Thursday, October 20, 2011

Guess who i met

 Me on the way up  on Mount Tam  Summer 2010
         Late breking news   From  today  but first a pre story


  A  few months  ago
           Mom: AZ   do you  know who    S  W is 
               AZ: No
                 Mom:  He has  CP and the speaker  at  the  annual breakfast  for   Community Gatepath"


 Cool
     A couple weeks later  I saw this.













 and i  asked  "Mom  are we going to Gatepath  so i can  meet him.




  Mom:  no  i have to present  far away


  These past two  weeks


  AZ:  I  have to go to the breakfast  I  have  to  go  to  the breakfast


    Last night


  Dad:  AZ you  can go to the breakfast.   Your mom will   drop you off and I  will  pick you up.


 Today


  MOm  and  i got there late but i was able to get a ticket  and  a seat at  a table in the back and I heard  Steve Wampler  speak.  He is the first person  with CP  to  climb   El Captin in  Yosimitee.    This is not an esay task  for anyone  but   get this    he  only  has  use of  one  hand .    He was able to  grip on with both hands  and  pull up in a  chair.     It took him  six days  but  he made it.     Off the moutian  he  is a husband and  a father  to two  kids.    It  was soo nice for me to meet someone  else with CP  that I can look up to.  He has a new  movie  coming out  next year  and I  told him  he should  come back to the area to screen it.  I really  enjoyed   meeting him and hearing  his story.  I do not  know what my life will be like as I  get older  but    meeting   Steve shows me that    i may  end up  leading  an  adverage life( married , kids,  a career) and  a chance to inspire others    

Wednesday, October 19, 2011

I need to remind myself

 That   I am amazing.   You  know   somettimes   you get mad  or sad  or  scared    try thinking  that  your amazing.  I have yet to find    great friends and thats  gets me down   but  at the end of the day I  think   if i remember how   great    and things will be ok















  A  penny  for your thoughts

In cas you missed this

Tuesday, October 18, 2011

Princess is powerfull

   I thought I would give  u an update on   my youngest sister  princess.   Princess is   a senior at my  high school  this  year.  She is  playing  v ball and  is  really good.  She   won best in torment  earlier this  year.   She does not  want to  do college  v ball  even though  she is good enough to  She is  stressed  about College  apps  but she will be fine.        


   How  are your  other kids  doing?

Monday, October 17, 2011

Buddy Walk recap

  Happy  Monday everyone  


   On   Saturday  I  went to my  first ever  Buddy Walk.   I looked forward to it all week and    i am glad  I went.  I work up coughing   on Friday  morning and   the first thing  i thought was  i might miss the walk  I did not miss  it and am glad  I  did not    I went with a family that I had met  from my special olympics  young athletes  days.   The family  has one son  and two little girls,   the little boy  with DS I  sat  next to him  and  we sung songs on the way down.  He is  Sesame Streets  biggest  fan  so  when  I sung  the theme song and  paused after  " Can you tell me how to get. '  he  new  what to say it was  soo cute.  Once we arrived The  weather was  beautiful and there   were lots of cute kids there.  I met  a little  four year old who  has  battled cancer twice and  is a savior .   some people get  really into buddy walk.  There were people with signs and banners celebrating the abilities of their love  one  with  Down Syndrome.  The Family I went with  had a sign  that was  right  in front.    It was a fun  walk.


   The only bad  part was knowing that  this great celebration   was not  for me, so selfish  I know.  There is no walk for CP and  I wish  there was.  Camp  Pals  was there  and they are going to have a camp pals  in   CA  summer 2012 which sounds like  fun except wait  I  do not have down syndrome.  I  signed the mailing list    maybe  my sisters  , or me. would  like to be  a consular  and  have a good time at Camp Pals.


 I really liked the  Buddy Walk  and   I  like to ask this of  the  organizers.     Why not have  a  Buddy  Walk for all  disabilities   or   people with Cerebral Palsy  lets     get a walk together.   I think its something everyone who  has   a child with Down Syndrome   should go  to.     Everyone needs  a buddy no  matter how  meny chromosome they have.


 got image  from http://www.dsconnection.org/images/NewsEvents/buddy-walk-logo_big.gif


off to go watch   The Time Square Video

Sunday, October 16, 2011

This should make for an interesting Monday

 I left my  cell phone at the Buddy Walk. (apparently the phone  wanted   a new  buddy :)). I also  lost  
   
   My  alarm clock 


  My  phone  so  i can call  people for a  ride  from my evening class.
  
My  Camera so     if i  mange to make it to stats  i can not take a pic of  my  buddy's   classwork  which is   allowed so  i do not have to  do  hw


 I will  let u all  know  how it  all goes  

Saturday, October 15, 2011