Tuesday, October 18, 2011
Princess is powerfull
I thought I would give u an update on my youngest sister princess. Princess is a senior at my high school this year. She is playing v ball and is really good. She won best in torment earlier this year. She does not want to do college v ball even though she is good enough to She is stressed about College apps but she will be fine.
How are your other kids doing?
Monday, October 17, 2011
Buddy Walk recap
Happy Monday everyone
On Saturday I went to my first ever Buddy Walk. I looked forward to it all week and i am glad I went. I work up coughing on Friday morning and the first thing i thought was i might miss the walk I did not miss it and am glad I did not I went with a family that I had met from my special olympics young athletes days. The family has one son and two little girls, the little boy with DS I sat next to him and we sung songs on the way down. He is Sesame Streets biggest fan so when I sung the theme song and paused after " Can you tell me how to get. ' he new what to say it was soo cute. Once we arrived The weather was beautiful and there were lots of cute kids there. I met a little four year old who has battled cancer twice and is a savior . some people get really into buddy walk. There were people with signs and banners celebrating the abilities of their love one with Down Syndrome. The Family I went with had a sign that was right in front. It was a fun walk.
The only bad part was knowing that this great celebration was not for me, so selfish I know. There is no walk for CP and I wish there was. Camp Pals was there and they are going to have a camp pals in CA summer 2012 which sounds like fun except wait I do not have down syndrome. I signed the mailing list maybe my sisters , or me. would like to be a consular and have a good time at Camp Pals.
I really liked the Buddy Walk and I like to ask this of the organizers. Why not have a Buddy Walk for all disabilities or people with Cerebral Palsy lets get a walk together. I think its something everyone who has a child with Down Syndrome should go to. Everyone needs a buddy no matter how meny chromosome they have.
got image from http://www.dsconnection.org/images/NewsEvents/buddy-walk-logo_big.gif
off to go watch The Time Square Video
On Saturday I went to my first ever Buddy Walk. I looked forward to it all week and i am glad I went. I work up coughing on Friday morning and the first thing i thought was i might miss the walk I did not miss it and am glad I did not I went with a family that I had met from my special olympics young athletes days. The family has one son and two little girls, the little boy with DS I sat next to him and we sung songs on the way down. He is Sesame Streets biggest fan so when I sung the theme song and paused after " Can you tell me how to get. ' he new what to say it was soo cute. Once we arrived The weather was beautiful and there were lots of cute kids there. I met a little four year old who has battled cancer twice and is a savior . some people get really into buddy walk. There were people with signs and banners celebrating the abilities of their love one with Down Syndrome. The Family I went with had a sign that was right in front. It was a fun walk.
The only bad part was knowing that this great celebration was not for me, so selfish I know. There is no walk for CP and I wish there was. Camp Pals was there and they are going to have a camp pals in CA summer 2012 which sounds like fun except wait I do not have down syndrome. I signed the mailing list maybe my sisters , or me. would like to be a consular and have a good time at Camp Pals.
I really liked the Buddy Walk and I like to ask this of the organizers. Why not have a Buddy Walk for all disabilities or people with Cerebral Palsy lets get a walk together. I think its something everyone who has a child with Down Syndrome should go to. Everyone needs a buddy no matter how meny chromosome they have.
got image from http://www.dsconnection.org/images/NewsEvents/buddy-walk-logo_big.gif
off to go watch The Time Square Video
Sunday, October 16, 2011
This should make for an interesting Monday
I left my cell phone at the Buddy Walk. (apparently the phone wanted a new buddy :)). I also lost
My alarm clock
My phone so i can call people for a ride from my evening class.
My Camera so if i mange to make it to stats i can not take a pic of my buddy's classwork which is allowed so i do not have to do hw
I will let u all know how it all goes
My alarm clock
My phone so i can call people for a ride from my evening class.
My Camera so if i mange to make it to stats i can not take a pic of my buddy's classwork which is allowed so i do not have to do hw
I will let u all know how it all goes
Saturday, October 15, 2011
Friday, October 14, 2011
Thursday, October 13, 2011
Learning to read part two My first independent book
Growing up my family had a lot of kids book lying around our house. Among with the Disney we had lots of step into reading books . Out of all of them the book I remember reading for the first time was Tiger is a Scaredy Cat.
Looking back I say it was a sad irony that I remember this book as I deal with fear. But that was my 'first independent book. I also have memories of reading this book in pre K.
Do you remember your first book What books are/were your kids favorite ,
Wednesday, October 12, 2011
Learining to Read part one : intro
This hurts my hard sounds a three year old can say :( |
Let me start out by saying that I love to read. It should be no surprise. These next few post will be about how I learned to read. I read in a way dispute never learning phonics . Well not in the traditional way. I know what the letters are supposed to sound like but producing those sounds is a different story. This is due to Cerebral Palsy. Not all people with CP have speech issues. They range from no problems to using speech devices to talk. I would classify myself as somewhere in the middle. I do not need a speech device but sometimes people do not understand me. This can get frustrating. I do a lot of substituting which means that I would say cat as "tat" or dog as dod. I also do this for L's and R which i replace with a W. Let me make this really clear the reason for my lack of substituting sounds has nothing to do with intelligence. I am smart just see Monday's post. Now I hear myself fine and understand myself 100 percent of the time. Now this sounds contradictory but despite being able to hear all the sounds so I can sound out words I am a bad speller. Not sure why this is but I would like to be a better speller and I want to take a spelling class in the near future. Anyway this might seem that I would be a uphill battle to make me understand reading but it really wasn't.( at least that's not what I remember)
I hated learning phonics for me it was a reminder to me that I was 'different' in fact I remember being told that by my teachers, For parents of kids with articulation delays do not stress phonics. It is helpful to know phonics but it is not required. Model the sounds read to your kids but do not stress hearing the phonics from them. People who are non verbal can still read as well as long as people know how to teach them.
Here is a school that proves this
got image from
chart http://mommyspeechtherapy.com/wp-content/uploads/2010/08/sound_dev_chart.jpg
bookwormhttp://www.sewterific.com/images/BacktoSchool/BTSBookwormLove.jpg
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