Wednesday, October 3, 2012

Dentist tips for people with CP

                     So   I have  been  going to the dentist  for a while  now.  As of  right  now,  I go to a pediatric dentist.  Its  pretty cool   u  can  play  videogames or  watch movies   while getting your teeth cleaned.  Its  a  great place to go  however  CP  makes  it  a  little  bit hard.   So  I thought  I  give you  guys   an insiders view of going to the dentist  With  CP.

  Disclaimer:  CP  effects  every  kid  differently  so  while  going to the dentist is  hard for me   it may not be hard for someone  with  CP whose mouth  is  not  effected.

 Now  I am  pretty  mobile   so    getting into the chair is not a big  deal  for me  but  i think  someone who  has more  mobily    challenges with CP  may need  help  getting into the dentist chair.


    Open   up

  Ok so  opening  up is  really  hard  for me because of  CP.  My  mussels  are  really tight  so   its  easier for me to keep my  jaw closed. Which  means talking and   opening up wide is  a challenge.  I also have  a bite  reflex which means I  may  bite  down  if  someone  puts something near my  mouth.

  A  solution

  a bite block_ I do not like using this

    Not having me keep my mouth open for a long period of time.  So when it comes to flossing my  teeth which I do not  do a lot   more in another post   The dentist may  floss a couple of teeth then  let me close  my mouth before reaping it.  As  I have gotten  older I have tried  to  keep my mouth open for long periods of time I can do it  but  it  takes a lot of effort.

  X-rays


X-rays are  really hard for me to do  so  sometimes I need to   go under  ( if I have a cavity)  so they  take them then




  So   parents  self advocates  how is the dentist for you  or your child.  Do you have any tips to share?








 photos from

http://www.picturesof.net/_images_300/A_Woman_Dentist_Examining_a_Woman_Patient_Royalty_Free_Clipart_Picture_090819-002470-733053.jpg

http://classroomclipart.com/images/gallery/Clipart/Dental/patient-dental-xray-exam.jpg

Tuesday, October 2, 2012

Jesse

 

 I wish  I could actually have the chance to meet Jesse .  He  has two  vary famous parents and lived  in  boston. That is right folcks Jesse is no longer on this earth.  He died  January  of  2005   in his sleep.  The book is  his life story told from the  perspective of his Mom (Marianne Cooper)


 Jesse  like me  had Cerebral Palsy and it was  peaty severe.  He had to use a wheelchair  , was non-verbel and had  terrible seizes   which  were the thing that ultimately killed  him.    For everything that Jesse  had going against him  he had lots going for him. He had  supportive  parents a normal intelligence  level and a wicked  sense of humor.  He  wrote poetry and   learned  Greek as a high schooner  and  was inclusive education for most of his schooling.  Through the book  readers will get a chance to know Jesse and  how  learn how  amazing  people with Cerebral Palsy are.  If you have not had a chance to read  this book   make sure  you get it. I  enjoyed  it so much and wish that  I could have meet him on this  earth.    It  was  really great  reading  Knowing  Jesse  and   I  hope you will  read it  soon.


  Jesse  was  in  the world CP  montage   that I made last month  for  world  CP day    (September 4)
Stumbo Family Story
Grab This Button

Monday, October 1, 2012

Get it down 31 for 21

 So  today  is the first    day of  October  meaning     its  Disability   Awareness  month. So  in order to celebrate  I  am doing a  31 for  21  in  which I will  blog  every day for  down  syndrome.    Which  will  include  more     Able to go to college  videos  along  with  summer photos.  

Grab This Button

  So why  I am  blogging   for DS  when  I have CP.


 Well  why not  I have    a disability  and  have lots of friends  with DS including LM who   you will hear  about   during the month.  He's  been   my friend  since  I was ten  and although  we do not get together  often  he  I enjoy the  time we  spend  together.      Lately     LM  me and his   "brother"  his  best friend  who also has  an extra chromosome  all hang out  together.


  So   are you  blogging for DS awareness month?   Any  fun stuff  planed  for this month  let me know.  If you are doing some  fun things and  take  photos    I would love to see them you can  post them to my  Facebook page or email   me at azchapman1991@gmail.com .        Who  knows you may  be asked   to write up something about   it to be featured (with your permission) on    the blog which shows the world that  All  people  with disabilities  have   more abilities then disabilities. 

  

Thursday, September 20, 2012

Dear Princess : A disabled older sister's letter to her younger sister upon leaving the house




 Grad  party  June 2012
 Background
    For those of you that  have been  reading  a long time.  My  youngest sister and I do not  get along  that well so  it would  seem that when  she   left for college  I would not   feel soo  sad .

