Buddy Walk recap

  Happy  Monday everyone  


   On   Saturday  I  went to my  first ever  Buddy Walk.   I looked forward to it all week and    i am glad  I went.  I work up coughing   on Friday  morning and   the first thing  i thought was  i might miss the walk  I did not miss  it and am glad  I  did not    I went with a family that I had met  from my special olympics  young athletes  days.   The family  has one son  and two little girls,   the little boy  with DS I  sat  next to him  and  we sung songs on the way down.  He is  Sesame Streets  biggest  fan  so  when  I sung  the theme song and  paused after  " Can you tell me how to get. '  he  new  what to say it was  soo cute.  Once we arrived The  weather was  beautiful and there   were lots of cute kids there.  I met  a little  four year old who  has  battled cancer twice and  is a savior .   some people get  really into buddy walk.  There were people with signs and banners celebrating the abilities of their love  one  with  Down Syndrome.  The Family I went with  had a sign  that was  right  in front.    It was a fun  walk.


   The only bad  part was knowing that  this great celebration   was not  for me, so selfish  I know.  There is no walk for CP and  I wish  there was.  Camp  Pals  was there  and they are going to have a camp pals  in   CA  summer 2012 which sounds like  fun except wait  I  do not have down syndrome.  I  signed the mailing list    maybe  my sisters  , or me. would  like to be  a consular  and  have a good time at Camp Pals.


 I really liked the  Buddy Walk  and   I  like to ask this of  the  organizers.     Why not have  a  Buddy  Walk for all  disabilities   or   people with Cerebral Palsy  lets     get a walk together.   I think its something everyone who  has   a child with Down Syndrome   should go  to.     Everyone needs  a buddy no  matter how  meny chromosome they have.


 got image  from http://www.dsconnection.org/images/NewsEvents/buddy-walk-logo_big.gif


off to go watch   The Time Square Video

This should make for an interesting Monday

 I left my  cell phone at the Buddy Walk. (apparently the phone  wanted   a new  buddy :)). I also  lost  
   
   My  alarm clock 


  My  phone  so  i can call  people for a  ride  from my evening class.
  
My  Camera so     if i  mange to make it to stats  i can not take a pic of  my  buddy's   classwork  which is   allowed so  i do not have to  do  hw


 I will  let u all  know  how it  all goes  

Eventful saturday

Bay area buddy walk and dramma more detalis latter

Terrific Tripplets

   Check them  out

Learning to read part two My first independent book

     Growing up   my family had a lot of  kids book  lying around  our house.    Among with the Disney   we had  lots  of    step into  reading books .    Out of  all of them  the book  I  remember  reading for the first time  was Tiger is  a Scaredy Cat.  

  Looking back    I say it was a sad  irony that I  remember  this  book   as  I  deal with  fear.      But that was  my 'first independent book.     I also have memories   of  reading this book in  pre  K.  

    Do you remember your first book        What books are/were your    kids   favorite ,

Learining to Read part one : intro

 This hurts  my hard sounds  a  three  year old can say :(

      Let me  start out by saying that I love to read.    It should be no surprise.  These next few  post   will be about how  I learned to  read.  I   read   in a way dispute  never learning  phonics .    Well  not in the traditional way.  I  know what the letters  are supposed to sound like  but   producing those sounds is a different  story.  This  is  due to   Cerebral  Palsy.  Not all   people with CP   have speech  issues.    They  range  from   no problems to   using     speech  devices to  talk.     I  would  classify myself  as   somewhere in the middle.    I  do not need a speech device  but sometimes people do not understand me.  This  can get  frustrating.   I do  a lot  of substituting   which  means that    I  would  say cat   as  "tat"   or  dog as  dod.  I  also  do this  for L's and R  which  i  replace with a  W.   Let me  make this  really  clear the reason  for my lack of substituting sounds has nothing to  do with intelligence. I am  smart  just see  Monday's  post.  Now   I hear myself fine  and understand myself  100 percent of  the time.   Now this sounds contradictory but despite being able to  hear    all the sounds    so  I can sound out  words  I am a bad speller. Not sure why  this is    but  I  would like to be a better speller and I want to  take a spelling class in the  near future.    Anyway  this  might seem  that  I  would be  a uphill battle to  make me understand  reading  but  it really wasn't.( at least that's not what I remember) 

        I  hated  learning  phonics  for me   it was  a reminder to me that I was 'different' in fact  I  remember being told that by my teachers,     For parents of kids  with articulation  delays  do not stress  phonics.  It is helpful to know phonics  but  it is not required.   Model the  sounds  read to your kids   but  do not  stress   hearing the phonics  from them.    People  who  are non verbal can still read as well  as long as people    know how to teach them.

 Here is a school that    proves this








 got image  from

chart http://mommyspeechtherapy.com/wp-content/uploads/2010/08/sound_dev_chart.jpg
bookwormhttp://www.sewterific.com/images/BacktoSchool/BTSBookwormLove.jpg

Soccer

  My  AYSO  picture  from  eighth grade Fall 2005

  Today    had soccer practice and we  did  goal keeping. I  was  pretty  good  on the ground.   Just  call me   steel wall.

  Also did u know the us Para Olympics     has a  soccer  team  for males  with Cerebral Palsy