Sunday, April 14, 2013

My Best friends and a fallen hero

 


FOR GAVIN 


 Growing up.  I  never had solid friendships   A  tall  black  feisty  stubbon hard  headed  disabled  girl was the last person kids wanted to befriend .  When  I was  15  I  started reading blogs, and that  summer  I    started  my own blog.   I have been blogging online ever since ,  I also have  found good friendships with  amazing  people  all connected to  one thing, disability. Over the years  I have met numerous  women , and men who have become  my friends. They have read my blog  and  commented and  I have  read   and commented on their blogs.


 One  such person  is  Kate Leong.    She  has had it hard.  Her  oldest son  has CP  Her youngest has had to overcome a speech  impairment and penut allergy.     Her oldest son, Gavin  David Lenog died tonight after having  heart  problems.   I have  watched her Facebook post since  Wednesday, the day he got sick,  hoping that  he would pull through.  Unfortunately he was pronounced brain dead.   He was  Five   and a half.   He is a  little boy who will never live to be six.


  My Aunt came to town this weekend  and   I  was  happy to see them.  On Friday Gavin took a turn for the  worse.  I read about it  as  i  had a meeting   with my  school DSPS program.  I felt like  I was in a fog. I  had hope that  Gavin  would pull through. I  told  my consular about it.  My speech therapist about it my parents  my aunt.  I have    had  the pic above to honor him.

  I feel pain  for a kid I  never "met"  because of the blog spere. I  may not have met  him in person because  he lived  across  the country   I   knew  he loved music . I was happy  when  he started to walk around  Christmass last year . And I was thrilled when  just last week  he used a switch to say I want water  at school.  Then  this   happend. I am soo  mad at God.  Kate has  already  had a still  born.  She had been trying for  more  kids   without fail and  now  her super hero is  gone.   I do not understand why god makes  life so hard for people. I am  soo mad. Please  keep   this  family in your prayers,

 For any of you longtime  readers  please know that you have been my greatest friends.   A  special  shout out  to  Ellen ,  Kate ,  Jan , Nicole,  Michelle,  Debby, Shannon , Tim, Rick and  those who  I forget  thank-you  for reading  and  inviting me into your homes  and   share  your kids with me.  You may be older then  me; however you are my best  friends .    Kate  you  are amazing  thanks for sharing Gavin's  story  with me and countless others.  I   hope you can find  peace on this difficult day.
 Kate  this  picture is  for you.

4 comments:

Anonymous said...

AZ
What about your best friend with apert syndrome

Debbie @ Three Weddings said...

AZ you are a special young woman who has had to deal with so much moreI your young life than many people have to deal with in a lifetime. I have enjoyed getting to know you and though my life has taken a turn that does not allow me much time to blog or read and comment on blogs, I still think if you often and fondly.

Michelle said...

I'm so sorry to hear of little Gavin's passing and will keep his family in my prayers.

It's been a journey watching your accomplishments as you graduated high school and started college. Thanks for caring about our kids...and thanks for sharing your life and adventures with us!

tim villegas said...

So sorry about Gavin. Thanks for such a thoughtful post AZ.