Crappy Cheeseburgers

                   Let me just say that I hate  my voice.   Yeah  I am  in  ST  but  it still hard.  I am  21 years old ( Age wise)  but   I can not say my own  name its a  struggle  and  no  I       can not  do phonics.       Despite all  of this  I  understand everything,  ok  so not  chemistry but  not everyone  understands it,    what that means  is that I do not have an intellectual  disability.  Its like  an  invisible  brick  wall ,  yeah  I  know    walls  can not be invisible  but its a metaphor  with a  fantasy twist .  I  know what I  want  but   when  I try to  get it  I  hit   my head on a brick  wall.   Totally  not fun:( .

      This makes  ordering  food   really  hard  sometimes  people can  understand my     speech and   either  make the food or  help  me   tell the person . Well   the past few days at my college  dinning hall   the  chiefs have not been understanding me that well.      Earlier today I had speech   and we came up  with writing  the word down   on the notes feature of my I-Phone   .  Well , as  I went back to the dinning room   after speech  for a evening class  ,  I  wrote  down  Cheese burger  and  garlic fries  as a back up  plain.     There was a  severe  there  lets  call   them  A.  It was fairly  busy   so they called another person  to help    B.  Well    I  have worked with  A    before but   she was having a  hard time understanding me   I'd  say  she   understands about 70% of what  I say; however,  I  had never  met    B  before.    B ends up  helping me.    Between the two of them they  understand that I want  a Cheeseburger and  B    starts one on the  grill,  I tried  to tell them I wanted   American Cheese  but  neither one understands me. So  I write it on my phone  and show B  he calls    A  over and  A  helps  him I look over   and sure enough there is some American cheese on the grill.  I look down and hear a smirk.    I    think that someone   made fun of my speech the worst part is  A  is the manager. 


 Told my  parents and   they did not  seem to see why I was so  mad.     I am  mad because  I think they made fun of my speech.  I  am   mad because   I want to be able to  say what I want   and  have people understand the first time.  I am  mad  because    sometimes I  am  so    Frigen tired  of   repeating and  trying   to be understood.  I am  mad because  I hate  when  people   think  that I am too dumb to  notice if they  laugh.  Good  think  book  girl and Soccer  man   understand. 

2011 Year in Review

 

   It seems  like  yesterday I  did a  2010  year   in  review  now it is  time to  do  it for  2011  and  before you  know it  will  be time  for a 2012  year in  review.  I  honestly love  doing these it is  a chance to  reflect on all the  great  things  that  happend    during the  year  so  without  further  delay  here  it is.


 January 2011:   I  had a   my  first  long  winter break  and  started taking college level  classes   at  my local  community college .  Book gal   started  her last semester  of high school.

 C, me and R  2/2011

February 2011 :    I  made  a  buzzer  short  my  cousin  came to vist
 March  2011:    The  college  thing  just  clicked  for me.   It  took long enough


 April 2011:       I   actually  aced  a  college   essay.   I     competed  in the Menlo  Games .Book Gal gets  accepted  to UMass Boston.


May  2011:  Book Gal  turns   18. I  go to a job   intake  but  it did not work  out  yet I  had  fun  in the process. .

My  Dad and I  fourth of  July 2011

June 2011:  Book Gal  graduates  high school  we  celebrate with  friends and  family,.  My grandma comes   up and  My  parents  grandma and  me    take a  day  trip to   Monterey.  I    became a  Hope Solo  fan   watching the Women's world Cup.


July 2011; Celebrated    our country  independence   day  in  sacramento  with my   mom's   family Book  gal  leaves  for  college .  My  big  brother turned  27  and my  dad  had  his  b day as well

   "Sexy" minni mouse Halloween  2011  

 August 2011:   I  saw  my  old aid in the park,  Princess turns   17 and starts her senior year .   I    begin my  second year  of  college.
  September 2011:  I turn   two  decades   old   how   did that  happend


 October 2011 :   I  met  Steve  Wampler and   rocked out at  the 25 annual  bridge school   concert.     I also attended  my  first buddy walk


  November2011:      I  got  to be a goalie in  the  special olympics  tournament   and watch   power soccer at the Ability  expo  in  san  jose .  Princess   became  the  first     African  american   to win  homecoming    at  her high school


December   2011 :  My parents  celebrate 21 years  of  marriage . My  dog has been  in our family for seven  years  Christmass  eve   I enjoy  Mario  games on my  three Ds.  My mom and I had   a Comical  Costco  trip.


