Showing posts with label CP. Show all posts
Showing posts with label CP. Show all posts

Thursday, June 7, 2012

Proof of focus

  So  today  I had ST. ( yeah  I know  u  need  able to go college  videos )   and  we  were doing  a  reading  that we got  from  IMOB  about  RJ Mitte , an actor  with CP  who plays  someone with CP   on   Braking  bad.      Today we were working on  breathing and    how to do  it when u  have a  long sentience  without  commas  This  was the sentience.


" RJ Mitte was using acting as a means to build friendship with kids his own age while living in a new city."    


me  taking a break from  writing  summer 2005 


  Now this  is  a hard  one  and  The ST  said that  there were three  easy  pauses  my job   was to discover  them. 


 I  came  up  with   this  


" RJ Mitte was using acting  as a means to build friendship with kids his own age while living in a new city.


       its a  transition  word    i  said 


    The  ST was sooooo Happpy.


  See  not only have I been on Dean's  list  I  remember what  Ms.S  said.

Monday, May 14, 2012

Talking and understanding are not mutally exculsive


                        Lets  say  a genius  who  spoke  Latin  were to come to  the United States.  Now  lets   just say  for the sake of the argument that  there was  no one elese  who spoke  Latin.    Is the  genius  still a  genius.    Of  course  many  people would say   he just  needs    needs to  learn  English.       Well  what if there was  a  person  who  could not speak  at all  and  had  no device,  could he  be  a genius?
`  
It  angers  me as a person living with a speech  delay  when  I hear  someone  who has  no  speech  due to  disabilities,  especially  CP,  and do not have any  device  and  are  placed   as  limited  intellecual  ability.  It  really   angers me    because   the person does not have a  opportunity to  prove  there intellengence one way or the other.  Why am  I pissed  off  let   me  tell you  my story.
 bookgal  princess  and  az We were so cute 






          I was  born   September   1991   a month  prematurely   resulting in mild Cerebral Palsey.  As  a newborn  I could not suck  from a bottle  to well  a feeding tube was  placed  though my thoat so  I could  eat.   When  my parents  took me   home  I  had a  hard  time  breast feeding and my  mom had to pump her milk out  and put it in a bottle.  My  mussles  were soo  weak that   feeding took  forever.




 When  I was a  toddler   I had diffculty communicating. I leaned sign langue  to comincate. I  remeber saying and  signing  craker  in the kitchen.  Useing  signing  I was  able to  express  my wants  and  needs  until my speech   came  along.




 With me and  my  speech  imparment  repeating  words  is   frustrating  espacaly when  no one  understands  me.    I  hear myslef  specaking clearly, My  mind   makes  the ideas  and  the words   that come out   are   fuzzy.   I  rember  saying answers  in class being  told  I was  wrong and   someone said the  same thing  and got it right.      That means that I  got  the anser  right.  


  Now  for me  I have a voice . Its  not  the best  but its  a  voice. As  frustrated  as I must  feel  it must be  ten  times more frustrating  for  people  without a voice.  I feel for those  people  and   can not igmane  being inside  and  not having  a  way to  commicate  and   because of  not being able to comincate  getting  llabled as  worthless.    Having the school system  write  you  off being  isolated  from your peers.  Being  talked to in a high  pitch  voice  every day when  you  are not a  kid. Then  because of  your phiscal limitations  being  labled   as  being as  smart as a  toddler.  That is not  fair  nor is it  right.  I  know  all about  history   understand  spainsh and  english  have a  talent for writing   can  play chess    yet I can not  say the  L  R   K   G sound   esaly.  Does  that  me   not smart  no. Now  igmane   if  i could not talk or  had a device yes  I would not be able  to   write  read and play chess  not because  I   was  not smart  but because i  had  not had  the oppertunites  to  learn.     If  you are reading this and have a child  who can not communicate  my  advice  is   to  go to the ends of the  earth  for your kid, Buy the i pads   the dynvoxs help your  child  find their voice.   If your  the  parent   or  know  someone  whoes  older  who can not commmicate   do the same thing.  The sonner  you  get it the better but do not give up on an older   person in fact you need to get  the information them faster to make up for loss time. In the  meantime  contiue talking to   the person   as  would with   a person as  there  cronolical  age. ( So obsouly  talk  to a baby  like  a baby
 All pepole deves  a chance to connect with others.  It  does not  matter how smart they are everyone  wants  to connect  with  others.    Think about  it  this way   if the person  is  said  to have an intellecual disablity  and you  talk to them about  stuff that  is  to hard for them  then  they it will be  to hard, but if   the child is smart  but has not fond their  voice they will  obseve  it like a sponge.  Please  remeber  speech  is  very  conplex  and hard but   the   spoken word  is   the end result.   The  process  may still be in place.








