Monday, July 30, 2012

Able to go to college Episode Four: Cars and Hearts







   So this week  i will be blogging about   the  week of Valintes day  (2012).      I  really think that my  dog  knew it was  Valinties day because  when  I woke up this  morning I  found her  on my parents's bed looking as  cute as ever.  I had a  good day at school and to make things swet   one of my acquences  drove me home that dad.  He  was not dating   so  he  coined the  term  Single Awainess day  I like that (esp since  I have never had a boy friend)  My dad came home  that  day  and  found  a note   that said that   AZ had to unload the dish washer.  I had  seen this  note  but  I had "forgot" to  fallow though.     My  dad was  home  so  I  had to listen to the note  aw  well.  Luckily  I have a  great tip for doing the dishes which u can see in the video.


 So the  second  half  of  the video   highlights a  constant struggle  between  my parents and  me.  I want to  try driving.  Now  I  tried driving a little  my senior year, yet I was no where near ready.  Unforntaly my parents  do not think  I am  ready  so  for now  I am stuck to taking public  trasnit, bus. I hate the  bus.  The  main  reason  is that a bus  confines you to a se.    Taking the bus  means that   if you miss the bus you have to wait for the next one.  The bus   that  I take  runs  once every hour so  if I miss it  I  have to  miss at least ten minutes of class.  This was the case  in the second half of the video.   I am  only  20  so  I think  I have  still   have time to learn how to  be  behind the wheel.

Wednesday, July 18, 2012

Help them become Leaders of the pack


 These   three actors are the stars  of   a  internet   soon  to be  TV show    called  leaders of the pack  They  need our help  in terms of votes to  vote   u   need

1. GO TO: http://www.nextventertainment.com/votes.php?indx=2#
2. SCROLL DOWN to RICHARD REDLIN
3. CLICK VOTE! on right hand side



 if they  get  enough  votes they  can  be on  TV    that would be  cool  


Lauren Potter and  AZ   fall 2010

Monday, July 16, 2012

It still hurts

 My   Dog lights up  my world
 
    Let  me start off by saying that I had a great fourth of  july  week.   I   went  to a firework  show  at  the  local  elementary school and  had a  great  time.    During the fireworks   i  saw  some people   from high school and said  hi   and  instead of turning around they  left me.   Actually  everyone   left me  and there was  no  room to sit  because spots  were  taken.   I     end up sitting next to people from  my high school  and  afterwords  there was a  party at  the  girl's house  but   guess  who was not invited.  I    keep on  plugging  away and walked home.      Despite  this I  had a great time  overall  because  hay   I  have not had  great friends  for  most of my life  so  I  guess   one  to say that  I am  used to  it  by now.    

 It still  hurts

  On the  fourth of July   we had a  party at Sacramento and  I saw  my cousin  who is  two  years  old . She is the same one  that I wrote  a  poem  for   before she was  born.    My  cousin  lets  call  her   K  told  princess  that  she could baby sit.   I  offered to  babysit  because  hay  I  like   kids and   she is  a cutie  pie.     K says  no    but  i could  baby sit with  D  our  other cousin.  D says  no way.    K  says the  chaperone   needs a  chaperon      I  shut  down  then  people asked me  whats  wrong.  I say  nothing because of  course  I    am   known as  AZ the     one who  runis things    for everyone  involved and  I am   trying  to change that .  I  told my mom what was  bothering me  but she  does not  understand  because  She  asked my sister   to  watch over me  if she  moved to sacramento.     HELLO ?     I  can   take  care of my self.     Yeah  I can not  cook  or do  my hair  but   that is what  hats are for  and     I can  microwave stuff.  I want to be independent  how  do  you think  I feel when  I hear these   things  terrible.         I am not  a kid  anymore  I am almost  21.   Man  its  so  hard to be  me.      I feel  like a round  peg  going into a  square hole.  I have  a hard time fitting  in  with peers, disabled and   average, and    I   am  still  a  "Kid".   Yet      I   still  smile and  try to  be  happy because  after all   these  things  are  commonplace  for me.

