Tuesday, October 2, 2012

Jesse

 

 I wish  I could actually have the chance to meet Jesse .  He  has two  vary famous parents and lived  in  boston. That is right folcks Jesse is no longer on this earth.  He died  January  of  2005   in his sleep.  The book is  his life story told from the  perspective of his Mom (Marianne Cooper)


 Jesse  like me  had Cerebral Palsy and it was  peaty severe.  He had to use a wheelchair  , was non-verbel and had  terrible seizes   which  were the thing that ultimately killed  him.    For everything that Jesse  had going against him  he had lots going for him. He had  supportive  parents a normal intelligence  level and a wicked  sense of humor.  He  wrote poetry and   learned  Greek as a high schooner  and  was inclusive education for most of his schooling.  Through the book  readers will get a chance to know Jesse and  how  learn how  amazing  people with Cerebral Palsy are.  If you have not had a chance to read  this book   make sure  you get it. I  enjoyed  it so much and wish that  I could have meet him on this  earth.    It  was  really great  reading  Knowing  Jesse  and   I  hope you will  read it  soon.


  Jesse  was  in  the world CP  montage   that I made last month  for  world  CP day    (September 4)
Stumbo Family Story
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Monday, October 1, 2012

Get it down 31 for 21

 So  today  is the first    day of  October  meaning     its  Disability   Awareness  month. So  in order to celebrate  I  am doing a  31 for  21  in  which I will  blog  every day for  down  syndrome.    Which  will  include  more     Able to go to college  videos  along  with  summer photos.  

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  So why  I am  blogging   for DS  when  I have CP.


 Well  why not  I have    a disability  and  have lots of friends  with DS including LM who   you will hear  about   during the month.  He's  been   my friend  since  I was ten  and although  we do not get together  often  he  I enjoy the  time we  spend  together.      Lately     LM  me and his   "brother"  his  best friend  who also has  an extra chromosome  all hang out  together.


  So   are you  blogging for DS awareness month?   Any  fun stuff  planed  for this month  let me know.  If you are doing some  fun things and  take  photos    I would love to see them you can  post them to my  Facebook page or email   me at azchapman1991@gmail.com .        Who  knows you may  be asked   to write up something about   it to be featured (with your permission) on    the blog which shows the world that  All  people  with disabilities  have   more abilities then disabilities. 

  

Thursday, September 20, 2012

Dear Princess : A disabled older sister's letter to her younger sister upon leaving the house




 Grad  party  June 2012
 Background
    For those of you that  have been  reading  a long time.  My  youngest sister and I do not  get along  that well so  it would  seem that when  she   left for college  I would not   feel soo  sad .

  Thats


 Not  


 True






 So today  my sister is  on a plane   heading for  Oregon  where she  will  be  attending college.  Her major is  undecitead  yet she is  ready to  take off.   Book gal and I will stay  behind   this year as  book gal  will be going to  a  JC  this year and I am  still  at  the same  JC  I was  last semester.






 Dear Princess.

 Halloween 1994   Big Bro ,Princess, Book Gal and  AZ
             As you  reading this you are in Oregon  your new home.  You may feel  happy and exicited   to  be branching out on your own.  I know  college is a big change from high school   just from my experience  but  this is  different     not only are you going to college   you are leaving  the house.   No  just  a house  our  house   our  home that we have shared for the last  18  years.   There is a old video  of us visiting the site  before moving into the house while you were still inside mom's belly.  Now  our house is  bulit  and   it has had many  renivations  done  over the years.  We  have added    hardwood floors  windows     a swing set    which has now been replaced with a swingset.   Theres  a small  garden and our beautiful  California hillside that is our  backyard  in  our small  part of the neighborhood.  Inside  you have moved rooms    the first room that you used to share with our  brother  is now  my  room, yet  I still  remember  your little white bed  the same bed that we  sat on  in this  halloween picture.   Rooms have changed the house  has changed  and grown  just  like you have changed from the baby     in the pumpkin picture   to  a  beautiful duck  who   now  loves the    Pretty Little  Liars.