  Thats


 Not  


 True






 So today  my sister is  on a plane   heading for  Oregon  where she  will  be  attending college.  Her major is  undecitead  yet she is  ready to  take off.   Book gal and I will stay  behind   this year as  book gal  will be going to  a  JC  this year and I am  still  at  the same  JC  I was  last semester.






 Dear Princess.

 Halloween 1994   Big Bro ,Princess, Book Gal and  AZ
             As you  reading this you are in Oregon  your new home.  You may feel  happy and exicited   to  be branching out on your own.  I know  college is a big change from high school   just from my experience  but  this is  different     not only are you going to college   you are leaving  the house.   No  just  a house  our  house   our  home that we have shared for the last  18  years.   There is a old video  of us visiting the site  before moving into the house while you were still inside mom's belly.  Now  our house is  bulit  and   it has had many  renivations  done  over the years.  We  have added    hardwood floors  windows     a swing set    which has now been replaced with a swingset.   Theres  a small  garden and our beautiful  California hillside that is our  backyard  in  our small  part of the neighborhood.  Inside  you have moved rooms    the first room that you used to share with our  brother  is now  my  room, yet  I still  remember  your little white bed  the same bed that we  sat on  in this  halloween picture.   Rooms have changed the house  has changed  and grown  just  like you have changed from the baby     in the pumpkin picture   to  a  beautiful duck  who   now  loves the    Pretty Little  Liars.

     It seems  funny to think  that I  am  still here.  But a lot of things about me being the older sister have been funny.      Growing up with developmental disabilities is  hard  but   it must be harder for you  to be the  younger sister of  a  older sister with disabilities. You have  had to become elder, yet be younger then me by age.    You have had  to explain to other s why  I talk funny and     yell so loud  and am  prone to bouts of anxiety. I am sorry that you had to experience these things and become  afraid of my behavior at   times.  To be honest   I  was hoping that    we  would have a better relationship  before you left home, yet  I  know  I am hard to  deal with.  I want you to know that although I have not been the easyiest   sister  to  grow up alongside with  I   love you so much. I hope you enjoy  Oregon and have a great life  you are a special young lady who is  a great motherly figure to your  younger friends.    You are  ready  to be an adult.   I need some time  but  I will  get there.  I love you soooooooo  much.

 much love,

AZ
.


AZ  Big Bro and princess 1994

Thursday, September 6, 2012

Birthday Blues

  So  today is my 21st  b day.  I live in the US which  means that at 21  I could go to  a bar  and  get achole  and   maybe a little  tipsy

  But because I have no friends   it  makes  it  impossible   of course having Facebook  helps  a ton  people from  all over   wishing  me  happy  b day   yet    no one  is  coming later to celebrate  and at  21   family  just   doesn't cut  it.   Oh   Well.... 


 My dream for my  next b day is  having a group  of really  good friends to celebrate  with possibly  a  bf   but   i  think   that is  asking to much.

 Happy  b  Day to me  

Tuesday, September 4, 2012

Its World CP Day



 First off I want to thank all the  fellow self advocates and parents  who  gave  me  some  photos  for the montage/  I kept  moving the deadline  farther and farther.  I loved seeing all  these photos of  everyone.  Please feel  free to share this video  with people  on your own  blogs   its  all about awareness.  This  is  so cool because   people  with  CP finally get a day to raise  awareness and come together  as a community   It is  great to know that   I am not alone in dealing  with CP.   I had soo  much  fun doing this so   I think  its  safe to say that  I will be doing this next  year .    Offline the fun counties as  I have class and    ST and  then    CP  Day  dinner.  If anyone  local  wants to  come  email me  azchapman1991@gmail.com  and    I will  give u  details.  For  now  enjoy the video.













  What did you  think   of the video?  Are  you  guys celebrating  World CP Day   offline?


  Happy  first  annual  World Cerebral Palsy Day






Stumbo Family Story

Sunday, August 26, 2012

Palsy photos

    Hay  guys so September fourth  is World  CP  Awareness day and  to celebrate  I am   having a photo montage   email me a photo     by       next Sunday

 azchapman1991@gmail.com

  I want to make this the  best montage ever  so   please  spread the word.

  The  video will be out  September fourth   so  remember to check  back then
 me summer  2009 Will this  photo  be in the montage ?  Check back September fourth 

Monday, August 13, 2012

Able to go to college episode five: Test Time







           So this was the first test  of the semester ( which is  ironic  considering   next week  is  my  first day  back)



 Anyway





  In  college  I am in   regular  classes( of course)  but because of my disability  I  get to take  my take in a special   place  called   DSPS.

