Showing posts with label Get it Down 2010. Show all posts
Showing posts with label Get it Down 2010. Show all posts

Sunday, October 31, 2010

Happy Halloween



  Today marks the last day of  Get it down 31 for 21 and I am proud to say I posted every day.  I am glad I made it    and glade  not to have to worry about posting every day.   Happy Halloween here are some pics from  past costumes  I am nothing this  year   it shows that I am  growing up.


Halloween 1991
Halloween 1999
Halloween  2000

Halloween 2009


              




Saturday, October 30, 2010

A new type of awaireness

  Breast Cancer   awareness month is  October as  well. This is important to me because my mom's cousin  C died of  cancer  2003.  my mom  used to have  her family over  around the holidays  and I enjoyed that because  her husband used to play video game which was fun.   She left behind  two kids  a  girl and  a boy   who now live with her husband. i have seen them once  a couple of years before.    I wish she was still alive.

Friday, October 29, 2010

sorry guys but he was not the first

 Chris Bruck   may have been the first actor with Down syndome  but  do  u know he was  not the first person to be on prime time tv. The first was a women  with Cerebrail Palsey Geri Jewell . She  was on the  tv show called  the facts of life.   Here is a  clip of her work   on the show


Thursday, October 28, 2010

No school

   Tomorrow I do not have school   I  normally have one class on friday  but the instructor is sick .  I hope  he gets better   but I am  happy for the day off. 

Monday, October 25, 2010

Back in the Day

  I loved that sweat shirt  u can not tell but it had  woody and buzz on it

Sunday, October 24, 2010

A chunk of chapter three

   the backround is Alixes  Bounding  a teenager  with CP   is now a freshman at Algond high school in Medowlake  which is a town in the unitiied states. She wants to try out  for  her high school's basketball team.


Jim Stickler    was  what you  call a   highly  respectable  coach .   His  teams  were the ones that won championships and  his  players were the ones  who got  the scholarships   for collage  and  news  reports  in the   Meadowlake    times newspaper.  He   was a   alumina of    Algon High school and in his day  been  MVP in  football baseball and basketball, now  as a  coach and  head of the athletic department   he  wanted to  keep the   Algon high school  altheic  program  to the same standards  as     they had when he  went there  in his  youth.  This  year  he   was drafted  to coach the  ladies  varisty basketball team  as well as oversee the  freshman and sophomore  basketball  progam   too.

 Tryouts  were   the week after Halloween  on  a  Wednesday.   On that Wednesday  he was assigned to  cheek  in the    junior varsity  players.  So far it seemed  to  go well a  lot of the freshman  girls    had some  height and    fairly  good academic records, Jim had spent the   Tuesday night  looking over the  players   grade  as  was  standard  proitcall for      players  to sign up to clear  grades   before trying  out . It  seemed to be  turning out to   be a successful  normal  season of basketball  for the  Algon   Saber  Tooth  tigers     that was  until   a freshman  showed   up.

  She  was   skinny and     tall   jim would have  guessed that she was around  58  with honey colored  skin and  a  orange  t shirt    shorts and shoes.  A  promiseing  player  indeed     Jim tought  as  he asked “Name,”


“Alecus,”  Jim header  her  say  with doorl. His heart sunk    the girl  was not promising    she    seemed  to Jim to have belonged   in the special  education classes  , a sped  student.


 Sorry   what  Jim said and    strained  to decipher the  name from the  anomaly  speech


Althus       said the girl 

Athena
  No    the  girl  yelled and   tried again with little  success.

       Do u  guys  want more   before the end of the month  let me know

Saturday, October 23, 2010

Calling all readers

   So today was the day of our local Buddy walk that I  again did not  make.    I am hoping that  I will  not have to be an odd one at a  walk   because  I am hopping to plain  a Cerebral Palsy walk  this March ( march is Cp Awareness month)     I have a place in mind  but I need your help esp  if u  help  organize a Buddy walk.  How do u do it     A good  place to start  anything  please leave comments  so  I can get this thing rolling