                     It  still hurts


 Heading back home ater the fourth of  July
 

Wednesday, July 4, 2012

Independence Day 2012

Happy 4th 

Disclaimer America still is not free for everyone blacks disabled immigrants but it has come a long way since 1776 so I guess its ok to celebrate.  I went  to see fireworks  last night and    i am  going  to   my  Aunts  house  today.    pictures  will  fallow  soon



  Ps   yesterday was    my Dad's  birthday    Happy  b day  dad 

Tuesday, June 26, 2012

Monday, June 18, 2012

Able to go to college episode three :Basketball- one of my favoite sports

   



            I know  what you are thinking  how  does this  relate to college   answer  it is   weekend edition.  You know all work and no play......... well I do not  know the rest  but   here it is.   My number is    number  11.  I  really love  playing in this  tourment.  In my area there are two gyms for basketball  but  one  practice  site  for all other sports  so  for me this  means that  I  played against all  my  friends    who are my team mates in  other sports  like  track  and soccer.  I  also  have  my  HMB   hoop buds  one of them  also  goes to my school.  In the fall  more  people from  my team  will go to  my college which will make  for an interesting time ( hint  not all  of them are my  friends)  



I  know second question  

  What's  that on your  arm?

    Thanks  I thought u  never ask.

 All the colors.   I have a white and black  one   I want the orange  one 
 The  white thing on my  arm  is  called a Sniffle  Buddy.  Now  some  people  with CP, me include ,  have the  tendency to   drool.    Now when  I was younger I  drooled a  lot   I mean  I  could have  filled a  cup with  salvia  from my mouth and   I am  not talking about  when I was a  baby i am  talking about    school aged.   Now that I am older   I  have  good  days, where  no   drool  comes  and  I have  bad days  when   drool    comes  out.  In  high school  I   began  to  spit on  people when  I  talked  but I did not drool   oh  the  wonders  of  CP.

  Now one  of  my pet peeves  is   seeing a school age kid   wearing  a  bib.  I  mean  hello  bib   are for babies   not  for  older kids.    I  do not care what kind  of bib you may get     it still  looks  babyish  and   it will make  fitting  in  with other kids  harder then  it  already  is. A great solution to this is to use a bandana  or  a  Sniffle  Buddy,

    A  sniffle  buddy      resembles a bracelet,   It is  made out of bamboo  and it works.  I love  my sniffle buddy  it helps me  control the drool also   if i  forget to  grab a napkin during it mealtimes   helps   me as  well.  Sniffle  Buddies also  are for allergies  and  sports which means that  it is not specifically designed  for  people with disabilities; however    it works.   It is also green because instead of  throwing  napkins away    you  just put it into the  wash so that is  what i am  wearing on my arm.

    
  


  On a different  note  today I  begin  summer school  so this  might be the last Able to  go to college  video  for a while.







Sunday, June 17, 2012

Happy Fathers Day

 My dad and I  grand canyon summer 2005
  Dear dad


    I  want u to know that even  when we do not  agree on stuff    in the end u are my Dad and I  love u.


 love  AZ








Wednesday, June 13, 2012

America its time to listen

  As many  of  you  long time readers  know, in my youth I was a Toy Story  fan.     I  have seen the movie  so many times that I know   all the lines and    when I can not sleep on  occasion I play the  first couple of scenes in  my head.  


   In this  movie  there is a claw  at the  Arcade   and   when  Buzz Lighter goes  into the claw  game    and asks for the boss  the   Aliens  say 


                  " The claw is our  master  He   decides   who will  go  and who will stay."  


   Woody   says  " This  is  ludicrous"  
 Woody  has  always  been  my  favorite character and    as a adult  I agree  with him.




      I am not  just  quoting  Toy story  for fun there is a  meaning.  Back  in  2006 around  Christmas time NPR  released a  story about  Misty Cargill    a  women who  was  25 years old  had a boyfriend and  worked at a job and loved bowling.      She also  needed a Kidney  transplant.     So  she needed to be  placed  in   a  metaphorical "claw  game.     Only this  time the claw  game  is  made up of many  people, doctors who deiced that she would be  better   stay  put with  the  kidney she  had because  she  had   an Intellectual disability.        On Sunday  Misty  died   at 31 years old. 31  when my parents were that  age they  were  just starting on their careers and  raising a family.    