 

  Me and  Santa  at the Christmass  tree farm   December 2011 

Disability Awareness  post  that  you  do not want to miss

   Having  CP  is not the end  of the world
    Value of  my  Life 
    My  name is  AZ not  az








 Happy New Year  Everyone
   



 Got  image  from :
ehttp://www.2dolphins.com/images/blogpix/snoopy_happy_new_year.png

A Comical Casco trip

   It all started   earlier today  my mom and I  were   in  Costco  we are having a New Years Day party at our house sunday   so   we need  some  Sparkling apple cider.    My  mom    needed  this  drink and  had been  looking all  over  for  it   no   luck.  i ask someone  he  tells me it is  in the  asile  we come to this  

 it is  up  high   we    get  it  down  After  we  got  it done someone  told us it was   here

  behind    us  on the  table


      Other things that made me laugh   on the Cosco  trip
 The jacket   we  wanted to buy  did not have a tag in it

and   my mom left  her  card    at the cash regster
Costco
  will never be the  same

  Any  Funny things happend to you  guys  today


   Stick  around   for   year in  review  coming  soon

Summer Recap

Hay guys so just a quick note to tell you that tomarrow i go back to collage. I will be around however I am going to try to concentrate on my studies (you know not leaving homework til midnight) so my blog and FB may be negeted we will just have to see.

The summer camp job did not work out this summer but as you will see below I still had a fantastic summer.



I will try and do my best to post around here and read blogs. If I get comments that will motivate me to post hint hint hint :)

Princess started senior year but I did not get anything out of her as far as teachers go. I am not giving up I hope to document her senior year on this blog as the year goes on

Make a video - it's fun, easy and free!
www.onetruemedia.com

The Return of Sunday Grains of Gradtitude

   So Sunday  grains of  Gratitude  is  back.  I have not done this for  a while,but I  read them   recently  and I  really liked  reading about the little things that happened   week to week  I  like   re reading them.

1.   I survived  Winter break .  It was  two weeks between  my sister return to mine . These  two weeks  have  been  home alone  for most of the day  without a routine  so  it  gets  boring. I   did well but  am looking  forward to going back to school  on Tuesday.
2.   I helped take  down the Christmas   stuff and did a great  job  by myself now all the boxes  are down.
3.  I went  to a soccer game at my high school.  The team tied  when they should have  won  and  thus  Mr C  did not want  to  talk to me that much. That was discouraging but then  I am disabled   teen and  he had  a  newborn baby  and  his wife   but    at least I talked to Mr,MCG ( AP us history teacher)   Mr C wanted to  talk to one of  the older soccer player which  made   me feel invisible  but    i am disabled so it is ok.
4.  I  got to see LM.  I went to his house  after the soccer game ( much too my dad not so best wishes) and on  Sat  I  got a ride  with him and his friend who also has DS.  We had a fun time even though they were messing  with me   (  our high schools are ,or in my case former high schools,) rivals.
5.  I went to 2 basketball practice. On sat it  was rrc special Olympics and  today was the hmb  pre practice. I  think we will have a great season  .  At today's  pre practice I helped  one  a kid who is  my age with CP  sooo cool. This Saturday is  the first practice so  I will  take pics then. If anyone  who is reading this  and  lives in the area   hmb  is far but it is worth it.    
6. I am doing  grains of Gratitude again
7.  I went out to lunch with my mom Saturday afternoon.
8.  For MLK  he  made  my life so much better .  As an American American  disabled  female  his work  impacts me soo much,  I watch  the Imitation of life  and it was  interesting  to  see  the hate between a child  and her mother due  to  skin tone.  I hated the girl by the  way   I was   that into the movie

 Happy Sunday

Wrapping presnts with CP and NVLD ( aka without good fine motor control)

As u know if u have been reading I bought presents for the first time this year for all my siblings and parents. so that means wrapping. Wrapping presents with cp means that the perfect wrap job will not be archived but it is the gift the counts.