 DSPS  is   a resource  for college students  with disabilities almost every college  has  one.    In my college  I  have  an accommodation form that I  give to the teachers that basically says that I   have a disability and   need  accommodations.  Accommodations  vary   from  person  to person but   for the most part  every student with  a disability will need extended time on test.       At my college extend time on test  comes   with double  time (   a  30 minute test = 1 hour)    or time and a half      does  anyone  know?    I think  I  have double  time. This does not mean that   I  have unlimited  time  cuz  i do not I just have more time to think about  the  test material.  And    there is no cheating allowed







 For this test  I t was on  the human  cell   which    was a hard test but  luckily  I had a study  group meeting at my house so  I studied well. I  got a  B.


 Do you  know the  parts of  our cells 





 images
 video  pic from goggle
 test http://www.bestmastersineducation.com/teaching-to-tests/standardized-tests.jpg
cell http://people.eku.edu/ritchisong/cell1.gif

Friday, August 10, 2012

Today numeber of the day is

 











 That is  how old   Princess  is  today that is so crazy    can't believe  she is an adult  happy b day  princess 

Thursday, August 9, 2012

Respect

  R-E-S-P-E-C-T  find out what it means  to me 


     Thanks,  glad  you  want to know.  It started earlier  today  I was watching  the  US women's soccer   with my parents they were in the  gold  place  medal  round in the Olympics and they  won  today   2-1 like  many    proud Americans  I  was  proud that we won.  Why  shouldn't  I?   I   was  born in  the US  I love soccer  especially  watching it on the big  screen as was the  case  today. 

 Then their  was the medal  ceremony.  Then  it  hit me  like  a fist.     Disabled  athletes   do not  get the  same  respect  as  average  people.   There  they were   with their  matching  warm up   atire    amongst the fans that were  cheering for  them   that I was able  to see    100 miles away  on   the big screen.   

  Got this  off  of  Facebook its  to good not  to share with u all 
The  Olympics feels  so much  more  poignant  to me  because I am able  to  see it on  TV   on  a major channel  I  was able  to  watch   the opening  ceremonies and   most of the events on  tv.   They   were on   in every  restaurant  that I went to   over these  past two  weeks.  My parents   recored  via  DVR.      I  was  never able to do  it  this  during last years  World Special Olympics  Summer games, nor  do   I  believe    I will able to  watch the  para  olympics  in the next two  weeks. This  really  pisses me   off.  I did some  research  and   I  found that in  2008  the  Us  broadcasted  a  two  hour    pice on the  para olympics.    Ok   so  you  broadcast   two  weeks for the  US   but   two  hour  pice  on   para olympics. I  know  you can  find  it online  but  you  really have to  look, but    it is  bluntly  obvious that the  olympics   are on.   
Why  wasn't   Oscar    known in the US  before   the London  olympics  he was obviously a great  athletes .?  He was  not known  because  the  para olympics are not   broadcast  in the  US.


  I am not saying that   Hope  Solo,   Michael Phelps,  and   the rest of the US olympic team   do not deceive our  respect. I     am  proud of all of them.  I am saying that  disabled   athletes who represent  team  USA     should also  become  households names .
  I am a  athlete and  I am  Normal 

Thursday, August 2, 2012

Why people with CP should be able to be Special Olympics athletes

    I know the title  is a mouth full. But at least you know what I am  talking about.  :)

athletes

  So  I have been  competing  in Special  Olympics  for a while  now.  Since  2005, seven  whole  years, and     all  of that  time  I have never had a  intellectual disability    my  area program  does  not  have    Unified Sports, yet  I still compete  with  people  with  intellectual disabilities.  I have  won  medals  and   received  ribbons.

   Now  I  know  special  olympics  is  for  people with  intellectual disabilities  and     some times   I  feel guilty  for competing.


   When  I was  little   I had  no need  for specialize  sport  because I  was able to  play  with   kids  in  neighborhood  programs.     I  played  soccer every  fall  with    AYSO in the  mainstreamed  program.    I have memories of  orange slices and team banners .    This  was  great for a couple  of  years   but then  reality of  physical disabltiy  set in.       It started  with my  parents holding me back a  year  so  I was the eldest  person  on the team.   (  A team  for  girls under 8   i  would  turn nine.)  It also helped   that  I was  held back a  year in  preschool( another post )  so  I played with  a lot of kids in my class.     I  did this  almost  every  year; however,  when  I  was in 5th   sixth grade my dad  did not sign me up because  I was not ready  and could not keep up.   I  remember  feeling  sad    and  angry that fall because it broke  a  tradition I had.


