Its Supper C and W

     
This is the first story that I  have for CP awareness  month it. It is so cool because I  just met this blogger  through   email with their story and blog post.  C and W are Ail's sons  she blogs at Super Mario  Twins. I love   supper Mario  and all nintendo games  so  needless to say I   love the blog title.
 Here  is Ali's story.

 These guys are soo cute  used with  permission  

My name is Ali and I'm the mom to twin boys, C & W. They were born in June of 2011 at 33 weeks. They spent a couple of weeks in the NICU just for growing and feeding and never had any major issues. When they were about 10 months old, we realized that C still had not met some basic milestones like sitting and rolling. After an evaluation by the infants and toddlers program and then a neurologist we found out that C has cerebral palsy. He has spastic diplegia and struggles with his gross motor skills. It's been almost a year since we've received the diagnosis and C receives lots of physical and occupational therapy. He has been making wonderful progress and can now roll, sit, crawl and even pull to stand! He's able to walk around with our help or with the assistance of a walker. He has always been our sweet and smiley little boy who is the absolute best cuddler in the whole world. A snuggle from C will truly make your day! I really admire his spirit and laid back attitude. He's really developed a sense of independence now that he can crawl all around. When we first found out about his CP, I felt very sorry for myself and sorry for C because I knew he'd have to work so hard to do simple things that come naturally to others, but now I'm just so proud of the little boy that he's becoming and all that he's been able to accomplish already. He inspires me to push myself and do hard things. We love both he and his brother so much and there's not a thing I would change about our family since being a special needs parent has made me such a better person. Thanks for giving me the opportunity to share my story with you, AZ! 

Thanks Ali  for sharking your story with me  look forward to reading your blog

 have a story about someone with CP send it to me  AZChapman1991@gmail.com and  it will be posted this month 

"Its not El Captain"

Steve on stage  he received  the  Kaiser ThriveAward  

  So last  Friday I went to see   Wampler's Ascent.  Its about Steve Wampler's climb   of El Captain in Yosemite  CA.

 Nice to see you again Mr. Wampler. 

 Wampler is not your average mountain climber  he has  CP and uses a wheelchair to get around. In order to climb the mountain he  was sitting in a chair and had to do pull ups. He was  pulling to raise money for   a summer camp that he help restart  after it got closed down.  He had attend that camp  as a kid and it was  the turning point in his life where  he realized  that he  can do anything.  He went on to UC Berkley.  It was very exciting to watch.  My mom and I  went to see the movie  My  mom  usually  fall asleep during movies and i thought  that  she would  have  fallen asleep during this one as well, she did not sleep well  Thursday night but she did not; however, she  did not That how exciting it was.

My Mom said, " Aw what a beautiful family" as she took this photo    

   But that is not the best part  The best part was that I got to meet Wampler's children.  That's right Wampler is father to two beautiful  kids and along with his wife Elizabeth they have a beautiful family.

 Meeting Wampler's son , Joe  He was ten when his dad climbed El Captain 

Wampler gives me hope for a future. I want to be a mother  and wife to a caring husband. I want to  have my own family and  Wampler gives me hope it can happend. I can become a mother and have a  typical American  Family.

AZ and Steve Wampler

 After  the movie  we were going  home but then  I  spotted  Johnny Rockets   and I  had to have a Strawberry milkshake  before  we went home.  As we were driving home, my mom said that I have no excuse  because  anything that  I do that is challenging is  not  EL Captain,

   Great Milkshake to end a great night  

 For those of you who are reading and  live in the Bay  Area  Wampler will be screening his flim Thursday night.   I  highly recommend going. For more information click here 

March Palsy Party

  Hay guys so today is March First which means it is  CP Awareness month  2013. I have  so much to share with you guys  over the next four weeks.    For me I am  kicking off CP month by  going to visit my friend Steve Wampler he  is showing his movie  near by and  tonight he will be attending should be a fun night.  Tune  in Monday for pics from tonight.

 Here is the  trailer







 PS  if u want to be in on the action is is not to late to submit  a story  for the blog  see below  for more details.



got image from http://www.pagecovers.com/covers/causes/cerebral_palsy_awareness.jpg

Help Wanted

   Hay guys so in a few weeks it will be   March  and you know what that means?  Its CP Awareness Month   month.  Last year I was able to blog about CP  all day in march : however, this  year  I have a full load of classes and tons of reading  so  I  need your help.




     Do you know someone with Cerebral Palsy?    Have they change   you somehow?   Whats  one thing you wish  that everyone knew about them?     How  are they  awesome?   You  can answer any of these  questions and more.    With their permission  share  some photos with us  and   then  stick around during March to  see   the post  come up on  the blog .

