Yesterday was a bad day

      Most days   I  do not feel  bad about  disabilities  but there are times when I do.   Yesterday  was  one of those  day.

  It started out in class when I asked  someone to  join me  to study  and they said no.    Too make  matters worse   I am  trying to befriend this  guy  and I thought it was  going well , but then his  friend from high school  who hadn't been in class for a while  came back and I could see their  interaction and  realized  that we were  not  friends .


 Then  we  went to the  Oregon Standford  V ball game to  root for the ducks, by the  way  since  Princess  has  started  going there  my  parents have been turned into duck fans  I think they are   growing wings lol.     

 My  first soccer team  G U-6    So cute   

Watching the game it hit me that I play on special olympics,   and thus we do not have   nice uniforms and  for soccer, which  along with basketball and   golf are my favorite  sports. we only have  eight  practices.   We  practice  once a week for  two hours.  That is not a long time.    Regular sports  get  longer seasons.  It seems like   our  seassons   are getting shorter and shorter.    Its not fair.    We   will train for eight weeks and play a tourment  that consist of  two to three games and that's all.     I want more.  When  will Special Olympics  realize that   this  program is the only advenu for  people with disabilities  to play sports.    If  we only  have  eight weeks   couldn't we have  practice  twice a week  for two hours.   Once  week does not allow   athletes  too improve  right.   Just saying.    

Questions

Got any questions for me? will anser them next week

Disabled Democrat

   Disclaimer  before  I  begin .  I am a obama  supporter always have and  always will be. I  have  comment  moderation on  so think before you post.



 So  judging by the title  I am a democrat which means  that  I like Obama.  The best part is   this  is the first   election that I will  vote  in  so it is a big thing  for me.  Now   here is  what I thought of the   debate last night.

   Mitt Romney
 "My own view, by the way, is I've added to that. I happen to believe — I want the kids that are getting federal dollars from IDEA or — or Title I — these are disabled kids or — or poor kids or — or lower-income kids, rather. I want them to be able to go to the school of their choice. So all federal funds, instead of going to the — to the state or to the school district, I'd have go — if you will, follow the child and let the parent and the child decide where to send their — their — their student."

  Key 
    This  /   that  :is what i will    discuss



   Idea  or title one 

    Why  are  these  two  programs  lumped   together     IDEA  are disabled  kids     Title one is  low  income  kids.     Two  seprate   programs    not all disabled  kids are  title one  and  vice  vs.  Take me  I had  an  IEP  all throughout schooling and   both my parents are   DRs



       Kids  with disabilities  need to go to  neighborhood school. They  should not have to    chose  what program  is  better.    If the  kid is  five then  and there  is a elementary school  down the block then    they  should  go to the school down the block.  If same  student   is  15 then  they should go to the high school across the street.  We do not  need  a classes for disabled students  to spend  their  majority of their day.  All   schools   need  to be inclusive it should not be a fight  because  you  know  what   the message  is when  you isolate them is that    " they  can't learn"    they  need  to be taught    life skills. Its   baby sitting.  States  run their policies differently in  each state.  CA    is one of the worst.  We need all public schools  to be able to teach all    students,   this includes students with intellectual disabilities      this   guy   says  it best,

Dentist tips for people with CP

                     So   I have  been  going to the dentist  for a while  now.  As of  right  now,  I go to a pediatric dentist.  Its  pretty cool   u  can  play  videogames or  watch movies   while getting your teeth cleaned.  Its  a  great place to go  however  CP  makes  it  a  little  bit hard.   So  I thought  I  give you  guys   an insiders view of going to the dentist  With  CP.

  Disclaimer:  CP  effects  every  kid  differently  so  while  going to the dentist is  hard for me   it may not be hard for someone  with  CP whose mouth  is  not  effected.

 Now  I am  pretty  mobile   so    getting into the chair is not a big  deal  for me  but  i think  someone who  has more  mobily    challenges with CP  may need  help  getting into the dentist chair.


    Open   up

  Ok so  opening  up is  really  hard  for me because of  CP.  My  mussels  are  really tight  so   its  easier for me to keep my  jaw closed. Which  means talking and   opening up wide is  a challenge.  I also have  a bite  reflex which means I  may  bite  down  if  someone  puts something near my  mouth.

  A  solution

  a bite block_ I do not like using this

    Not having me keep my mouth open for a long period of time.  So when it comes to flossing my  teeth which I do not  do a lot   more in another post   The dentist may  floss a couple of teeth then  let me close  my mouth before reaping it.  As  I have gotten  older I have tried  to  keep my mouth open for long periods of time I can do it  but  it  takes a lot of effort.