 









Thursday, March 29, 2012

A message from a PT

       I have had the pleasure  of  knowing Stacey Menz since  fall  2011.    For those of  you who do not know  Stacey is a PT  based   in the same town  that I   grew up  in.  I  wish I had her for  PT when I was younger  because she is really good.  Stacey works  at  Starfish Therapies. I asked her  to  write a post about  CP  and she did  so without further ado here  is the post on  CP





 this  little  guy  will be  the star of a video at the end of the post 
Every person with cerebral palsy looks differently not just in terms of their physical appearance (just like any other person) but also in terms of what they can do really easily and what they have a really hard time doing. This is because it depends on the area of the brain that was affected. Each area controls different parts of the body so it would make sense that an injury in one area of the brain will have a different affect than an injury in a different area of the brain. Despite these differences there are similarities that are important to consider when assisting a person with cerebral palsy to achieve their goals in life, whatever those goals may be.



 Me as a middle schooler with   book gal in   the backround
The similarity I am going to chat about is that for a person with cerebral palsy to learn a new skill whether it is how to walk, how to talk, how to write, etc, it takes a lot of practice. In this way it is no different than someone who is learning how to play the piano or to shoot a basketball or write cursive. All new skills take practice and repetition until they become more second nature. With new skills, each piece of the skill requires conscious thought. Remember the first time you learned to drive a car. You had two hands on the steering wheel, you were sitting upright and barely dared to breath. The radio wasn’t on because it might distract you, and the person who was in the passenger seat wasn’t allowed to so much as whisper. It took all your thought and concentration to move the car out of the driveway and down the road. Now, after countless hours and miles of practice think about all the things you do in the car. I’m sure all of us have at some point and time driven somewhere, parked and thought ‘how did I get here.’ Driving has become automatic and we don’t have to think about every little nuance anymore, unless the conditions change and then we are on higher alert.


 My  mom  me and book gal I did PT when I was this small
This is how learning every movement is for a person with cerebral palsy. Each motion or activity requires constant thought. Nothing is automatic. So not only is going about the day physically exhausting for a person with cerebral palsy because of the extra energy they have to expend to create movement or speech, it can also be mentally exhausting if they have to consciously tell their brain to tell their body each motion and movement.


This is where the practice comes in. The more a person practices an activity the easier it has the potential to become. And, the more the activity is broken down into small pieces and each piece is mastered and then put back together as a whole, the easier the activity has the potential to become. I have seen this in many cases. I have a kiddo where we are working on walking without assistive devices. He is able to do it for short periods but he needs to think about each step and think about his balance after each step. He has a hard time shifting his weight onto one foot so he can lift the other and will often lean out to the side to make this easier, but that then makes keeping his balance harder. So we will take lots of time to practice shifting his weight to one side and then the other while keeping his head and trunk up straight. After we practice that piece he gets to practice walking a short distance and he finds it just a little bit easier to shift his weight, take a step and keep his head and trunk up so that he has an easier time keeping his balance.
Every time a skill is practiced it is reinforcing the pathway that sends the message from the brain to the muscles. The more this road is used, the more efficient it becomes which also helps skills to become more automatic.