  The  report in 2006   says that   she  did not  get denied based on discrimination.  I say that  is   not true.      Six  years  later  another girl with  ID was   denied to  have a   transplant surgery because    of ID.


 America  needs to  listen  to its disabled  citizens 
        I am  tired of this.    I am  tired  of  people  saying that  disabled people  are  not  worth the same  type of medical  help as  our  able body  counterparts. I am  saddened that there  is a possibility that     one day  society will have   wiped out   people  like me.  I can not imagine   the day  when   their is  parental  testing  for Cerebral  Palsy  and  that  parents are forced  to terminate.  It could  happened. It already  happens  for  conditions  like Down Syndrome.   People are trying to find  the cause of  Autism and   I  do not have to  be a genius to  figure out what is  next.  Soon    there will be a test for that as well. Society needs to stop trying to find cures  for disabilities.  Instead we need to have more conversations   about  inclusion  and  respect.   That will not happened  around here  because where I live kids with  Intellectual disabilities are segregated in separate  classrooms.    or when they are mainstream they have  bad teachers  who are invested  in    making sure inclusion fails.      This  is not in the south   in  the   1940's  this  is   2012   where we have a black president but  the  problems  still  happened.  Wake  up  America     lets  start a conversation with people with  disabilities   about  how we want to shape  our  future.   Let  it be broadcast   on TV  and online.   Lets  start  talking  about what needs to be done  by  listening to the people that  live with  the disability every day .  Let's  talk  now   before  it's  to  late.




 images are  from 


  alien 
http://johnlange.files.wordpress.com/2011/06/toy-story-aliens.jpg
 clipart 
http://cdn2.fotosearch.com/bthumb/IMZ/IMZ164/rco0030.jpg










Monday, June 11, 2012

Able to go to college Episode two : Top of the hill




  So  guys sorry   about the long wait but at  long  last I have a new Episode for you  guys.     This  episode  is an important  one because   it  shows  a myth that i had  about  college when I was a senior.  


 This is what I  thought   awaited me after high school  I was so wrong 
 High school was  tons  of fun  for me I  mean  we had  ralles  Senior  Activity Day  among other things.  At home  I had  video games and   tv and stuff to  keep  me entertained.

 One of   the big myths that I had  was that   once you  graduate high school  you  do not have any  fun.


 Oh  how  wrong  I was.


  Two  year later I  know that  is  not the case.  As  you can  see  there was  rock climbing on the  college campus  for a day.   Last fall I  went  on the  rock  wall  but   on that day I did not go on the rock wall. As far as videogames  go I  still  play them   like  I did  in high school.   Although  I must admit I do not have as much time to play because in college,  I am  in  a general education  program,  I have tons of homework and  stuff to do.     Its  only the  third  week  of school  and I am  having this much fun   who knows  what  fun awaits  me the  rest of the semester.

 




 No  fun sign
  http://image.shutterstock.com/display_pic_with_logo/123328/123328,1222362071,1/stock-photo-smiley-having-no-fun-sign-17923828.jpg

Thursday, June 7, 2012

Proof of focus

  So  today  I had ST. ( yeah  I know  u  need  able to go college  videos )   and  we  were doing  a  reading  that we got  from  IMOB  about  RJ Mitte , an actor  with CP  who plays  someone with CP   on   Braking  bad.      Today we were working on  breathing and    how to do  it when u  have a  long sentience  without  commas  This  was the sentience.


" RJ Mitte was using acting as a means to build friendship with kids his own age while living in a new city."    


me  taking a break from  writing  summer 2005 


  Now this  is  a hard  one  and  The ST  said that  there were three  easy  pauses  my job   was to discover  them. 


 I  came  up  with   this  


" RJ Mitte was using acting  as a means to build friendship with kids his own age while living in a new city.


       its a  transition  word    i  said 


    The  ST was sooooo Happpy.


  See  not only have I been on Dean's  list  I  remember what  Ms.S  said.