  X-rays

X-rays are  really hard for me to do  so  sometimes I need to   go under  ( if I have a cavity)  so they  take them then




  So   parents  self advocates  how is the dentist for you  or your child.  Do you have any tips to share?








 photos from

http://www.picturesof.net/_images_300/A_Woman_Dentist_Examining_a_Woman_Patient_Royalty_Free_Clipart_Picture_090819-002470-733053.jpg

http://classroomclipart.com/images/gallery/Clipart/Dental/patient-dental-xray-exam.jpg

Jesse

 

 I wish  I could actually have the chance to meet Jesse .  He  has two  vary famous parents and lived  in  boston. That is right folcks Jesse is no longer on this earth.  He died  January  of  2005   in his sleep.  The book is  his life story told from the  perspective of his Mom (Marianne Cooper)


 Jesse  like me  had Cerebral Palsy and it was  peaty severe.  He had to use a wheelchair  , was non-verbel and had  terrible seizes   which  were the thing that ultimately killed  him.    For everything that Jesse  had going against him  he had lots going for him. He had  supportive  parents a normal intelligence  level and a wicked  sense of humor.  He  wrote poetry and   learned  Greek as a high schooner  and  was inclusive education for most of his schooling.  Through the book  readers will get a chance to know Jesse and  how  learn how  amazing  people with Cerebral Palsy are.  If you have not had a chance to read  this book   make sure  you get it. I  enjoyed  it so much and wish that  I could have meet him on this  earth.    It  was  really great  reading  Knowing  Jesse  and   I  hope you will  read it  soon.


  Jesse  was  in  the world CP  montage   that I made last month  for  world  CP day    (September 4)

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Get it down 31 for 21

 So  today  is the first    day of  October  meaning     its  Disability   Awareness  month. So  in order to celebrate  I  am doing a  31 for  21  in  which I will  blog  every day for  down  syndrome.    Which  will  include  more     Able to go to college  videos  along  with  summer photos.  

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  So why  I am  blogging   for DS  when  I have CP.


 Well  why not  I have    a disability  and  have lots of friends  with DS including LM who   you will hear  about   during the month.  He's  been   my friend  since  I was ten  and although  we do not get together  often  he  I enjoy the  time we  spend  together.      Lately     LM  me and his   "brother"  his  best friend  who also has  an extra chromosome  all hang out  together.


  So   are you  blogging for DS awareness month?   Any  fun stuff  planed  for this month  let me know.  If you are doing some  fun things and  take  photos    I would love to see them you can  post them to my  Facebook page or email   me at azchapman1991@gmail.com .        Who  knows you may  be asked   to write up something about   it to be featured (with your permission) on    the blog which shows the world that  All  people  with disabilities  have   more abilities then disabilities. 

  

Dear Princess : A disabled older sister's letter to her younger sister upon leaving the house

 Grad  party  June 2012

 Background
    For those of you that  have been  reading  a long time.  My  youngest sister and I do not  get along  that well so  it would  seem that when  she   left for college  I would not   feel soo  sad .

  Thats

 Not  

 True

 So today  my sister is  on a plane   heading for  Oregon  where she  will  be  attending college.  Her major is  undecitead  yet she is  ready to  take off.   Book gal and I will stay  behind   this year as  book gal  will be going to  a  JC  this year and I am  still  at  the same  JC  I was  last semester.






 Dear Princess.

 Halloween 1994   Big Bro ,Princess, Book Gal and  AZ

             As you  reading this you are in Oregon  your new home.  You may feel  happy and exicited   to  be branching out on your own.  I know  college is a big change from high school   just from my experience  but  this is  different     not only are you going to college   you are leaving  the house.   No  just  a house  our  house   our  home that we have shared for the last  18  years.   There is a old video  of us visiting the site  before moving into the house while you were still inside mom's belly.  Now  our house is  bulit  and   it has had many  renivations  done  over the years.  We  have added    hardwood floors  windows     a swing set    which has now been replaced with a swingset.   Theres  a small  garden and our beautiful  California hillside that is our  backyard  in  our small  part of the neighborhood.  Inside  you have moved rooms    the first room that you used to share with our  brother  is now  my  room, yet  I still  remember  your little white bed  the same bed that we  sat on  in this  halloween picture.   Rooms have changed the house  has changed  and grown  just  like you have changed from the baby     in the pumpkin picture   to  a  beautiful duck  who   now  loves the    Pretty Little  Liars.

     It seems  funny to think  that I  am  still here.  But a lot of things about me being the older sister have been funny.      Growing up with developmental disabilities is  hard  but   it must be harder for you  to be the  younger sister of  a  older sister with disabilities. You have  had to become elder, yet be younger then me by age.    You have had  to explain to other s why  I talk funny and     yell so loud  and am  prone to bouts of anxiety. I am sorry that you had to experience these things and become  afraid of my behavior at   times.  To be honest   I  was hoping that    we  would have a better relationship  before you left home, yet  I  know  I am hard to  deal with.  I want you to know that although I have not been the easyiest   sister  to  grow up alongside with  I   love you so much. I hope you enjoy  Oregon and have a great life  you are a special young lady who is  a great motherly figure to your  younger friends.    You are  ready  to be an adult.   I need some time  but  I will  get there.  I love you soooooooo  much.

 much love,

AZ
.

AZ  Big Bro and princess 1994