Hi guys,
Today I am going to talk about friends, I have mentioned earlier but it is fine time to post an update. A lot of things have changed since I last blogged about this.
You may remember that I used to go to a school that wasn't inclusive. It was a private university. What you may not have known is that I made great friendships there. One of them was a biology student. In fact one of the two reasons , the other being my mother, why I went back in the fall of 2015, was to be around this guy. He is that awesome. He wants to be a doctor and I think he will be the best doctor in the world, he is smart caring and does not judge . He graduated last year, and will be applying to medical school next year. But in the meantime he will be spending some time helping disabled kids and endangered animals in South America for a few months . He leaves tonight. On the last day before he heads to the airport, he spent some time with me. So yes he truly is a friend.
I think the key to a friendships is that we are equal. He helps me if I need help, but I do my part to help him as well. For example , he may drive me to a restaurant, but I pay for the meal. He listened to me when I was having difficulty at my school, and I listen to him as he has problems. I am so glad that I have a friend in him. I will miss him and eagerly await his return in May.
http://www.informationnine.com/wp-content/uploads/2014/12/237.jpg
Monday, March 7, 2016
Friday, March 4, 2016
Cerebral Palsy Party Day Five Becoming Bullet Proof.
So I just finished watching an amazing documentary and film. Bulletproof is about a bar tender who is under threat by a gambler who wants to take over the bar to make an hotel. Sounds like an ordinary movie right. It is but it isn't as the cast is comprised of people with and without disabilities. All the main characters have a disability whether its Cerebral Palsy Williams Syndrome or Down Syndrome.
Since its Cerebral Palsy Awareness Month. I am going to talk about AJ. AJ is man that has CP. He is in a wheelchair and tends to be trapped at his home a lot with his mom and sisters. AJ acted in many plays when he was younger so when he heard about the program, which shoots in the LA area, he begs and begs for a chance to go to camp , I tend to do this a lot too. The Film Becoming Bulletproof follows his journey to make Bulletproof.
I really liked this movie. As a disabled advocate I have always been all for inclusion of people with disabilities both among disabled people, physical and intellectual, along with people without disabilities. This movie does both which is refreshing to see. One of the things that was hard to hear as a person with CP was when AJ says that he feels like he doesn't have a chance to give back. As a young person with CP I totally understand where he is coming from. I feel fortune that I am able to give back but it is hard because some people are unwilling to accept the help.
This is a great movie that comes highly recommend.
Here are some links
the Trailer
The movie Bulletproof
Bulletproof RECUT FINAL 720 MED from Zeno Mountain Farm on Vimeo.
A link to the organization Zeno Mountain Farm
Since its Cerebral Palsy Awareness Month. I am going to talk about AJ. AJ is man that has CP. He is in a wheelchair and tends to be trapped at his home a lot with his mom and sisters. AJ acted in many plays when he was younger so when he heard about the program, which shoots in the LA area, he begs and begs for a chance to go to camp , I tend to do this a lot too. The Film Becoming Bulletproof follows his journey to make Bulletproof.
I really liked this movie. As a disabled advocate I have always been all for inclusion of people with disabilities both among disabled people, physical and intellectual, along with people without disabilities. This movie does both which is refreshing to see. One of the things that was hard to hear as a person with CP was when AJ says that he feels like he doesn't have a chance to give back. As a young person with CP I totally understand where he is coming from. I feel fortune that I am able to give back but it is hard because some people are unwilling to accept the help.
This is a great movie that comes highly recommend.
Here are some links
the Trailer
The movie Bulletproof
Bulletproof RECUT FINAL 720 MED from Zeno Mountain Farm on Vimeo.
A link to the organization Zeno Mountain Farm
Thursday, March 3, 2016
Cerebral Palsy Party Day Three: Inventions that increase independence
Long time readers may remember that I used to have a baby sitter, T, T stayed with us from the time I was in Kindergarten til I graduated from high school.
One of the things that T did for us kids was laundry which meant after she left I had to do my own washing. This posed some challenges for me due to find motor and forgetfulness. When it came to soap I could never navigate the soap. I would load the clothes in the washing machine then have someone help me pour the soap into the right compartment.
When my family discovered pods, pictured below, they totally allowed me to be independent in my laundry. Pods are soap packs that you put into the main compartment with the clothes. It makes it easy to wash. These can be found at many stores and are not too expensive. These help me be independent.
Tide DID NOT SPONSOR THIS POST . THE VIEWS EXPRESSED HERE ARE MY OWN
T and AZ at AZ's High School Graduation 2010 |
One of the things that T did for us kids was laundry which meant after she left I had to do my own washing. This posed some challenges for me due to find motor and forgetfulness. When it came to soap I could never navigate the soap. I would load the clothes in the washing machine then have someone help me pour the soap into the right compartment.