Saturday, May 26, 2012

Happy b day Book gal



 Love  u  sooooooo  Much. I  can not  belive  u  are  19  today   happy  b day


 love

 AZ

Monday, May 14, 2012

Talking and understanding are not mutally exculsive


                        Lets  say  a genius  who  spoke  Latin  were to come to  the United States.  Now  lets   just say  for the sake of the argument that  there was  no one elese  who spoke  Latin.    Is the  genius  still a  genius.    Of  course  many  people would say   he just  needs    needs to  learn  English.       Well  what if there was  a  person  who  could not speak  at all  and  had  no device,  could he  be  a genius?
`  
It  angers  me as a person living with a speech  delay  when  I hear  someone  who has  no  speech  due to  disabilities,  especially  CP,  and do not have any  device  and  are  placed   as  limited  intellecual  ability.  It  really   angers me    because   the person does not have a  opportunity to  prove  there intellengence one way or the other.  Why am  I pissed  off  let   me  tell you  my story.
 bookgal  princess  and  az We were so cute 






          I was  born   September   1991   a month  prematurely   resulting in mild Cerebral Palsey.  As  a newborn  I could not suck  from a bottle  to well  a feeding tube was  placed  though my thoat so  I could  eat.   When  my parents  took me   home  I  had a  hard  time  breast feeding and my  mom had to pump her milk out  and put it in a bottle.  My  mussles  were soo  weak that   feeding took  forever.




 When  I was a  toddler   I had diffculty communicating. I leaned sign langue  to comincate. I  remeber saying and  signing  craker  in the kitchen.  Useing  signing  I was  able to  express  my wants  and  needs  until my speech   came  along.




 With me and  my  speech  imparment  repeating  words  is   frustrating  espacaly when  no one  understands  me.    I  hear myslef  specaking clearly, My  mind   makes  the ideas  and  the words   that come out   are   fuzzy.   I  rember  saying answers  in class being  told  I was  wrong and   someone said the  same thing  and got it right.      That means that I  got  the anser  right.  


  Now  for me  I have a voice . Its  not  the best  but its  a  voice. As  frustrated  as I must  feel  it must be  ten  times more frustrating  for  people  without a voice.  I feel for those  people  and   can not igmane  being inside  and  not having  a  way to  commicate  and   because of  not being able to comincate  getting  llabled as  worthless.    Having the school system  write  you  off being  isolated  from your peers.  Being  talked to in a high  pitch  voice  every day when  you  are not a  kid. Then  because of  your phiscal limitations  being  labled   as  being as  smart as a  toddler.  That is not  fair  nor is it  right.  I  know  all about  history   understand  spainsh and  english  have a  talent for writing   can  play chess    yet I can not  say the  L  R   K   G sound   esaly.  Does  that  me   not smart  no. Now  igmane   if  i could not talk or  had a device yes  I would not be able  to   write  read and play chess  not because  I   was  not smart  but because i  had  not had  the oppertunites  to  learn.     If  you are reading this and have a child  who can not communicate  my  advice  is   to  go to the ends of the  earth  for your kid, Buy the i pads   the dynvoxs help your  child  find their voice.   If your  the  parent   or  know  someone  whoes  older  who can not commmicate   do the same thing.  The sonner  you  get it the better but do not give up on an older   person in fact you need to get  the information them faster to make up for loss time. In the  meantime  contiue talking to   the person   as  would with   a person as  there  cronolical  age. ( So obsouly  talk  to a baby  like  a baby
 All pepole deves  a chance to connect with others.  It  does not  matter how smart they are everyone  wants  to connect  with  others.    Think about  it  this way   if the person  is  said  to have an intellecual disablity  and you  talk to them about  stuff that  is  to hard for them  then  they it will be  to hard, but if   the child is smart  but has not fond their  voice they will  obseve  it like a sponge.  Please  remeber  speech  is  very  conplex  and hard but   the   spoken word  is   the end result.   The  process  may still be in place.