I inspire greatness






































The take-away message is that practice and repetition are good. But I also hope you understand how much effort goes into a person with cerebral palsy learning each new skill and movement. Not just the physical effort, but the mental effort. I am amazed every day by the determination and will of the people I work with. They inspire me to work harder. I hope they inspire you.


























Wednesday, March 28, 2012

Raiseing a disabled child is sometimes easier than rasing a adverage child

My mom   my sisters and  me spring 2005

1   I do not need a curfew.  I do not go out that much and if  I  do  its with my parents  so  they do not need  to stay up worrying  when I will be home  on weekends. 

2  There are a lot of people that have helped me  over the years. OT  Therapist PT ST they  have wondered though my life  helping me and  my parents. 

3 Most of the  things I do outside of  the home are  supervised  thus  they  do not have to worry.

4    Sometimes  my sisters tend to think that they  know everything.  I know  I  don't.
 
5 I have never been  to  a house party therefore  I  have never   been around  drugs  

 6 I have  yet to have a boyfriend  so    my dad does not have to worry.
 
 Got  any other ideas? I  want to hear  them  comment below 

Tuesday, March 6, 2012

Funney People with CP part one

                 So   I am  thinking of  doing  a highlight of  famous people with CP  this  month.  Today's  post    is   of      Francesca Martinez               she is a comedian with  CP. She lives  in    the  UK and she is  really  funny.

Tuesday, January 10, 2012

Cerebral Palsy is not hopeless

        I have many  memories  of  watching  60 minutes .  It has been  a tradition that    has    been    happening for a long time in  my household . I loved seeing Andy Rooney   at the  end    and  I am sad that he died.  He  passed away   the  day of my softball  torment  last year.


 So  On  sunday when     I was   on  face book and someone  posted that 60 minutes  would speak  about CP  I   do what  I normally do. I  sneak  into my parent's  room and  watch   TV as was the  case  Sunday  night.  I  really  like  how  60 minutes so far has  portrayed  people  with  disabilities   up  until this  point  but     the piece was a  exception.


    The way   the reporter  talked about  CP painted a   very sad  picture  of   my disability.  The  story starts  out  with   phrases   such as   "hopeless  disease."  Sorry  but   I  have    CP  and no it is  not  hopeless nor a disease, its  a disability.I  invite  anyone  who thinks  that Cp  is  hopeless   to come  spend  some time at my  place.   Laughter  is  a common thing in  my house  and  I  have  played sports gone to school   attend  college.      I  am  really funny .  yes  I have a disability  but  it is not the  end the world.


 This  brings up the  whole point  of the   article. The article talks  about wanting to "cure"  CP and   other disabilities  using  illegal stem sells.   I  find it  wrong because  I have  CP and  I  do not  want to be cure of CP.  It is apart of  who  I  am .     It is not  hopeless  nor is it the end of the world.  My advice to  parents of  kids   with CP is     step  back   take a deep  breath  and do not    go to other countries   to get stem cells  because    having  CP is not that  bad.  As  of    January  2012 stem  cells can not help  Cp   yet    CP is not  hopeless.  I  am  living proof that therapy   and lots  of  love  will do  wonders. For whatever   reason I  have  disabilities    and you  know  what   I am  normal. This  is  my  normal.

Monday, January 2, 2012

Something that has been on my mind since the new year o

      So    we had a  New  Years  day party at my house   yesterday.  I had a great time  ; however    some  one said  something about Dick  Clark


  Dick Clark   and  new years  eve  have been    a  package deal   most of the time since  i  was born.      , It is  only  recently that  I  became aware  of the  person who  has  hosted for a long time   apparently  to  long   for some  people.

 here is  what I heard  by two  people  say about  Dick Clark.

