry.   I am in 13 units  which is challenging.  I am  going to  try to blog every weekday  for CP awareness.   Anything you want to hear about in particular  let me know in  Particular  let me know in the comments BE SURE TO TUNE IN  TOMORROW AND THE REST OF THIS MONTH.

Saturday, January 30, 2016

Hay guys



  HI long time no blog.  I  tend to use my  FACEBOOK  page more  for stuff so  be sure to like that page.


   How   Am I doing.

 Really well .  I am a Senior in college and will be graduating in June along with Princess.   This quarter I am in  three classes and  playing basketball in HMB.

I am in Music, History of Early Christianity,   Judo, and  anthropology  . So far 2016 has been  busy but good.  I am enjoying  History because we get to keep a website. Click Here to see  the website
 that I am keeping for class.














 Also  I am in the beginning stages of trying to publish a  children's book about CP. More details will be released as I get them.


Thursday, December 31, 2015

Year in Review







Happy  New Year Everyone. It is time  once again to look back on my year.

 January 2015   I tried a new school.  I met with a new school consular   who  gave me some exciting news, read through to the end to see what it was.  I did not  start this school but  I  thought about going it would take a few months before I worked up the courage to  go but  I had the confidence to  try  and that has made the  difference.

 February   2015 Beat  our cross town  rivals in basketball

 March 2015  Had a fun  basketball tournament  and went to the Warriors Special needs night where I  scored a ton of baskets Went to Tahoe and celebrated  National CP Day.

April 2015   Started  School and loved every second of it .    I went go Karting and had a fun Easter  with friends.

May 2015   My Grandma came to visit.

June 2015  The  warriors win the NBA Championships. My parents go to Puerto Rico.   I begin Summer Classes at my new school.  Met up with Friends at the  Magical Bridge Playground.  Princess goes to Tonga with her  friends.

July 2015: Find out that I will be a Senior if  I pass all my classes in the  Fall.  I also learn that I will graduate   2016. (more on this soon)

 August 2015 :  I played Unified  golf with a former  Teammate from High School .   Completed a big project  and finished all my summer classes

September  2015 :    Tuned 24. Began Senior Year and  Princess  goes to Italy  for studied abroad.













October 2015 : I have fun at the Big Wave Harvest Festival  and  Carving  Pumpkin Event.  I  dress up as Yoshi for Halloween.

 November 2015  Get some disheartening news about   my future  but  people at my junior college and current school  rally around me and convince me not to Drop out of School.

 December 2015:  Finished and Passed all of my classes and  Princess returns  home safely !  Have a Star Wars Marathon.  I get a ton of clothes for Christmas. I can not wait for the  New Year.  2016  could very well be the best year  of my life.
 I do plan to use my Fb page more often in  the New  Year so Go Like i















Resolutions 





 Caring the  Torch  Spring 2015






 BE  Positive

 Gain Independence

 Lose Ten Pounds  and Eat Better









Stuff  I wrote

 CP Can  Earn Money 
 The Best Word in  a Textbook
 Dear CP 
 The Invisible Student