When my family discovered pods, pictured below, they totally allowed me to be independent in my laundry. Pods are soap packs that you put into the main compartment with the clothes. It makes it easy to wash. These can be found at many stores and are not too expensive. These help me be independent.
You put the thing on the right in the wash. |
Tide DID NOT SPONSOR THIS POST . THE VIEWS EXPRESSED HERE ARE MY OWN
Wednesday, March 2, 2016
Palsy Party Day Two : Never a good word
Today is Spread the Word to End the word.
The word is Retarded. It is not a nice word.
In a US History class at my private college. Which was not inclusive. My professor used this word. My stomach dropped. He said something about the fact that Cotton gin was not invented retarded the growth of cotton.
Now you may be wondering why this upset me, it still does because my reaction to it was a reason why I was not permitted to attend the next year. First off the professor yelled at me saying it was a fine word to use in that case. Second the administration defended him, including the disability person.
I am sorry but when is that word ever okey. Why is it that a term that is considered hurtful to people, children and adults, ever be okey to use. If a student with an intellectual disability was in the class they may not understand that you were not talking about them. That is why it is never a good word to use.
Please go sign the pledge and eliminate this dreadful word from your vocabulary.
The word is Retarded. It is not a nice word.
In a US History class at my private college. Which was not inclusive. My professor used this word. My stomach dropped. He said something about the fact that Cotton gin was not invented retarded the growth of cotton.
Now you may be wondering why this upset me, it still does because my reaction to it was a reason why I was not permitted to attend the next year. First off the professor yelled at me saying it was a fine word to use in that case. Second the administration defended him, including the disability person.
I am sorry but when is that word ever okey. Why is it that a term that is considered hurtful to people, children and adults, ever be okey to use. If a student with an intellectual disability was in the class they may not understand that you were not talking about them. That is why it is never a good word to use.
Please go sign the pledge and eliminate this dreadful word from your vocabulary.
Tuesday, March 1, 2016
Palsy Party 2016
Hello guys it has been quite around here. I am sorry. I am in 13 units which is challenging. I am going to try to blog every weekday for CP awareness. Anything you want to hear about in particular let me know in Particular let me know in the comments BE SURE TO TUNE IN TOMORROW AND THE REST OF THIS MONTH.
Saturday, January 30, 2016
Hay guys
HI long time no blog. I tend to use my FACEBOOK page more for stuff so be sure to like that page.
How Am I doing.
Really well . I am a Senior in college and will be graduating in June along with Princess. This quarter I am in three classes and playing basketball in HMB.
I am in Music, History of Early Christianity, Judo, and anthropology . So far 2016 has been busy but good. I am enjoying History because we get to keep a website. Click Here to see the website
that I am keeping for class.
Also I am in the beginning stages of trying to publish a children's book about CP. More details will be released as I get them.
Thursday, December 31, 2015
Year in Review
Happy New Year Everyone. It is time once again to look back on my year.
January 2015 I tried a new school. I met with a new school consular who gave me some exciting news, read through to the end to see what it was. I did not start this school but I thought about going it would take a few months before I worked up the courage to go but I had the confidence to try and that has made the difference.
February 2015 Beat our cross town rivals in basketball
March 2015 Had a fun basketball tournament and went to the Warriors Special needs night where I scored a ton of baskets Went to Tahoe and celebrated National CP Day.
April 2015 Started School and loved every second of it . I went go Karting and had a fun Easter with friends.
May 2015 My Grandma came to visit.
June 2015 The warriors win the NBA Championships. My parents go to Puerto Rico. I begin Summer Classes at my new school. Met up with Friends at the Magical Bridge Playground. Princess goes to Tonga with her friends.
July 2015: Find out that I will be a Senior if I pass all my classes in the Fall. I also learn that I will graduate 2016. (more on this soon)
August 2015 : I played Unified golf with a former Teammate from High School . Completed a big project and finished all my summer classes
September 2015 : Tuned 24. Began Senior Year and Princess goes to Italy for studied abroad.
October 2015 : I have fun at the Big Wave Harvest Festival and Carving Pumpkin Event. I dress up as Yoshi for Halloween.
November 2015 Get some disheartening news about my future but people at my junior college and current school rally around me and convince me not to Drop out of School.
December 2015: Finished and Passed all of my classes and Princess returns home safely ! Have a Star Wars Marathon. I get a ton of clothes for Christmas. I can not wait for the New Year. 2016 could very well be the best year of my life.
I do plan to use my Fb page more often in the New Year so Go Like i
Resolutions
Caring the Torch Spring 2015 |
BE Positive
Gain Independence
Lose Ten Pounds and Eat Better
Stuff I wrote
CP Can Earn Money
The Best Word in a Textbook
Dear CP
The Invisible Student
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