  Dick Clark  should not be  on  tv anymore.  I could not  understand  him.


   First off  Dick  Clark  had a stroke   that caused  his speech to be slurred  but  HE  IS  THE ONE  WHO CAME UP  WITH THE  NEWS  YEAR  EVE.  When  he started  if  ,40 years ago  he  was  abled  body the only thing  that happend  is  he  had  a  stoke.  What would have happend   if  Dick Clark had   the stork  around the time he was born ie  Cp,  Well  back then   his  parents would have been advised to  put him  in a institution  and    the   New  York  new years   thing would have not existed.

 So  here is  my option  on the matter.   Mr.Clark should get to contiue   bringing in the new years as  long as  he wants to. It is  a good   awareness    for people with  strokes.    Having a stroke  should not hinder  anyone  from   having   a  fun   New  Year.  Happy  New  Year  Everyone

Thursday, December 1, 2011

Finally



So   I was  working with boy on a film project.  It is all about  zombies.  In the film  there is a voice over.    I thought  because of the voice over was   the host   who  asked an  question then  answered it  I   thought it be better to have a different   voice   and scene no one was there I  volunteered.   I used Audacity to  record  it but he  thought we  needed  a ' normal  voice aka  not  A  Cerebral Palsy  voice,




  In  class  that day   I  told my  suggestion and the teacher  agreed  but said maybe I could do the lines on  camera. Now let me tell you about this teacher,  They do voice over for a living. They  can do cool things  with  there voice and  have done numerous  voice  over,  Now  for me    with me speaking  gibberish and  all  I get jealous really  jealous.  I  wish  I  could speak as well as they do. 

     Our  film class  is not  specific   special need class, yet for some strange reason we have a  bunch of students with  disabilities. Some of my fellow classmates  are  on the Autism   Spectrum disorder  some have  learning differences  and  one  has Down Syndrome, she is  a funny one  in class and   both  the student and this professor get along  really well.

  Then  there's  me     


    Me  with some  video class  last semester February  2011

  back to the  class.  The  teacher was  talking about  next week.  Now  this  is a media class  so we do not have class every week.   So  I asked  her  something along the lines of   do we  have  a mandatory class next week? 

She did not know what I was saying   none of the other students  knew what I was  saying.    Its  like  running into  a  invisible wall and not  being able to  figure out  whats  blocking it.   I  deiced to leave the class room  cool off and try again.   I talk to the teacher does not   get  it  right away. When she finally  gets it  I say finally  and  she  heard me  correctly and walked off. She thought I was being disrespectful. I was  saying  Finally for me  not  for her



     I  have  been  in school  since August and  the teacher still has a  hard time understanding me.    Yes  I have  CP    NO  it is not her  fault but there  comes a time  when I  know  someone a while  I  kinda hope   I can be  understood.  I  i am looking ahead  to next semester where  I have a professor  who  understands me a little better.  

     If  my  professor  actually end up reading this  ( or anyone dealing with  CP) 

 Understand that   I  want to be able to  speak  clearly
 Not   your  fault  nor  is it mine 
Once  I  get the message  across  I  feel  better  and   may say finally   it is not meant to  be sarcastic.  In  fact if  I   offer to help me  say it  clearly its  in the  moment  Speech  Theaphy.

 This is the first  post  apart of  CP  connection go here to find  out more about  CP and tune   in for the next blog post 
Stumbo Family Story












Wednesday, November 9, 2011

The value of my life

   It all started   on  Monday  night which  is my English  class. Now  i   want to say  i really like this teacher  she is  nice and has  tolerated   taught me two  semesters now. 

  We  are  reading a book  by Toni  Morison called Sula  in the book  a mother  kills  her  son  after  he  comes back  after  fighting  in the  war and  has  a addiction   to  drugs.   After  discussing this  fact   the  teacher asked us  to  write of all the ways  it was  moral  or immoral  for  the character to kill her son.   After writing stuff down   we discussed it  and  someone said  it was  ok to kill  her  son  because   he can not  take  care of himself.


