Monday, October 8, 2012

Another good movie gets ruined





  So today I went with my dad and  brother  to see trouble with a curve.  It was a good  movie   wait let me  repress that  it  was  almost a  good  movie but then someone  used the R word   and  it was not a teachable  moment.     I think this   is  the second movie this  year that has  used it when will hollywood  ever lean.     Why do people seem to   think that its  still ok to use the r word.  I know  a lot of  people with  intellectual disabilities and that word hurts.  It  isn't ok.      What harm will a  harmless movie do  you ask  well     people  see it  and think its  ok.  It  isn't OK. Treat others the same  way  you like to be treated.     People with intellectual disabilities  have  feelings  and  they can  be hurt  by   saying  this word.  It is not  Ok.      I know  of  some little  guys with intellectual disabilities  who love  baseball  but  this  movie  will not  be good for them to see because of   a couple of lines of dialogue.



  got image f rom here http://www.publicimagesnetwork.org/Disable%20the%20Label/DISABLE_THE_LABEL-R-word_Hurts.jpg

Sunday, October 7, 2012

21 things I want to do in life

 I am 21.  I  have my  whole life ahead of me .  Here are 21 things that I want to do   in my life    

 21things I want to do 
   1 go to dc 
2   vist new england 
3     coach  high school soccer team
  4  Be a mom  
5 date 
6  go on a zip line 
 7 Live in a place that snows 
8 make  true friends 
9 write a book
10   get   my  teaching  credential
11  graduate college.
12    go to an indoor waterpark
13 teach  high school students with  disabilities while allowing them  to  attend  general ed   academic classes
14  make a documentary
15 learn to drive 
 16  go  to an  NBA game
17 go  camping
18  adopt a kid with a disability  from  EE
19   meet   Tim Shriver 
20     try  surfing  
  21  visit all the   states 

  What are   21  things u  want to?


 ps did u  know   Down  Syndrome happemds when their are  three copies of the  21st chromosome

Saturday, October 6, 2012

Yesterday was a bad day

      Most days   I  do not feel  bad about  disabilities  but there are times when I do.   Yesterday  was  one of those  day.

  It started out in class when I asked  someone to  join me  to study  and they said no.    Too make  matters worse   I am  trying to befriend this  guy  and I thought it was  going well , but then his  friend from high school  who hadn't been in class for a while  came back and I could see their  interaction and  realized  that we were  not  friends .


 Then  we  went to the  Oregon Standford  V ball game to  root for the ducks, by the  way  since  Princess  has  started  going there  my  parents have been turned into duck fans  I think they are   growing wings lol.     
 My  first soccer team  G U-6    So cute   
Watching the game it hit me that I play on special olympics,   and thus we do not have   nice uniforms and  for soccer, which  along with basketball and   golf are my favorite  sports. we only have  eight  practices.   We  practice  once a week for  two hours.  That is not a long time.    Regular sports  get  longer seasons.  It seems like   our  seassons   are getting shorter and shorter.    Its not fair.    We   will train for eight weeks and play a tourment  that consist of  two to three games and that's all.     I want more.  When  will Special Olympics  realize that   this  program is the only advenu for  people with disabilities  to play sports.    If  we only  have  eight weeks   couldn't we have  practice  twice a week  for two hours.   Once  week does not allow   athletes  too improve  right.   Just saying.    



Friday, October 5, 2012

Thursday, October 4, 2012

Disabled Democrat

   Disclaimer  before  I  begin .  I am a obama  supporter always have and  always will be. I  have  comment  moderation on  so think before you post.



 So  judging by the title  I am a democrat which means  that  I like Obama.  The best part is   this  is the first   election that I will  vote  in  so it is a big thing  for me.  Now   here is  what I thought of the   debate last night.

   Mitt Romney
 "My own view, by the way, is I've added to that. I happen to believe — I want the kids that are getting federal dollars from IDEA or — or Title I — these are disabled kids or — or poor kids or — or lower-income kids, rather. I want them to be able to go to the school of their choice. So all federal funds, instead of going to the — to the state or to the school district, I'd have go — if you will, follow the child and let the parent and the child decide where to send their — their — their student."