Friday, October 22, 2010

Smarter then I Speak


What if I told you that you had to watch people kick a ball back and forth for an hour and a half? Would you agree to   it?  Would you enjoy it?   It sounds rather boring but millions   of people worldwide enjoy watching soccer.    The difference is that the kicking of a ball has purpose    in game of soccer compared to watching people kicks balls back and fourth. The purpose is a goal that the players are trying to achieve   for there team.     Similarly, in life goals   severe as a purpose outside of the victory that is felt upon achieving them.
      Goals are different    for different people   in various aspects in their lives.   One of my biggest goals in life is improving the clarity in the articulation of my speech.   Speech has never been something that I could have taken for granted as a result of me being diagnosed as a toddler with Cerebral Palsy. Cerebral Palsy   is the result of having   a lack of oxygen before, shortly after, or during birth.     Because     I was born prematurely, the   likely hood of me getting this chronic illness increased.    As an infant using my mouth mussels    to eat was a challenge and to this day my speech is unclear and I   always bite on my drinking straws.  I cannot say all the sounds fluidly in the English language but understand everything that is said to me.  This is really frustrating for me   and to make matters worse I am my hardest critic. To me everyone’s speech sounds clearer than my even those with disabilities.   Due to the reasons above my speech clarity is a goal that I have.
             Goals are the gas in a person’s engine, in that they provide the drive for people to work hard.   When I was little ,I thought that if I worked really hard that when I was an adult I would speak normally.   I did not mind speech therapy back than.  I went and worked hard and did things that the speech teachers asked me to do. I tried so  many techniques from lying on my back trying hard to say sounds to having stuff   in my mouth to   work to strengthen my mouth mussels. I did not mind working hard because my thinking was   I had to do this in order to speak like   grown ups do. Looking back on it, I would say that it was hard work   but   I complied   with the grueling work and stuck to it in hopes of  achieving my goal. My fuel  was my goal and with it I  forged  ahead with speech therapy. 
               Just like in cars, without goals   there is no inner fuel; thus there is a lack of motivation to work  hard  . In seventh grade my speech teacher told me that I   would always have unclear speech do to Cerebral Palsy.    The speech teacher and I got along well   and I trusted her so I took the information   at face value.   The remainder years I had at speech therapy though the school system   were a waste of  time for me and the speech pathologist. I no longer   had a goal   so the work became extremely frustrating. During my junior year of high school ,I stopped going to speech therapy for a while.   I had a class that period that I went to anyway so I went there instead of therapy.   I was taking   Advance Placement  United States history from a guy who had a hard  time understanding ,me and I   once  I  told him that I had left speech he got vary concerned for me and encouraged   me to return to speech.   So I was back to sitting across   from   my speech pathologist    understanding to put my tongue in the roof of my mouth and being unsuccessful. I hated speech therapy after seventh grade because the light that was supposed to be at the end of the tunnel, me speaking clearly was no longer in site   so the work became grueling and painful for me to sit though.   On the rare occasions that I did work hard the vain mussels in my neck popped out , yet   it seemed pointless  because my speech would always be gibberish. It became a chore to go to speech therapy because  I no longer had a goal.                    
              Goals  are necessary for  people to  make hard  work meaningful.  By the end of the  fall 2010 semester I want  to  achieve   the  goal of  getting into speech therapy and working  diligently  at improving the articulation of my speech.  I want  to  do this by  enrolling at  Peninsula  Associates  , a speech center walking distance from my house. A big barrier to achieving this goal will be  being able  to afford the  assessment  and  speech lessons.  It  may also be  hard to focus if I  have  a lot of homework   or other  stuff in my  mind.   I can get around the finical barriers by getting SSI  or  getting my insurance pay for the  therapy. As far as the attention barrier I can try to  get focus as  I am  in the waiting room, and plan ahead by keeping up to date with my school assignments.  Now  that I know  speaking clearly can  be a goal to me,   recent research  shows the brain in more plastic than my seventh grade teacher  thought,  I think I can improve the diction in my speech so that   I could work  in any profession  I chose  ,as well as being a advocate   for  people with disabilities.   

Wednesday, October 20, 2010

Sad soccer story

  As  some of u know this year I  am playing soccer  for the local special olympics. it has not been working out so great. 

See there are two teams  on the pratice site  the  A team and the b team. I have been playing ayso for  a long time on the regular leagues(U6 -u14) I also watch my high school  soccer games and I know a thing or too about  soccer. I would classify my slef as intermedite to  pre advance  in terms of soccer skills. The coach does not so she put on the  lower team  the first pratice   with the hope that  if I coraporated I would be on the A team.   

Well yesterday  the head coach was'nt at pratice  so two nice men filled in. I did my drills and stuff and come scrimidge  I  tried to seneak over to play. The others got soo mad  telling  me i was not on the  team.  Most of them are friends with DD and it did not help that two weeks eariler  at bowlingI  got mad with DD and put  mutiplea ball in the guter  and  yesterday's pratice was the first  time  I had  seen everyone and  some new people got  anoyed with me.   Let me tell you right now  people with intelicual disablities can remerber bad things.  


 I ended up scrimigeing on the lower  team yesterday and did great got some goals saved some goals  on defesne too. When the coachs called  quits  I headed over to get some soda and some guy told me " Hay,ifyou play on the A team everyone will quit. "


 I got mad  partly cause I was caught off guard .  I had played on the b team  I was playing good. I started yelling i do not understand. Me and the guy have gotten along well up until this point. 