 









My sister is going here

  Congrats   princess  of the ducks 

Sunday, May 13, 2012

an essay I wrote for class on my mom


 Shortly after Rosa Parks gave up her seat,  a vice chancellor was  born; however,  when she was younger   no one could have  imagined it because   they were female, African American  and lived in  the same state that the Boycott took place in, Alabama.  This is my own mother who  had  to overcome insurmountable odds to get to where she is today  and this is her story.
            My mom was born on a June day.  She is  daughter of  .   My  grandmother was a country girl  who was the daughter of sharecroppers,  a system   developed by former slave owners  in which black people who   got  very little money for the crops they  produced and  were trapped on the land.    My grandma  was born  in the 30’s  during the  depression which made it  especially hard for her  family to get ahead.  My Grandfather lived  on the farm in Alabama which  his  grandfather, who was freed by the slaves as a  had bought.
              My  mom was brown in  a time period where  her mom was inevitably  referred to as a girl and her dad was  always a boy. Because of the color of their skin, my  grandparents endured   segregation.   In  my mom’s neighborhood was all black  and whenever  my mom went to town with  her mom she was  exposed to the bomb mine  of the ways of white people.  My mom remembers   asking  my grandmother  why she had to cross the street for white people. My mom remembers   hearing my grandmother  telling her about  that at work, as a cook she  was forced to go through the back door.  her job as a cook for white people, yet home was   still  home for  my mother.    When she was born  she already had four siblings, that all attended segregated schools, to look out for her.  My mom also grew up with both set of grandparents to look out for her.
            The  pivotal movement that would allow my mom and her siblings to reach their fullest potential came when my grandpa   moved the family to California.   It came shortly after  my mom  turned  five.  My  grandpa moved the family because he was  in the military and  had  to pick between Texas  and California.  He chose California because he had already had relatives  there.  I am  forever grateful that my grandpa chose California because without that choice I would not be here.
            One day when my grandma  was helping my mom study she  told her that she could be a doctor because she was so smart. My mom did not  actually believe her.  Even though my mom could attend the public school in California she had never thought  that she could be a doctor because   there were no African American doctors in Sacramento.  Still life was good in the state capital.  My grandma and grandpa became  really busy when they  moved to California.  Grandpa continued to work at McClellan Air Force Base in  North Highlands. My grandmother, who  knew that education was the key to a better future,  got her teaching credential  while raising her five kids  and working.  By the  time  my mom  graduated from high school after three years she  already had  siblings that had been in the college system.  My mom decided to go to  University of the Pacific in Stockton which was  close to her  parents and little brother,  who is  a decade younger than she.

            The future vice chancellor of diversity  for UCSF graduated  from UOP she went to medical  school  at UCSF.  She  spent a year in Los Angles, yet  she would return to UCSF for her residency. In residency one of  her black professors encourage her to go into academic medicine.  This choice would  ground her for  a very long time.
            In residency my mom met a handsome   half white half Mexican  man who was the eldest of  six children.  He also had an interesting story. This man, my father, was a wise  soul who loved to read.  He was  from a poor family and was born in Oregon. He was the only person to graduate from high school.  He  also came with a little  boy, from his first marriage, who was cute funny and enjoyed Ninja Turtles and baseball. Although    my father was a different race   and had a kid, she  fell in love  and the couple soon got married.
            Shortly after my parents  married. The best thing that happened to them was born.  I was born a few months shy of their one year anniversary.  I was  the first child that my mother had actually carried around  for  eight months, I was born  prematurely.  When I was born    Natalie Cole’s “Unforgettable”  was playing in the delivery room. My mom had thought that that song was  predicting the unforgettable stuff that I would do. It  turned out that it was the song  both mother and daughter  would live up to.
            A year after  I was born  doctors  told my parents that I had Cerebral Palsy. My mom  got me all the help I needed, yet  she never gave up her work.   I was joined by two little sisters that would serve as  good teachers  for me as I got older,  but until then  that meant she had three little kids at home the eldest had disabilities. Most people would have given up their jobs to care for their disabled   toddler, but my mom never  did  take off more than she had . During this time my mom  worked  at two sites, taking care of patients and  doing research,  Mymom and  dad found the best nanny’s to care for us  and they would assume all parental duties during the day.  Growing up  I wished that my mom had  been a Stay at home mom, yet  I am  glad she did not because  America needed her to work.
              When I was  seven years old  it was the down of a new  millennium and  the first time  that my mother would become  a leader who championed the  rights of minorities, That year she would become chief of staff  at UCSF.   Soon after that she was promoted to associate dean of the medical  school.  She would be a there   for a while. She also became  involved  in her community outside the hospital.  She joined  the Commission on disabilities and  the compassion  on the status of women.  She also started began to travel a lot.   When I was in middle school my mom began traveling to Washington DC to be on the board  on women in medicine and science, The  national board challenges the  fact that  not a lot of women are in leadership roles  yet they were more women in medicine.  All of this meant travelling  advocating and doing countless  hours  of writing  and practicing  long into the night.
             In  the fall of  2010 my mom  interviewed  for the vice chancellor of diversity. She  got the position. My family and I were so excited.  Last  January we went to  a ceremony honoring her work.  Going to the event made me realize her impact  that she had  in her  professional life. She became the  first female  African American vice chancellor  in the University of California system.     During that time my mom has  implemented  programs that improve the diversity at UCSF .
             Mom  is a hard worker, She began working at the age of 16  and has not looked back since. Renee is so  wonderful and amazing.  She has won numerous of awards and recognition .  My mom  has shown me that   with hard work anything is possible.  She has shown me the  racism  can be overcome and   we must keep fighting until everyone has a fair shot at life.  She is my mom  and  I am  so honored that  her blood   runs through my veins.   When  I think  of  her accomplishments I   feel  proud to call her my  mom.    She has showed me    through her actions, those  are  bigger than words,  anyone can make a  difference in the lives of others.