  Key 
    This  /   that  :is what i will    discuss



   Idea  or title one 

    Why  are  these  two  programs  lumped   together     IDEA  are disabled  kids     Title one is  low  income  kids.     Two  seprate   programs    not all disabled  kids are  title one  and  vice  vs.  Take me  I had  an  IEP  all throughout schooling and   both my parents are   DRs



       Kids  with disabilities  need to go to  neighborhood school. They  should not have to    chose  what program  is  better.    If the  kid is  five then  and there  is a elementary school  down the block then    they  should  go to the school down the block.  If same  student   is  15 then  they should go to the high school across the street.  We do not  need  a classes for disabled students  to spend  their  majority of their day.  All   schools   need  to be inclusive it should not be a fight  because  you  know  what   the message  is when  you isolate them is that    " they  can't learn"    they  need  to be taught    life skills. Its   baby sitting.  States  run their policies differently in  each state.  CA    is one of the worst.  We need all public schools  to be able to teach all    students,   this includes students with intellectual disabilities      this   guy   says  it best,


















Wednesday, October 3, 2012

Dentist tips for people with CP

                     So   I have  been  going to the dentist  for a while  now.  As of  right  now,  I go to a pediatric dentist.  Its  pretty cool   u  can  play  videogames or  watch movies   while getting your teeth cleaned.  Its  a  great place to go  however  CP  makes  it  a  little  bit hard.   So  I thought  I  give you  guys   an insiders view of going to the dentist  With  CP.

  Disclaimer:  CP  effects  every  kid  differently  so  while  going to the dentist is  hard for me   it may not be hard for someone  with  CP whose mouth  is  not  effected.

 Now  I am  pretty  mobile   so    getting into the chair is not a big  deal  for me  but  i think  someone who  has more  mobily    challenges with CP  may need  help  getting into the dentist chair.


    Open   up

  Ok so  opening  up is  really  hard  for me because of  CP.  My  mussels  are  really tight  so   its  easier for me to keep my  jaw closed. Which  means talking and   opening up wide is  a challenge.  I also have  a bite  reflex which means I  may  bite  down  if  someone  puts something near my  mouth.

  A  solution

  a bite block_ I do not like using this

    Not having me keep my mouth open for a long period of time.  So when it comes to flossing my  teeth which I do not  do a lot   more in another post   The dentist may  floss a couple of teeth then  let me close  my mouth before reaping it.  As  I have gotten  older I have tried  to  keep my mouth open for long periods of time I can do it  but  it  takes a lot of effort.

  X-rays


X-rays are  really hard for me to do  so  sometimes I need to   go under  ( if I have a cavity)  so they  take them then




  So   parents  self advocates  how is the dentist for you  or your child.  Do you have any tips to share?








 photos from

http://www.picturesof.net/_images_300/A_Woman_Dentist_Examining_a_Woman_Patient_Royalty_Free_Clipart_Picture_090819-002470-733053.jpg

http://classroomclipart.com/images/gallery/Clipart/Dental/patient-dental-xray-exam.jpg

Tuesday, October 2, 2012

Jesse

 

 I wish  I could actually have the chance to meet Jesse .  He  has two  vary famous parents and lived  in  boston. That is right folcks Jesse is no longer on this earth.  He died  January  of  2005   in his sleep.  The book is  his life story told from the  perspective of his Mom (Marianne Cooper)


 Jesse  like me  had Cerebral Palsy and it was  peaty severe.  He had to use a wheelchair  , was non-verbel and had  terrible seizes   which  were the thing that ultimately killed  him.    For everything that Jesse  had going against him  he had lots going for him. He had  supportive  parents a normal intelligence  level and a wicked  sense of humor.  He  wrote poetry and   learned  Greek as a high schooner  and  was inclusive education for most of his schooling.  Through the book  readers will get a chance to know Jesse and  how  learn how  amazing  people with Cerebral Palsy are.  If you have not had a chance to read  this book   make sure  you get it. I  enjoyed  it so much and wish that  I could have meet him on this  earth.    It  was  really great  reading  Knowing  Jesse  and   I  hope you will  read it  soon.


  Jesse  was  in  the world CP  montage   that I made last month  for  world  CP day    (September 4)
Stumbo Family Story
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