    It  hit me like a fist   I am   20 years old and  still live at home.  Many  people with disabilities  spend their  adult lives  under supervision of  others.      Dose  this mean that  we all  should die.   I asked the teacher and told her  to  erase the  point that  it was invalid  yet  she left it  up there.     I  know  the character was once  able bodied  and    had  regressed to  a infant level but   that sould not mean death  right.   I  voiced  my option  and ended class on a high  note with laughter



 Tuesday:  I  went   to an  online  support group for people with CP. ( IF  you  want to know  what group   message me  below)  I  then saw this  link to a research  of  scientist  trying to stop  brain damage  which results in  CP.    Now  i am  100 percent  against that  abortion  because  of  disabilities is wrong and   i am not supper religious.  This  is  not  right  what  they are trying to do to my disability.    Why  used the word  damage  or  broken.    I am not broken  because   of my disabilities.  I  have speech  differences  and  movement differences and   behavior differences, yet  i am not  broken  far  from it. 
  As a  young person  i am   trying to find  my place in the world and   how  is  anyone with disabilities   supposed to develop  good self  esteem  if   scientist  are  saying that   I   was a mistake that   should   be  avoidable with science .  Having a disability  is  a part  of me  I do not  know differently.  Do  I  wonder what its like  not to have a disability?    sometimes  yes.   Would  I  want a cure for  CP?No  way.   I know  I do not  know what it feels   like not to have a disability but  come  on  guys  you  mean to tell me that it the best thing in the world doesn't   everyone have problems.  struggles. 
I wish  if science was  being done to help  people with disabilities   speak, move  learn   easier instead  of  abortion.    I wish people  without  disabilities  would stop lowing  the achievement  bar  for us.     that would make a  bigger difference.

      What do u all think




Saturday, October 29, 2011

Having Cerebral Palsy is not the end of the world

         

Me at  the Bridge School concert 
      I  have lived  with  CP for  two decades  now.    It was  something I   was born  with.      When  I was diagnosed  as a toddler  with  it  my life did not end.      My  mom sometimes wonders   what  i be doing  if  I did not have  CP collage wise  and  I  told  her   I  might  have still  wound  up in  Community  collage  nothing wrong with that.     Someone apologized  to me   when  I  told her I have  CP. There is nothing to feel sorry  for  I am  not  broken  I  still have  feelings /fears. (No    I am not always  happy   )   Having  CP  does not make me less  of a person.     




  Does  CP  make it hard for me to talk  yes   Does it make   hard   for me  to play sports?  yes.  Does it make my handwriting  bad  yes .    Is it frustrating  at  times  yes.    Isn't  frustration apart of  life  yes.


 I think  having  CP has  made  me appreciate the little things in life. For example  if  I see a dragonfly  I  will watch  it for a while  I  took this pic last fall  of a inchworm.     This does not mean  I have a  intellectual disablity, I  did  get an  88 on  a statics test.  Things come a lot harder  for me   simply  means  that i get to  celebrate  things  more.  I am not a optimistic  person, yet  when it comes to  CP   I  do not feel  like it is the worst thing that has  happend to me ( in fact it is the easier then   OCD which  is  not lifelong)  My  view on life  may be different  then others peoples  but     all I know   is this  if  I had a chance to  be average I would do it for a day, yet I would want to go back to being me  Cp  and all.    










   A  penny for your thoughts 

Monday, July 25, 2011

The Cornish Family: My first interview


  The  Cornish Family
  

   I  am  very happy to  have   Meredith Cornish  who  blogs  at   Cornish  Adoption Journey  to   share  a l little  about her  family.