Photo and video editing at www.OneTrueMedia.com

Year in Review

    2010 was defiantly a eventful year  for me.  It was not a great year , it was  hellish for meany months, but   I got though it and  hopefully 2011 will be better . now  here  comes the changeling part    finding something positive to say about every month.    

 Me  (in white) handing the ball off to E( in purple

   January 2010:    I met  E, my best friend,  at basketball and   got second in the MLK  writing  contest

 February : I  played knockout in my high school rally and was  ball girl  for my high school.

 Me signing the pledge  March 3 2010

  March  : My cousin has her baby  girl. My school did Spread the word to end  the word  via the  club . I got to speak in Mr.T's classes and he signed the pledge.   I signed up for my high school track team and    joined the special Olympics track team  for the first time.

 April :  I  got honorable mention for  a poem and got dressed up and went to prom

 May :  Book gal turned 17.  Had DDAC's first ever end of the year party.   I graduated high school at 18  with  an award  for community service    I also enjoyed  the senior Activity day  even though it was wet.  

 Dad and me  on Mount Tam

 June   Climbed to the  top of mount tam.I began my collage career at  CDS  2010. I  enjoyed  it and made a lot of friends.

 My fourth of  July  face paint  I got from a carnival

July Celebrated  fourth  of july  by getting   my face painted

 August: Princess turned  16 and got her liscence. T  left our family . I  started  comminty collage

September  I  turned 19 .   my team won gold in softball.  I  did the Joe Jonas fun run and  helped raise money for Special Olympics.  I celebrated the first ever EKS Day

 Lauren Potter and me October 2010

October :  I pet Lauren potter from Glee  I craved a pumpkin for Halloween  but did not  trick or treat. I also moved  the wii  into T's old room.

November  watch book gal win CCS   and make it to state. Celebrate  Thanksgiving  and helped  cook for the first time.

 December  Mom became vice chancellor of diversity at  UCSF.   Mom and  Dad  had their 20th wedding anniversary. I went to the Alumni soccer game.  We had a great Christmas (see below), I  bought presents for the first time  this  year   Zoe  got  a rabit and  she celebrated    her sixth b day

  

 I hope everyone  has  a  happy new year and  a great 2011

 

 I love this photo of my dog    and the thing is  that I  took this fall 2010

 ps  here are  some disability Awareness post that I like that I wrote in  2010

 Life as an adult

   passed ap  but aged out of speech

 It should not be a  fight

 Life as a collage student 

Christmas Recap

the tree  before presents on X mas morning

  Hi  blog readers   I am so behind in blogging   so  I will  try to catch up starting with Chrismas recap.

 New this  year I  bought presents for everyone so I had   a try at wrapping  presents.  They did not turn out so well  wrapping  wise  but  that is a whole  other post i will  try to put up in the next three days

  On Christmas eve  my  parents and i  went to Christmas eve  mass  and    looked at Christmas lights. When we got  home  my mom told me that  we did not have Christmas pj's   It was  disappointing  but then she surprised me  (thanks  mom)\

    I got some video games closes   movies   on Christmas morning  I then proceed to play   one of my video games, Donkey Kong Country Returns, until we went to our friends house for dinner. 

Christmass Card 2010  i

 

  Like I said  I have lots to blog about so stay with me  I hope everyone had a happy holiday and a great new year.