 There is no age limit  and anyone can write   something. It can also be fellow self advocates 

  Ok  so   I   am not  going to lie it wou  ld be cool if people who know me  in real  life were willing to write about  their experiences with me.   So  the readers  can  get an  glimpse of  what I am  like outside   of the internet.



   So   once you are done writing  please  send  it  to  azchapman1991@gmail.com.   then  stay  tune  in march for all the stories.

The wrap up

  Hay guys  sorry to keep you hanging I had a meeting with the head of the   food department and  it turns out it was a misunderstanding.

 Turns out that they are sweet people   and see  ALL students like that  so I am  back to eating and attending  college.


 In other news    I  got new  glasses  today  so  I am seeing  much  clearer.

Turning pain into power

 The  Saga  continues  read part one  before    this  part  


 So  today  I left my   History of Western Civ  class   as we were taking role.    I was not  feeling like  I should stay in college.    I mean  if  I can not  order a cheeseburger  how  I am I  going to  get a job  teaching .  I went to visit some of my  professors that  I have had   over the  years . (  Math   BIo  and  tried to  talk to my American Lit teacher  from  last semester but she was not there .      I also went to  DSPS and talked to them,   I   talked to  Ms, Super, not  real  name,   who  has  helped  me  for the past three years ,  and    Consular   J   who   has   also  helped me all three  year  I toldl  them  I wanted to drop out of school  because of the incident.

       My thinking was if I can not  get a good  job   because of  my  disabilities. Why  stay  in  college and  try to be intellecual   when  everyone thinks  i am  dumb  , or  worse , but  that   is  later   I  should be trying to  find a job now that  will  last me  the rest of my life  like    bagging  or something  else.

 Well  they  said  I had  to promise them to   wait til  monday   before dropping classes.

 Well  I  went to my  bio teacher and he   found this video  on  youtube so  that was  making me feel  better

             


 i  resolved to  confront   A  about the   incident.

So  A  says  ,"  I   am sorry  if you felt that  way   I thought it was cute that you wanted to make sure you  had  your cheese."

 
AZ:Cute  I am  21 years  old  I am not  cute.

  AZ thinking back on it :  I  am not  cute because  I was trying to communicate . I looked  to  make sure  because  I have  a speech  problem  and wanted to make sure it was done  right   oh  but  it gets  worse

  A :   Well   we don't see you  like that we see you  as a little princess  a little  girl.

  So  I went to  talk to the president and instead found an assistant  who gave me    the contact information for   the head  of the food court  and   we are  having a meeting    tomorrow  in  DSPS with  Ms, Super  I hope all  goes well.

Crappy Cheeseburgers

                   Let me just say that I hate  my voice.   Yeah  I am  in  ST  but  it still hard.  I am  21 years old ( Age wise)  but   I can not say my own  name its a  struggle  and  no  I       can not  do phonics.       Despite all  of this  I  understand everything,  ok  so not  chemistry but  not everyone  understands it,    what that means  is that I do not have an intellectual  disability.  Its like  an  invisible  brick  wall ,  yeah  I  know    walls  can not be invisible  but its a metaphor  with a  fantasy twist .  I  know what I  want  but   when  I try to  get it  I  hit   my head on a brick  wall.   Totally  not fun:( .

      This makes  ordering  food   really  hard  sometimes  people can  understand my     speech and   either  make the food or  help  me   tell the person . Well   the past few days at my college  dinning hall   the  chiefs have not been understanding me that well.      Earlier today I had speech   and we came up  with writing  the word down   on the notes feature of my I-Phone   .  Well , as  I went back to the dinning room   after speech  for a evening class  ,  I  wrote  down  Cheese burger  and  garlic fries  as a back up  plain.     There was a  severe  there  lets  call   them  A.  It was fairly  busy   so they called another person  to help    B.  Well    I  have worked with  A    before but   she was having a  hard time understanding me   I'd  say  she   understands about 70% of what  I say; however,  I  had never  met    B  before.    B ends up  helping me.    Between the two of them they  understand that I want  a Cheeseburger and  B    starts one on the  grill,  I tried  to tell them I wanted   American Cheese  but  neither one understands me. So  I write it on my phone  and show B  he calls    A  over and  A  helps  him I look over   and sure enough there is some American cheese on the grill.  I look down and hear a smirk.    I    think that someone   made fun of my speech the worst part is  A  is the manager. 


 Told my  parents and   they did not  seem to see why I was so  mad.     I am  mad because  I think they made fun of my speech.  I  am   mad because   I want to be able to  say what I want   and  have people understand the first time.  I am  mad  because    sometimes I  am  so    Frigen tired  of   repeating and  trying   to be understood.  I am  mad because  I hate  when  people   think  that I am too dumb to  notice if they  laugh.  Good  think  book  girl and Soccer  man   understand.