Tuesday, October 19, 2010

Monday, October 18, 2010

Wendy on wheels


so much for the Nick series. this is a better  series  considering  it is  in print already. Will nick ever become  a series I do not know now that Wendy is here  I doubt it,

Sunday, October 17, 2010

Big Wave the resson why it's needed (I spy az and her enimies too)




can u spot  me  in it  enjoy the  video  pics are  taken  from  the last  two  years .  U  can  spot  E as well   do  u  know  what one he is?

Saturday, October 16, 2010

Remeber this

time 12:20 Febuary9 2010
place English classroom belonging to Mr T who is an general ed teacher a bunch of students inculcating AZ
who has NVLD and CP making group work and public speaking hard for her to do.

Mr.T was talking to his students about Orthel
lo and to start out the unit he was taking a abbreviated script for groups of three to act out. Mr.T knows how hard group work is for Az so he says that she is Director and has to find out the tone of the play. AZ loves the idea because he told her it is kinda like AP work( he also teaches to Senior AP- English) and she has always wanted to take. About ten minutes latter the class reconvines and he sits with AZ and togeter watch the play ( a actor who will remain nameless) got near the director but he moved back much to AZ's delight) Then Mr T asks AZ a question and she got it wrong but it dose not matter what matters is that Inclusion happened and she was one happy girl at lunchtime. Mr.T is genius





Why did it work:
Mr .T knows that social stuff are hard for AZ & IT always ends in frustration of monopolizing the
project. He also knows that Az loves a challenge and wishes that she was in AP. He put 2 together took the script and wrote tone on it in certain points for her to do while the others were practicing the same scene. He then helped check her work when she was done at his desks. The result is one happy well ran classroom and a kid who can grin and say that she was an director today and had fun doing a special job.
AZ 8-10-09

Thursday, October 14, 2010

The I Phone family

 Our Family is now an official I phone  family.    Princess got the first  i phone  for Christmas a while back then  Dad ,  and Mom joined  in.   Book gal and laid back athlete  got theirs this past summer.  I had my first full day with it  today. It is sooo coool

Tuesday, October 12, 2010

16 years ago today I started pre school

  The  fall of  1994   marked a  beginning of an  era for  me. You see , due to my CP  I was  eligible for free   pre school  though my school  teacher . The  Key word   is  free  so  off to  pre school I  went.

There  was a catch ,   this  class  was  a SDC class  for kids with  speech disorders. My  teacher, I am  going to call her  Teacher  J , was a  wonderful teacher  who  helped  me out a  lot . I later  met up with Teacher  J   right before    I   started  high school  at  my  Jr.High   graduation party in 2006.   I am  getting ahead of my self  here so  why  don't we   take a  look at  the first entry of my pre school  journal.  This  journal  was   used   as a  communication  between mostly my mom and  teacher J  with input from dad  just to  keep it  interesting.

 please not  [  ] are my commentary. while  the stuff written  like this  outside the[  ] are my  comprehension of  what was  written. Names  are  changed  for privacy reasons.

   Original Date Written    October 12 ,1994. by   teacher  J


 Greetings  AZ's  parents,
         Well we're on our record day. AZ  got off the bus and joined it [ I think she  ment  in]. She  crise especially  in the  early morning requesting, "Ma Ma". In fact she is with  me holding my arm and leg as I write to you.
         Transitional times  seem the most difficult.[to this day this  remains  true] - From one activity to another, classroom  to  playground - classroom to  bathroom. We  chose not to go to  the library today keeping the  routine  constant.Overall she is  adjusting. It's a big  leap for a child. I've  been though it w/ my own  3. We are loving, holding and  caring  for  her.

 Teacher   J

 I  of course   wanted to  share something with my parents as  well so  I drew something  that looks like  this




  This is  from  AZ    teacher J  wrote  above the paper [  I  drew something   similar  but   the  picture  is not  from  me  it is  from  this  site (http://blog.bolandbol.com/wp-content/uploads/2007/05/061215.jpg)]   Mommy and  Daddy  I love  you.

 PS :Perhaps you can send a favorite stuff animal,book or toy ,so she could hold on to it, reminding her of home. think about it!

Monday, October 11, 2010

I am norm

  Back  in  January  when  Mr T  was a  daily  person in my life and   collage was just a word  there  was a  event  that i did  not  get to go  to.   Dan  Habib  (the  flimaker of  Inculdeing Sam)    was nice of  enough  to let me  join in and  help with  what they started at the event.  i have  "met "  so many wonderfull teenagers  who  are also dedicated to  disability advocacy.  

 the  campaign is  I am  norm . In that people with disabilities are normal.    It is  geared  for middle schoolers  For more information   visit here,

  The  birth  of    the project







 My  video  based on  the  I am norm  theme song


  

Sunday, October 10, 2010

Dad's words of wisdom

 " There  will always be evil  in the word, try  not  to  create more of it. " more or less  anyway