 AZ :   How old are your kids?   What are there disabilities?   and how did they  join your  family?
 Aleksa (8)  
Meredith: Our oldest two are both 8 right now. Aleksa was adopted 6 months ago from Ukraine and will be 9 in October. Emma was adopted at 5, also from Ukraine, and will be 9 in February.Both the oldest girls have Down syndrome.Emma also has Autism and Cerebral Palsy. Next is Kristopher, our biological 7 year old. He's "typical" and we call him our "biggest" even tho he's no longer our oldest.Wesley is 6 and has spastic quadriplegic CP. He was adopted 6 months ago. Wesley is also visually impaired and is considered legally blind.Brianna is 5, our biological daughter with Down syndrome.James will be 5 in August and was adopted from foster care. He joined our home in May 2010, a year ago, but his adoption wasn't finalized until September 2010. 
 James (4)
Micah will be 5 in September and was also adopted from Ukraine 3 years ago at 18 months old. He has Down syndrome too.








 Lynae(22 months)
And last is Lynae, our typical biological daughter that will be 2 in September, her birthday is 09.09.09.


AZ:Wow that is cool because I turn 20 September 6th.
Meredith:Oh fun :)
AZ: Why did you want to adopt?
 Briana (5).
 Meredith: I have two siblings that my parents adopted from foster care when I was a teen and the second when I was off and married, but adoption has always been a part of my life. Both of my grandmothers spent time in children's homes as well, which is what prompted my parents' decision to adopt.My husband and I were married when my parents adopted the second time, and we've always discussed adoption, so it was a natural course of action for us both the first time, and very much "God prompted" the second two times.When we had Brianna, we got God's "yes" that we could "handle" special needs... since we weren't really sure that we would be able to do it until then.

 Wesley (6)
AZ:Cool.  What resources have you found most useful to helping   you learn  about Cerebral Palsy.?
 Meredith:I used to babysit for a family whose 2 yr old  had CP. She is now 12, and we have continued to be friends (her parents and I). We also find Yahoo groups to be VERY useful, and parents have been the best source of information I've found. The second source would be our blog, when we are able to post our specific issues and find out pretty quick answers, which is priceless

AZ:  Are there any support groups are things similar to the Buddy walk in your area for kids with CP
Emma (8)
Meredith:No support groups that I know of, but I have met another mom of a 12 yr old w/ CP as well that's local and we'e gotten together once now.












Kristopher (7)
 AZ: How aware is Kristaphor about his siblings special needs?
 Meredith:Kristopher knows that the kids have disabilities (except Lynae). To him, it's no big deal. Brianna was born when he was not quite 2 years old, and she's his "always" :) Though the other kids are "more disabled" than Brianna, it isn't a big deal around here :)


AZ:I am a big advocate for inculsion I am on I am norm that fosters inculsion so my next question is what does inculsion look like for each one of your kids.
Meredith: Let's start with the oldest.. Aleksa is only attending school 2-3 days /week this first semester of school, so we have not pushed for inclusion hours for her. Not yet anyway. I'm hoping to add in several morning hours of inclusion for Aleksa nxt semester.Emma is not in any inclusion classes. She doesn't care about other kids, and she is at a very basic learning part now, so she's in a self contained classroom full time.Wesley same as Aleksa. Both of them don't understand much English yet, so the contained classroom isn't bad. The three of them will all be in the same class.Brianna is next, and she is very social and close to grade-level. We really pushed for full inclusion for her, but we weren't able to have the school agree that it would be appropriate. They felt that she was small, shy, and would be run over in a regular classroom. At the end of a 4 1/2 hour IEP, we eventually agreed to have her in the regular kindergarten class for most of the day, with pull out to the class my older kids are in for Math and Reading time each day. James and Micah are both in PreK still. They are in an 90/10 Prek class, which has about 10 kids in it with 1 or 2 "typical" kids along with the rest that have IEPs.Both of them are "aimed for" the self contained classroom because of their behaviors (which really is what keeps Aleksa there as well), but we'll see how this year goes. Micah is really making gains in the behavior area, so we'll see.
Mich (4)

 AZ: Thank you Meredith  For the  interview. this  is the first interview on    my blog.
Meredith:  you're very welcome :) Thanks for choosing me, I'm honored!


