So I just finished watching an amazing documentary and film. Bulletproof is about a bar tender who is under threat by a gambler who wants to take over the bar to make an hotel. Sounds like an ordinary movie right. It is but it isn't as the cast is comprised of people with and without disabilities. All the main characters have a disability whether its Cerebral Palsy Williams Syndrome or Down Syndrome.
Since its Cerebral Palsy Awareness Month. I am going to talk about AJ. AJ is man that has CP. He is in a wheelchair and tends to be trapped at his home a lot with his mom and sisters. AJ acted in many plays when he was younger so when he heard about the program, which shoots in the LA area, he begs and begs for a chance to go to camp , I tend to do this a lot too. The Film Becoming Bulletproof follows his journey to make Bulletproof.
I really liked this movie. As a disabled advocate I have always been all for inclusion of people with disabilities both among disabled people, physical and intellectual, along with people without disabilities. This movie does both which is refreshing to see. One of the things that was hard to hear as a person with CP was when AJ says that he feels like he doesn't have a chance to give back. As a young person with CP I totally understand where he is coming from. I feel fortune that I am able to give back but it is hard because some people are unwilling to accept the help.
This is a great movie that comes highly recommend.
Here are some links
the Trailer
The movie Bulletproof
Bulletproof RECUT FINAL 720 MED from Zeno Mountain Farm on Vimeo.
A link to the organization Zeno Mountain Farm
Friday, March 4, 2016
Thursday, March 3, 2016
Cerebral Palsy Party Day Three: Inventions that increase independence
Long time readers may remember that I used to have a baby sitter, T, T stayed with us from the time I was in Kindergarten til I graduated from high school.
One of the things that T did for us kids was laundry which meant after she left I had to do my own washing. This posed some challenges for me due to find motor and forgetfulness. When it came to soap I could never navigate the soap. I would load the clothes in the washing machine then have someone help me pour the soap into the right compartment.
When my family discovered pods, pictured below, they totally allowed me to be independent in my laundry. Pods are soap packs that you put into the main compartment with the clothes. It makes it easy to wash. These can be found at many stores and are not too expensive. These help me be independent.
Tide DID NOT SPONSOR THIS POST . THE VIEWS EXPRESSED HERE ARE MY OWN
T and AZ at AZ's High School Graduation 2010 |
One of the things that T did for us kids was laundry which meant after she left I had to do my own washing. This posed some challenges for me due to find motor and forgetfulness. When it came to soap I could never navigate the soap. I would load the clothes in the washing machine then have someone help me pour the soap into the right compartment.
When my family discovered pods, pictured below, they totally allowed me to be independent in my laundry. Pods are soap packs that you put into the main compartment with the clothes. It makes it easy to wash. These can be found at many stores and are not too expensive. These help me be independent.
You put the thing on the right in the wash. |
Tide DID NOT SPONSOR THIS POST . THE VIEWS EXPRESSED HERE ARE MY OWN
Wednesday, March 2, 2016
Palsy Party Day Two : Never a good word
Today is Spread the Word to End the word.
The word is Retarded. It is not a nice word.
In a US History class at my private college. Which was not inclusive. My professor used this word. My stomach dropped. He said something about the fact that Cotton gin was not invented retarded the growth of cotton.
Now you may be wondering why this upset me, it still does because my reaction to it was a reason why I was not permitted to attend the next year. First off the professor yelled at me saying it was a fine word to use in that case. Second the administration defended him, including the disability person.
I am sorry but when is that word ever okey. Why is it that a term that is considered hurtful to people, children and adults, ever be okey to use. If a student with an intellectual disability was in the class they may not understand that you were not talking about them. That is why it is never a good word to use.
Please go sign the pledge and eliminate this dreadful word from your vocabulary.
The word is Retarded. It is not a nice word.
In a US History class at my private college. Which was not inclusive. My professor used this word. My stomach dropped. He said something about the fact that Cotton gin was not invented retarded the growth of cotton.
Now you may be wondering why this upset me, it still does because my reaction to it was a reason why I was not permitted to attend the next year. First off the professor yelled at me saying it was a fine word to use in that case. Second the administration defended him, including the disability person.
I am sorry but when is that word ever okey. Why is it that a term that is considered hurtful to people, children and adults, ever be okey to use. If a student with an intellectual disability was in the class they may not understand that you were not talking about them. That is why it is never a good word to use.
Please go sign the pledge and eliminate this dreadful word from your vocabulary.