 Around that time  I started participating in church  basketball  but i was never on the  A  team.  I was  always  on the  developmental team  for  girls.  It was all typical  peers but   I  never  made a basket till eighth  grade

   In  third grade  my sister signed up for t ball  but  my dad  refused  to sign me up  because he felt that I would  get hurt.    I  was  a die  hard  baseball  fan and  often  accompanied my dad to  giants  games as well  as  my  brother game.       I was so sad   but managed to be bat  girl and  the  coach  gave me something   at the end of the game.  When  I  played  in fith and sixth  grade    I was one of the worst kids and in  sixth  grade I  knew  I was  being left out.  That was my last time playing softball.

   All throughout  middle and high school  I would   try out  for school sports.  And every time  I would be cut from the team.

       In  seventh grade my friend invited me to join special olympics  swimming  and  for the first time in  my  athletic career  I  could  win races    that  gave  me self esteem.  I  told my  favorite teacher about  it which  led to   a tradition of  telling my  teachers how  I did  in sports.  After   competing  in  golf   summer 2007  I was able to  join  my high schools   practice team.   Special Olympics   allowed me  to discover  a new sport and  allow  me  to join  in on high school sports.   I was on the practice team  all  three  years   and   only played in  one match, yet I was able to train with my high school


  I am sharing my story   because  I  would  like  for Special  Olympics  to consider  welcoming  athletes with physical disablties into  the world of sport.  I know  there are more AZ's  out there  who  are die hard sports  fans living  with  physical  disabilities.     The para olympics is made for  athlete with physical disabilities, yet they are  no local   training  events  so  the kids  wind up trying to compete with there peers and always  coming in last or  making their  team lose.    As I got older   i  used to feel guilty  on  regular    teams  because  I  thought I was making the teams  come in last

















Monday, July 30, 2012

Able to go to college Episode Four: Cars and Hearts







   So this week  i will be blogging about   the  week of Valintes day  (2012).      I  really think that my  dog  knew it was  Valinties day because  when  I woke up this  morning I  found her  on my parents's bed looking as  cute as ever.  I had a  good day at school and to make things swet   one of my acquences  drove me home that dad.  He  was not dating   so  he  coined the  term  Single Awainess day  I like that (esp since  I have never had a boy friend)  My dad came home  that  day  and  found  a note   that said that   AZ had to unload the dish washer.  I had  seen this  note  but  I had "forgot" to  fallow though.     My  dad was  home  so  I  had to listen to the note  aw  well.  Luckily  I have a  great tip for doing the dishes which u can see in the video.


 So the  second  half  of  the video   highlights a  constant struggle  between  my parents and  me.  I want to  try driving.  Now  I  tried driving a little  my senior year, yet I was no where near ready.  Unforntaly my parents  do not think  I am  ready  so  for now  I am stuck to taking public  trasnit, bus. I hate the  bus.  The  main  reason  is that a bus  confines you to a se.    Taking the bus  means that   if you miss the bus you have to wait for the next one.  The bus   that  I take  runs  once every hour so  if I miss it  I  have to  miss at least ten minutes of class.  This was the case  in the second half of the video.   I am  only  20  so  I think  I have  still   have time to learn how to  be  behind the wheel.

Wednesday, July 18, 2012

Help them become Leaders of the pack


 These   three actors are the stars  of   a  internet   soon  to be  TV show    called  leaders of the pack  They  need our help  in terms of votes to  vote   u   need

1. GO TO: http://www.nextventertainment.com/votes.php?indx=2#
2. SCROLL DOWN to RICHARD REDLIN
3. CLICK VOTE! on right hand side



 if they  get  enough  votes they  can  be on  TV    that would be  cool  


Lauren Potter and  AZ   fall 2010

Monday, July 16, 2012

It still hurts

 My   Dog lights up  my world
 
    Let  me start off by saying that I had a great fourth of  july  week.   I   went  to a firework  show  at  the  local  elementary school and  had a  great  time.    During the fireworks   i  saw  some people   from high school and said  hi   and  instead of turning around they  left me.   Actually  everyone   left me  and there was  no  room to sit  because spots  were  taken.   I     end up sitting next to people from  my high school  and  afterwords  there was a  party at  the  girl's house  but   guess  who was not invited.  I    keep on  plugging  away and walked home.      Despite  this I  had a great time  overall  because  hay   I  have not had  great friends  for  most of my life  so  I  guess   one  to say that  I am  used to  it  by now.    