 To  read more  about  Meredith  and her  family    visit her  blog    










Sunday, May 1, 2011

Blogging Against Disabilties Day My name is AZ not az

   First off  I want to  say  hi to anyone who  is new to the blog. Thanks  for joining me   for  Blogging Against Disablities  day.  A  little about  me  I am  19 year old  collage  student with CP and other disabilities   i have an  articulation  disorder  as a result of CP I  reside  in  Northern California witch is in the united states .

Blogging Against Disablism Day, May 1st 2011

ok  now  for the post

  I am in collage  like  I mentioned before. it is a community collage    and i am going until I  can transfer to  a  four year, i do not have a intellectual disability people but  apparently not everyone thinks that.

 I want to say first off that the students in my classes  have been great   they treat me as an equal and help me  not  friendship  outside of class , but there has been small talk outside of  class,  which is fine by me as i want to graduate   asap to move to four year.



  there is  a girl  though who gets  on my naves and  the irony of it  I  met her when donating to  some fundraiser to Japan.  She  talked  to me as  I was a baby and  I did not think of anything of it at first.   But then  I  left  my iphone at the booth  and that is when it all started.    They called my Dad   to them that it would be in student  rec room and  my dad of course  told me.

Seeing me  at a table , the girl, who i would say  is  not to much older than me, says in this high pitched  voice  that is  normally used on infants  "oh honey you left your phone in building __ OK  you know where that is ?" Come on  I   am standing near the  building and  I am not a baby.

The  only thing that maybe celebrates  me  from this  girl  is  the fact   that  I  had  a stroke  before  i  was born.   I am  a 19 year old women  after all.  I am  in collage   not kindergarten  why do people assume that disabled  people are automatically kids.  I am not a  baby  I  can hold a baby I was a baby but  that  was  in 1991.   I am a high school  graduate and  one  of the best writers in my class  of students  who  do not have disabilities   so  all  i ask  is for respect  thanks




  my high school graduation picture  taken  late summer 2009

Monday, April 4, 2011

stareing

 please  comment before you leave   
For the longest time I did not see other  stares.  I think this is do to my  nld but my sisters  and parents  notice staring  and if  it  caused  on my offense, such as an outburst which I still have  on occasion, they are  quick to  tell me. last week;however, I noticed staring  two times.

   It started  when an  autistic man  was   acting out at my special Olympics   track practice. There were a group of kids  just  gawking at him and  I told  the  girls that it is not  polite to stare  i do not think  they  understood  me (no  ST  for me yet) but the  coaches  of the soccer team  focused them  back up again and i had to get back to practice.
 Then on Friday  when  I was having a sandwich at this  place near my house.   A  kid was  just  staring at me.  I would  have to guess he  was about ten  years old.    I gave him  a look that told him to leave me be and he did  but then  I wonder  did  I do the right thing? Should  I have told him about Cerebral Palsy and answer  some of his  questions?  I think  I was  taken aback because   up until this  point   I had not recognize staring.  What would you  have done ?


got image  from

http://us.cdn2.123rf.com/168nwm/adamson/adamson1102/adamson110200018.jpg

Friday, March 25, 2011

today is CP Awainess day

     no it was not  the last post but it is today  March 25 2011.

  What  is it CP?   A disability that impacts movement   it is kinda like a stroke.   got any other questions  post them  here and  i will answer them    next week thanks  guys  happy  CP  Day,






  Me  C (in red ) and R February 2011
 


  mini me  2001 in Mexico
 ps  if  u could  keep  me in your thoughts tomorrow because i have surgery  (dental work   for cavistes  thanks   in advance will update u  tomorrow with hopefully good news :)

Wednesday, March 16, 2011

Cerebral Palsy Awairness month part one

 ok  happy  saint  Patricks day. 

  now that  thats  taken care of  i  want to talk about something else   that is  important to me.  I have  Cerebral  palsy and  march  is  CP  awareness  month.     My  CP is  mild   i am  blessed in the fact that I can walk and  talk  somewhat clearly.