Happy mothers day to al the mom's out there







Wednesday, April 25, 2012

Able to Go to college Episode one : AZ's new backpack

 

  So  this  is the  first episode of Able to go to college.    The video says week  two  because I did not film the  first week of school :(.   Now  on with the post.    



                Now these days  there are a lot of different  types of backpacks.  Some  are  rolling  while   some are a shoulder bag Some   ladies  carry there stuff in a  purse.  For me  I need a backpack  because  due to  NLD  I am  vary  disorganized  in  fact some people have   called  me. 
A Tornado
  And  people  have also  called  my backpack a  








A BLACK HOLE
                                                                       


   the  day I got my  orange  backpack summer 2010 
         Since I  am  hard on my stuff  my  back packs do not last  long.    I  got the  orange  backpack   summer 2010.    I  took  it with  me to   my summer school  program  for students  with  disabilities.  I   also took  it  when i started regular college  classes, but    Fall 2011  it began to show  me  signs that  it needed to go into  retirement.  The  front  two  zippers did not  work  anymore  and there were  holes in it.    The  orange  back pack  was  with me   as  I entered college  but     now    I needed a  new one .



   So earlier in the week  my  dad and I   went on a mad backpack hunt.   We went all over    but   no such  luck  because I am   picky .     I   went looking  at my book store in my college.  I  found  two  backpacks of the same modal  but  different colors.  I  ended up  picking the blue one.     I got on  the bus thinking that   I was   going  home .but   I  got on the wrong  bus.    The bus went  near by    my old   school so I  was not worried.  I  called my dad  because  he was    home  but the plumber was   at our  house  so  he sent Princess  and she came to  get me.









Got  images from


    Tornado

http://dir.coolclips.com/Nature/Natural_Disaster/Tornadoes/cartoon_tornado_CoolClips_natu0206.jpg


  Black hole

http://www.dailygalaxy.com/.a/6a00d8341bf7f753ef0168e55ba4a3970c-800wi


 Captions were  done with help from Carolyn Fiory




Sunday, April 15, 2012

girls with autism

     

Hay  guys  missed  me    I   was   on  spring break  more on this latter   but anyway  I  saw this interesting video   what are  your thoughts

Friday, March 30, 2012

CP Awarness Month Highlights


             Another   month has come and  gone.     This  has been a fun  month  with me blogging weekly. I like it and  it has not hurt my  academics at all. I  took a bio  test  today and got a  96%, and no I did not  pay the professor.     
                
 I told you about  Able to go to college. The series is coming soon.   Maybe  next week.


  Connotation and  Denotation faced off   in this  post .


 I  got some  news    about  my   grades.


   I  re posted  about  LM  for Down Syndrome day 




 IT was CP Awareness  Day  and I   thought of some ways  that  having a disabled child  was easier than   a  average one 




 Guest  Posts 


  Laura  sharing Seth's story


  Stacey Menz  talking about  PT and CP  




 What  were some of your  favorite  post  from this  month.

