Showing posts with label CP conection. Show all posts
Showing posts with label CP conection. Show all posts

Tuesday, October 2, 2012

Jesse

 

 I wish  I could actually have the chance to meet Jesse .  He  has two  vary famous parents and lived  in  boston. That is right folcks Jesse is no longer on this earth.  He died  January  of  2005   in his sleep.  The book is  his life story told from the  perspective of his Mom (Marianne Cooper)


 Jesse  like me  had Cerebral Palsy and it was  peaty severe.  He had to use a wheelchair  , was non-verbel and had  terrible seizes   which  were the thing that ultimately killed  him.    For everything that Jesse  had going against him  he had lots going for him. He had  supportive  parents a normal intelligence  level and a wicked  sense of humor.  He  wrote poetry and   learned  Greek as a high schooner  and  was inclusive education for most of his schooling.  Through the book  readers will get a chance to know Jesse and  how  learn how  amazing  people with Cerebral Palsy are.  If you have not had a chance to read  this book   make sure  you get it. I  enjoyed  it so much and wish that  I could have meet him on this  earth.    It  was  really great  reading  Knowing  Jesse  and   I  hope you will  read it  soon.


  Jesse  was  in  the world CP  montage   that I made last month  for  world  CP day    (September 4)
Stumbo Family Story
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Thursday, December 1, 2011

Finally



So   I was  working with boy on a film project.  It is all about  zombies.  In the film  there is a voice over.    I thought  because of the voice over was   the host   who  asked an  question then  answered it  I   thought it be better to have a different   voice   and scene no one was there I  volunteered.   I used Audacity to  record  it but he  thought we  needed  a ' normal  voice aka  not  A  Cerebral Palsy  voice,




  In  class  that day   I  told my  suggestion and the teacher  agreed  but said maybe I could do the lines on  camera. Now let me tell you about this teacher,  They do voice over for a living. They  can do cool things  with  there voice and  have done numerous  voice  over,  Now  for me    with me speaking  gibberish and  all  I get jealous really  jealous.  I  wish  I  could speak as well as they do. 

     Our  film class  is not  specific   special need class, yet for some strange reason we have a  bunch of students with  disabilities. Some of my fellow classmates  are  on the Autism   Spectrum disorder  some have  learning differences  and  one  has Down Syndrome, she is  a funny one  in class and   both  the student and this professor get along  really well.

  Then  there's  me     


    Me  with some  video class  last semester February  2011

  back to the  class.  The  teacher was  talking about  next week.  Now  this  is a media class  so we do not have class every week.   So  I asked  her  something along the lines of   do we  have  a mandatory class next week? 

She did not know what I was saying   none of the other students  knew what I was  saying.    Its  like  running into  a  invisible wall and not  being able to  figure out  whats  blocking it.   I  deiced to leave the class room  cool off and try again.   I talk to the teacher does not   get  it  right away. When she finally  gets it  I say finally  and  she  heard me  correctly and walked off. She thought I was being disrespectful. I was  saying  Finally for me  not  for her



     I  have  been  in school  since August and  the teacher still has a  hard time understanding me.    Yes  I have  CP    NO  it is not her  fault but there  comes a time  when I  know  someone a while  I  kinda hope   I can be  understood.  I  i am looking ahead  to next semester where  I have a professor  who  understands me a little better.  

     If  my  professor  actually end up reading this  ( or anyone dealing with  CP) 

 Understand that   I  want to be able to  speak  clearly
 Not   your  fault  nor  is it mine 
Once  I  get the message  across  I  feel  better  and   may say finally   it is not meant to  be sarcastic.  In  fact if  I   offer to help me  say it  clearly its  in the  moment  Speech  Theaphy.

 This is the first  post  apart of  CP  connection go here to find  out more about  CP and tune   in for the next blog post 
Stumbo Family Story