But what if   i  couldn't  would i be  considered  smart?   I will never know but  I  want to tell u about a  movie  that  might  shed light on the subject  it is called Certain Proof here is the trailer.


Wednesday, February 23, 2011

what would you do

 This show comes on  abc  Tuesday and Friday nights
   I gotta hand it to What would  you do    for  useing  TV to  teach  people how to be good citizens  which includes   how to treat people with different ablities.   Last night's show  was no exception, on that episode it   showed two  people with disablties ( a little person and a lady in the wheelchair) and  people 's  reactions to them in the suppermakert.     Both of those clips are worth the watch;however, I want to take a look at  the one of the person in a wheelchair

    


  People with disabilities are  not  hopeless  and do not need help all the time.  As I said  earlier people with Disabilities  do  become  adults  and   the public  has to be reminded  of that.  Recently  one of the basketball players  mom(  I play  on the special olympics team)   handled  my money for me  even though I  am able to  handle  my own money.  In that case I did not mind   because  I knew the lady and  i know she meant  no  harm   i  told  her after the fact.   That is why you need to ask people with disablties for help  before you help because  they might  be able to do it themsleves

  please comment before you leave

Thursday, February 17, 2011

If you could walk in my shoes

 From the  TV movie  to kill a mockingbird also a good movie
"You never really understand a person until you consider things from his point of view--until you climb inside of his skin and walk around in it."
To Kill a Mockingbird
Atticus Finch to daughter Scout, Chapter 3

 I loved  reading  To Kill a mockingbird   if u  have not had a chance to  read it  Now to move   mediums from books to   Television









 I am soo happy that this is finally out  I am  thrilled  I got bullied in elementry and middle school, What happened in middle school is below


 
I remember when I was little and my dad told me that "Sticks and Stones can break your bones but words can never hurt you. Well I don't think it is true... Wait let me rephrase that it is . Princess and book gal have a easy cry baby that would me. My dad says that I am too sensitive and tells me to ignore it. That is the bad advice that you can give a victim of bullying disabled or not .Still don't believe me okay here comes a story



In sixth grade my mom and dad through that I should have one class in special education called RSP. it basically is a study hall with a special needs teacher who helps you do the work. Well in Sixth grade I had a guy in my class who always said I was a loner and no one played with me. I told the teacher and she said to ignore it because he was from a bad family and needed attention. Well I never could ignore it and I spent the remainder of my first middle school year yelling at him back and froth.


The school thorough I had behavior problems so in seventh grade I was put into a RSP room with a strict teacher and mean kids. Man did I hate that class. There were three other kids in the class who teased me and like the guy in 6th grade all of them came from middle class families trying to make ends meet. What made it worse was that there was a nice RSP room with good kids who teacher was nice. I also was the only one with my teachers on my RSP teacher case load The nice one had the others.


On Wednesdays were the hardest day of the week. The teacher had meetings that day and we were under supervision of a sub. One peculiar Wednesday a girl said that the entire 7th grade hated me. She was training for a peer helper and the class was talking about me and how much they hated me. My aid talked to me and sat by me during my next class and we talked to the head teacher(Who is a great guy that i had for math the next year) who told me that they had been talking about how to treat someone with a disability and my name came up. Someone did not learn their lesson.

Words do hurt and schools need to be aware of this and help those getting teased and don't tell them to ignore it . Think about it this way if your son/ daughter fell and scarped his/her knee you wipe it up right. Well bullying is like that only the cut is invisible It's a cut to the child self esteem





me and Lauren potter from Glee  she is spearheading the campaign I  am trying to get involved with this campaign