Thursday, March 29, 2012

A message from a PT

       I have had the pleasure  of  knowing Stacey Menz since  fall  2011.    For those of  you who do not know  Stacey is a PT  based   in the same town  that I   grew up  in.  I  wish I had her for  PT when I was younger  because she is really good.  Stacey works  at  Starfish Therapies. I asked her  to  write a post about  CP  and she did  so without further ado here  is the post on  CP





 this  little  guy  will be  the star of a video at the end of the post 
Every person with cerebral palsy looks differently not just in terms of their physical appearance (just like any other person) but also in terms of what they can do really easily and what they have a really hard time doing. This is because it depends on the area of the brain that was affected. Each area controls different parts of the body so it would make sense that an injury in one area of the brain will have a different affect than an injury in a different area of the brain. Despite these differences there are similarities that are important to consider when assisting a person with cerebral palsy to achieve their goals in life, whatever those goals may be.



 Me as a middle schooler with   book gal in   the backround
The similarity I am going to chat about is that for a person with cerebral palsy to learn a new skill whether it is how to walk, how to talk, how to write, etc, it takes a lot of practice. In this way it is no different than someone who is learning how to play the piano or to shoot a basketball or write cursive. All new skills take practice and repetition until they become more second nature. With new skills, each piece of the skill requires conscious thought. Remember the first time you learned to drive a car. You had two hands on the steering wheel, you were sitting upright and barely dared to breath. The radio wasn’t on because it might distract you, and the person who was in the passenger seat wasn’t allowed to so much as whisper. It took all your thought and concentration to move the car out of the driveway and down the road. Now, after countless hours and miles of practice think about all the things you do in the car. I’m sure all of us have at some point and time driven somewhere, parked and thought ‘how did I get here.’ Driving has become automatic and we don’t have to think about every little nuance anymore, unless the conditions change and then we are on higher alert.


 My  mom  me and book gal I did PT when I was this small
This is how learning every movement is for a person with cerebral palsy. Each motion or activity requires constant thought. Nothing is automatic. So not only is going about the day physically exhausting for a person with cerebral palsy because of the extra energy they have to expend to create movement or speech, it can also be mentally exhausting if they have to consciously tell their brain to tell their body each motion and movement.


This is where the practice comes in. The more a person practices an activity the easier it has the potential to become. And, the more the activity is broken down into small pieces and each piece is mastered and then put back together as a whole, the easier the activity has the potential to become. I have seen this in many cases. I have a kiddo where we are working on walking without assistive devices. He is able to do it for short periods but he needs to think about each step and think about his balance after each step. He has a hard time shifting his weight onto one foot so he can lift the other and will often lean out to the side to make this easier, but that then makes keeping his balance harder. So we will take lots of time to practice shifting his weight to one side and then the other while keeping his head and trunk up straight. After we practice that piece he gets to practice walking a short distance and he finds it just a little bit easier to shift his weight, take a step and keep his head and trunk up so that he has an easier time keeping his balance.
Every time a skill is practiced it is reinforcing the pathway that sends the message from the brain to the muscles. The more this road is used, the more efficient it becomes which also helps skills to become more automatic.


I inspire greatness






































The take-away message is that practice and repetition are good. But I also hope you understand how much effort goes into a person with cerebral palsy learning each new skill and movement. Not just the physical effort, but the mental effort. I am amazed every day by the determination and will of the people I work with. They inspire me to work harder. I hope they inspire you.


























Wednesday, March 28, 2012

Raiseing a disabled child is sometimes easier than rasing a adverage child

My mom   my sisters and  me spring 2005

1   I do not need a curfew.  I do not go out that much and if  I  do  its with my parents  so  they do not need  to stay up worrying  when I will be home  on weekends. 

2  There are a lot of people that have helped me  over the years. OT  Therapist PT ST they  have wondered though my life  helping me and  my parents. 

3 Most of the  things I do outside of  the home are  supervised  thus  they  do not have to worry.

4    Sometimes  my sisters tend to think that they  know everything.  I know  I  don't.
 
5 I have never been  to  a house party therefore  I  have never   been around  drugs  

 6 I have  yet to have a boyfriend  so    my dad does not have to worry.
 
 Got  any other ideas? I  want to hear  them  comment below