The way the reporter talked about CP painted a very sad picture of my disability. The story starts out with phrases such as "hopeless disease." Sorry but I have CP and no it is not hopeless nor a disease, its a disability.I invite anyone who thinks that Cp is hopeless to come spend some time at my place. Laughter is a common thing in my house and I have played sports gone to school attend college. I am really funny . yes I have a disability but it is not the end the world.
This brings up the whole point of the article. The article talks about wanting to "cure" CP and other disabilities using illegal stem sells. I find it wrong because I have CP and I do not want to be cure of CP. It is apart of who I am . It is not hopeless nor is it the end of the world. My advice to parents of kids with CP is step back take a deep breath and do not go to other countries to get stem cells because having CP is not that bad. As of January 2012 stem cells can not help Cp yet CP is not hopeless. I am living proof that therapy and lots of love will do wonders. For whatever reason I have disabilities and you know what I am normal. This is my normal.
4 comments:
Nice. Rock on.
Love it! I certainly agree with you 100%. CP is not hopeless or helpless. I always love to connect with people who HAVE CP, especially since my daughter is only 3. :)
great point. Hey I wanted to remind you that you won the giveaway on Junior's blog a couple months ago. I let you know at the time but with the little man sick never followed up to be sure you saw the post and email.
email me and I will get it in the mail asap. hjoythom@yahoo.com
I do not know you but you sound like an amazing young woman. My daughter Makenzie has CP after choking on a cracker 4 years ago. She is an amazing little girl who is doing well. This afternoon I received a comment from you to check out this post so I did. I want you to know that CP or no CP I love my little girl. We chose to take her to have Stem Cell therapy not because we don't love who she is with CP but to try and give her a better quality of life. It looks like you can walk and talk umong many other things like eat and sit on your own. Makenzie can not and I am guessing that if she had a say so she would like to be able to do those things too. Stem Cell Therapy did give her a much better quality of life in the long run. She no longer vomits many times a day. Her eyes work better which allows her to talk with her talker and she is learning along with her peers in school and she is learning to drive a power chair. These are all things she could not do before stem cells. I do not think that this therapy is the right choice for everyone but I do think it was the right choice for my daughter and it was not illegal to do as long as we traveled. You are right.... there is always hope and stem cells was part of my daughters. Keep up the good work! You are an inspiration.
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