     It seems  funny to think  that I  am  still here.  But a lot of things about me being the older sister have been funny.      Growing up with developmental disabilities is  hard  but   it must be harder for you  to be the  younger sister of  a  older sister with disabilities. You have  had to become elder, yet be younger then me by age.    You have had  to explain to other s why  I talk funny and     yell so loud  and am  prone to bouts of anxiety. I am sorry that you had to experience these things and become  afraid of my behavior at   times.  To be honest   I  was hoping that    we  would have a better relationship  before you left home, yet  I  know  I am hard to  deal with.  I want you to know that although I have not been the easyiest   sister  to  grow up alongside with  I   love you so much. I hope you enjoy  Oregon and have a great life  you are a special young lady who is  a great motherly figure to your  younger friends.    You are  ready  to be an adult.   I need some time  but  I will  get there.  I love you soooooooo  much.

 much love,

AZ
.


AZ  Big Bro and princess 1994

Thursday, September 6, 2012

Birthday Blues

  So  today is my 21st  b day.  I live in the US which  means that at 21  I could go to  a bar  and  get achole  and   maybe a little  tipsy

  But because I have no friends   it  makes  it  impossible   of course having Facebook  helps  a ton  people from  all over   wishing  me  happy  b day   yet    no one  is  coming later to celebrate  and at  21   family  just   doesn't cut  it.   Oh   Well.... 


 My dream for my  next b day is  having a group  of really  good friends to celebrate  with possibly  a  bf   but   i  think   that is  asking to much.

 Happy  b  Day to me  

Tuesday, September 4, 2012

Its World CP Day



 First off I want to thank all the  fellow self advocates and parents  who  gave  me  some  photos  for the montage/  I kept  moving the deadline  farther and farther.  I loved seeing all  these photos of  everyone.  Please feel  free to share this video  with people  on your own  blogs   its  all about awareness.  This  is  so cool because   people  with  CP finally get a day to raise  awareness and come together  as a community   It is  great to know that   I am not alone in dealing  with CP.   I had soo  much  fun doing this so   I think  its  safe to say that  I will be doing this next  year .    Offline the fun counties as  I have class and    ST and  then    CP  Day  dinner.  If anyone  local  wants to  come  email me  azchapman1991@gmail.com  and    I will  give u  details.  For  now  enjoy the video.













  What did you  think   of the video?  Are  you  guys celebrating  World CP Day   offline?


  Happy  first  annual  World Cerebral Palsy Day






Stumbo Family Story

Sunday, August 26, 2012

Palsy photos

    Hay  guys so September fourth  is World  CP  Awareness day and  to celebrate  I am   having a photo montage   email me a photo     by       next Sunday

 azchapman1991@gmail.com

  I want to make this the  best montage ever  so   please  spread the word.

  The  video will be out  September fourth   so  remember to check  back then
 me summer  2009 Will this  photo  be in the montage ?  Check back September fourth 

Monday, August 13, 2012

Able to go to college episode five: Test Time







           So this was the first test  of the semester ( which is  ironic  considering   next week  is  my  first day  back)



 Anyway





  In  college  I am in   regular  classes( of course)  but because of my disability  I  get to take  my take in a special   place  called   DSPS.

 DSPS  is   a resource  for college students  with disabilities almost every college  has  one.    In my college  I  have  an accommodation form that I  give to the teachers that basically says that I   have a disability and   need  accommodations.  Accommodations  vary   from  person  to person but   for the most part  every student with  a disability will need extended time on test.       At my college extend time on test  comes   with double  time (   a  30 minute test = 1 hour)    or time and a half      does  anyone  know?    I think  I  have double  time. This does not mean that   I  have unlimited  time  cuz  i do not I just have more time to think about  the  test material.  And    there is no cheating allowed







 For this test  I t was on  the human  cell   which    was a hard test but  luckily  I had a study  group meeting at my house so  I studied well. I  got a  B.


 Do you  know the  parts of  our cells 





 images
 video  pic from goggle
 test http://www.bestmastersineducation.com/teaching-to-tests/standardized-tests.jpg
cell http://people.eku.edu/ritchisong/cell1.gif