For She's a Jolly fellow

  Mom to AZ and AZ  Summer 2005 on their way to the Grand Canyon

 For she's a jolly good fellow that no body can deny.    Nope it is not Mother's day  yet  My mom got a new job at  work. to learn more   go here

The I Phone family

 Our Family is now an official I phone  family.    Princess got the first  i phone  for Christmas a while back then  Dad ,  and Mom joined  in.   Book gal and laid back athlete  got theirs this past summer.  I had my first full day with it  today. It is sooo coool

Enjoying the sun on a Sunday part one

On Sunday my family got up early and drove to Marin to go to a mountain play on mount tam. We were going to see Guys and Dolls which ed started one of the people who works with my mom. The weather was beautiful( even though as we were driving though San Fransisco I thought it would be cold due to the clouds. Even in the heat it was a nice outing. Now here are some pictures

    Save the  souls was    repeated  throught the day.  I think  this   was good since it was after all a Sunday

 

   Is it me or  dose the  Monkey look  like   Curious  Geroge 

book  gal and me   waiting   for the show to start  my mom  made us sandwhichs  and we  had a picnic before the show  began.

 Watching the show  you  can  see  princess  in the   top  left Conner she will be a junior  next year   man    it seemed  like  yesterday  it was the  summer before my  Junior   year of  high school.

The lady in   pink was a sign langue  interpeter. I  sat down  by her  a lttel  bit during the seconed  half.

                       

I had a  fun  time   and   I wish we would have  been to these    starting  when I was younger then    this  year  being my  first time at 18.  ( they  have been  doing these  for almost 100  years  now0).  Be sure to stop  by   tomorrow   for   part  two.

Randome in the moment quotes from AZ

Mom :Ouch AZ you hurt =me what do you say

AZ; I love you ( I know she was looking for sorry)

Scenario two
AZ; I am not ready

mom I am ready I am ready

AZ: I am ready I am ready to tune you out.

will post more soon

Happy Mothers day

Photo and video editing at www.OneTrueMedia.com

we had a fun day today we went to a restaurant worked on gardening and saw Iron Man 2


. One more thing from Ellen and max


1. Because we never thought that “doing it all” would mean doing this much. But we do it all, and then some.
2. Because we’ve discovered patience we never knew we had.
3. Because we are willing to do something 10 times, 100 times, 1,000 times if that’s what it takes for our kids to learn something new.
4. Because we have heard doctors tell us the worst, and we've refused to believe them. TAKE THAT, nay-saying doctors of the world.
5. Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6. Because we gracefully handle the stares, the comments, the rude remarks. Well, mostly gracefully.
7. Because we manage to get ourselves together and get out the door looking pretty damn good. Heck, we even make sweatpants look good.
8. Because we are strong. Man, are we strong. Who knew we could be this strong?
9. Because we aren’t just moms, wives, cooks, cleaners, chauffeurs, women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches, and cheerleaders. Whew.
10. Because we work overtime every single day.
11. Because we also worry overtime, but we work it through. Or we eat chocolate or Pirate's Booty or gourmet cheese, which aren't reimbursable by insurance as mental-health necessities but should be.
12. Because we are more selfless than other moms. Our kids need us more.
13. Because we give our kids with special needs endless love, and then we still have so much love left for our other kids, our husbands, our family. And our hairstylist, of course.
14. Because we inspire one another in this crazy blogosphere every single day.
15. Because we understand our kids better than anyone else—even if they can’t talk, even if they can’t gesture, even if they can't look us in the eye. We know. We just know.
16. Because we never stop pushing for our kids.
17. Because we never stop hoping for them, either.
18. Because just when it seems like things are going OK, they're suddenly not OK, but we deal. Somehow, we always deal, even when it seems like our heads or hearts might explode.
19. Because when we look at our kids we just see great kids. Not "kids with cerebral palsy/autism/Down syndrome/developmental delays/whatever label."
20. Because, well, you tell me.

az answer. Because You are always involved in IEP and advocating for us kids

Wow it has been a while family update

Mom: diet and traveling a lot what is new.
Dad : diet and working
Laid back athlete : has the opportunity to play on a independent baseball league
AZ : OCD is bad had a bad week so I am on the mend today, My club is doing spread the word to end the word.
Book gal : Now playing softball for her school ( her and P are on the same club v ball
Princess : will fallow in my footsteps doing AP US history and got her permit.



will get back to blogging soon

Happy Valentines Day memories from long ago

Well on friday I did not get any candy lays like last year but there was a rally and to my delight I got to play knockout and lost. Knock out is a basketball game in case u do not know. Anyway Happy Vanities Day well a day early. I might post pics of what I do tomorrow on vanities day with my mom (as my two sister are playing V ball in las vegas with their travel team anyway happy V day everyone.