Tuesday, March 1, 2016
Palsy Party 2016
Hello guys it has been quite around here. I am sorry. I am in 13 units which is challenging. I am going to try to blog every weekday for CP awareness. Anything you want to hear about in particular let me know in Particular let me know in the comments BE SURE TO TUNE IN TOMORROW AND THE REST OF THIS MONTH.
Saturday, January 30, 2016
Hay guys
HI long time no blog. I tend to use my FACEBOOK page more for stuff so be sure to like that page.
How Am I doing.
Really well . I am a Senior in college and will be graduating in June along with Princess. This quarter I am in three classes and playing basketball in HMB.
I am in Music, History of Early Christianity, Judo, and anthropology . So far 2016 has been busy but good. I am enjoying History because we get to keep a website. Click Here to see the website
that I am keeping for class.
Also I am in the beginning stages of trying to publish a children's book about CP. More details will be released as I get them.
Thursday, December 31, 2015
Year in Review
Happy New Year Everyone. It is time once again to look back on my year.
January 2015 I tried a new school. I met with a new school consular who gave me some exciting news, read through to the end to see what it was. I did not start this school but I thought about going it would take a few months before I worked up the courage to go but I had the confidence to try and that has made the difference.
February 2015 Beat our cross town rivals in basketball
March 2015 Had a fun basketball tournament and went to the Warriors Special needs night where I scored a ton of baskets Went to Tahoe and celebrated National CP Day.
April 2015 Started School and loved every second of it . I went go Karting and had a fun Easter with friends.
May 2015 My Grandma came to visit.
June 2015 The warriors win the NBA Championships. My parents go to Puerto Rico. I begin Summer Classes at my new school. Met up with Friends at the Magical Bridge Playground. Princess goes to Tonga with her friends.
July 2015: Find out that I will be a Senior if I pass all my classes in the Fall. I also learn that I will graduate 2016. (more on this soon)
August 2015 : I played Unified golf with a former Teammate from High School . Completed a big project and finished all my summer classes
September 2015 : Tuned 24. Began Senior Year and Princess goes to Italy for studied abroad.
October 2015 : I have fun at the Big Wave Harvest Festival and Carving Pumpkin Event. I dress up as Yoshi for Halloween.
November 2015 Get some disheartening news about my future but people at my junior college and current school rally around me and convince me not to Drop out of School.
December 2015: Finished and Passed all of my classes and Princess returns home safely ! Have a Star Wars Marathon. I get a ton of clothes for Christmas. I can not wait for the New Year. 2016 could very well be the best year of my life.
I do plan to use my Fb page more often in the New Year so Go Like i
Resolutions
Caring the Torch Spring 2015 |
BE Positive
Gain Independence
Lose Ten Pounds and Eat Better
Stuff I wrote
CP Can Earn Money
The Best Word in a Textbook
Dear CP
The Invisible Student
Wednesday, December 23, 2015
The REAL Experts:An partial explanation of why Disabled people are mad at the Mighty
Hi guys its been awhile but something pressing has come up that I want to tell you about. For those in the disability blogging community you probably have heard of the Mighty , but what not may be as clear is the problem that some disabled people have (using that for a reason please bare with me).
My family and I have watched all six of the orginal Star Wars over the holidays. It is a great series and lends itself good way explaining part of what is going on.
If you wanted to know what being a Jedi is like who would you go to for an explaination?
a R2D2
B A wookie
C Luke Skywalker
D Hans Solo
If you were to ask me this at the begining of the month I would not know who to ask because I do not know the characters. If I told you that Luke is a Jedi The answer should be pretty clear that you were to ask Luke to explain the Jedi's role. This seems like common sense for any other able bodied question on the experts.
When the person has a disability they are thought to have no voice which gives rise to Parents being their child's voice. I am not saying that parents should not advocate for their kids. What I am saying is that they aren't the experts on disablities nor are the doctors and specialist or teacher experts, asuming that none of them had a disability, The real experts are the ones that live it 24 seven or people with disabilities. The only experts are the disabled.
Do Able bodied people play an important part in a person's life.? Yes They are the ones that use their skills abilities and privilege in helping their child navigate this society. But they do have privilage and sometime their use of privilage does more harm then good. For example when people poke fun of their disabled kid or dicuss personal issues online for anyone else to see then they violate others privacy in the name of advocacy. An example of this is anything relating to the bathroom should not be online for anyone to see. Itpersonal and not for the public. Another thing is Insperational Pron. I will write a post on it soon. This is why disabled people are mad.
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