I remember when I was in elementary school I got to celebrate the holidays with my class ( I was complete mainstreamed in grade school) we would make little mailboxes and bags and everyone had the option to make valentines day cards. If you made some back in elementary school you had to give them to everyone which I think was preaty standard back then.

In sixth grade all the kids from my grade( I was in middle school) got to go to a party in the gym with the whole pod that was very fun.

Battle of the bay

Today I went to the cal Stanford women's basketball game. The game was called battle of the bay because they are both located in the SF bay area. My family met up with a family friend at the Maples pavillonwho have four girls who are younger then princess and one who is my brother's age. (I think the girl has a crush on laid back athlete) I was rooting for Stanford because my dad went there for med school and my siblings and I have been to a lot of camps there. Standford beat Cal 79-58. I thought I saw ms A but I never got close enough to tell.

After the game we went to Star bucks with the family we went to the game with I had a fun day even if the youngest beat me in war.

2009

first off I want to say Happy new year things around here have been hard ocd/anixety wise but enough with that today is the last day of 2009 which means one last chance for me to look back on this year. lets get started

January 2009:Obama became president I went to my local special olympics youth summit

February 2009: I made home made cookies for a Spanish project and found out I had a secret admire at school

March 2009: learned about CP awareness day

April 2009: won honorable mention for Dare to dream big poem pics and video coming soon

May 2009 : Took the US AP history test , Book gal turned 16, Princess finished her first year of high school while I finished my Junior year

June 2009 : I went to golf camp and a mid evil party, Mom and my two sisters went to Washington DC

July 2009: Saw fireworks from the top of dad's car , was a CIT at the JCC, went to Bike Camp and learned how to ride a two wheeler and made a ton of friends, Mom and my sisters went to Las Vegas.

August 2009: went to the monetary bay aquarium, Princess turned 16 Went with C and R to the SF Zoo right before starting senior year

September 2009 I turned 17 18

Octorber 2009:helped out at the special olympics young athlete day and met J Mac and coach Jim Johnson ( this has to be my favorite memory of 2009)

November 2009: My grandma came to visit from texas and we went to the California Academy of Science

December 2009: Celebrated christmas and played way to much wii

now for the annual New years resolutions as well


first reviewing from 2009 list




1More independent. Make my own lunch for school clean my room stay organize and do laundry once a week Happy Mom somewhat compleated

2 Stop talking to myself / yeah it's a bad habit that i need to break I do not want to be doing this in collage ( This is probably the hardest one on the list ) need to work on this

3Keep room somewhat organized not much has changed

4 Mange my homework time better ( You might not see post around here that much )

5 Learn how to drive got my permit and am taking driving lessons if my ocd settles out. last lesson was in November



Ok so 2.5./5 F aww man



new years resolutions for 2010
1 More independent ( this includes OCD progress)
2 respect others better
4 finnish editing my books and keep writing more Nick Adventure stories
5 post at least 15 times per month

Merry Christmas

Me in front of Mr T ( my favorite english teacher) door December 18 2009

sorry for not posting Zoe's video and a year in review I will do these next week hopefully

Best doctor's visit ever

(About to have a shot at the UCSF children's clinic fall 2007)

Yesterday I had a Dr's visit. It was at the teen clinic at UCSF. the place where my mom works. it was my first time in the clinic and guess what I actually want to go back why. The attendant was really nice and we talked about school and stuff . My mom said we were in there way too long. Mom was in there for the entire afternoon. Then the doctor came in and we all talked and guess what I might speak to the medical students about being a teenager with disabilities and in a few weeks I will get a cool new blog about a young adult with a disability (cp to be exact) who goes to UC Berkley. I can not wait especially since I am about to make that big transition myself. wow