 It still  hurts

  On the  fourth of July   we had a  party at Sacramento and  I saw  my cousin  who is  two  years  old . She is the same one  that I wrote  a  poem  for   before she was  born.    My  cousin  lets  call  her   K  told  princess  that  she could baby sit.   I  offered to  babysit  because  hay  I  like   kids and   she is  a cutie  pie.     K says  no    but  i could  baby sit with  D  our  other cousin.  D says  no way.    K  says the  chaperone   needs a  chaperon      I  shut  down  then  people asked me  whats  wrong.  I say  nothing because of  course  I    am   known as  AZ the     one who  runis things    for everyone  involved and  I am   trying  to change that .  I  told my mom what was  bothering me  but she  does not  understand  because  She  asked my sister   to  watch over me  if she  moved to sacramento.     HELLO ?     I  can   take  care of my self.     Yeah  I can not  cook  or do  my hair  but   that is what  hats are for  and     I can  microwave stuff.  I want to be independent  how  do  you think  I feel when  I hear these   things  terrible.         I am not  a kid  anymore  I am almost  21.   Man  its  so  hard to be  me.      I feel  like a round  peg  going into a  square hole.  I have  a hard time fitting  in  with peers, disabled and   average, and    I   am  still  a  "Kid".   Yet      I   still  smile and  try to  be  happy because  after all   these  things  are  commonplace  for me.

                     It  still hurts


 Heading back home ater the fourth of  July
 

Wednesday, July 4, 2012

Independence Day 2012

Happy 4th 

Disclaimer America still is not free for everyone blacks disabled immigrants but it has come a long way since 1776 so I guess its ok to celebrate.  I went  to see fireworks  last night and    i am  going  to   my  Aunts  house  today.    pictures  will  fallow  soon



  Ps   yesterday was    my Dad's  birthday    Happy  b day  dad 

Tuesday, June 26, 2012

Monday, June 18, 2012

Able to go to college episode three :Basketball- one of my favoite sports

   



            I know  what you are thinking  how  does this  relate to college   answer  it is   weekend edition.  You know all work and no play......... well I do not  know the rest  but   here it is.   My number is    number  11.  I  really love  playing in this  tourment.  In my area there are two gyms for basketball  but  one  practice  site  for all other sports  so  for me this  means that  I  played against all  my  friends    who are my team mates in  other sports  like  track  and soccer.  I  also  have  my  HMB   hoop buds  one of them  also  goes to my school.  In the fall  more  people from  my team  will go to  my college which will make  for an interesting time ( hint  not all  of them are my  friends)  



I  know second question  

  What's  that on your  arm?

    Thanks  I thought u  never ask.

 All the colors.   I have a white and black  one   I want the orange  one 
 The  white thing on my  arm  is  called a Sniffle  Buddy.  Now  some  people  with CP, me include ,  have the  tendency to   drool.    Now when  I was younger I  drooled a  lot   I mean  I  could have  filled a  cup with  salvia  from my mouth and   I am  not talking about  when I was a  baby i am  talking about    school aged.   Now that I am older   I  have  good  days, where  no   drool  comes  and  I have  bad days  when   drool    comes  out.  In  high school  I   began  to  spit on  people when  I  talked  but I did not drool   oh  the  wonders  of  CP.

  Now one  of  my pet peeves  is   seeing a school age kid   wearing  a  bib.  I  mean  hello  bib   are for babies   not  for  older kids.    I  do not care what kind  of bib you may get     it still  looks  babyish  and   it will make  fitting  in  with other kids  harder then  it  already  is. A great solution to this is to use a bandana  or  a  Sniffle  Buddy,

    A  sniffle  buddy      resembles a bracelet,   It is  made out of bamboo  and it works.  I love  my sniffle buddy  it helps me  control the drool also   if i  forget to  grab a napkin during it mealtimes   helps   me as  well.  Sniffle  Buddies also  are for allergies  and  sports which means that  it is not specifically designed  for  people with disabilities; however    it works.   It is also green because instead of  throwing  napkins away    you  just put it into the  wash so that is  what i am  wearing on my arm.

    
  


  On a different  note  today I  begin  summer school  so this  might be the last Able to  go to college  video  for a while.







Sunday, June 17, 2012

Happy Fathers Day

 My dad and I  grand canyon summer 2005
  Dear dad


    I  want u to know that even  when we do not  agree on stuff    in the end u are my Dad and I  love u.


 love  AZ








Wednesday, June 13, 2012

America its time to listen

  As many  of  you  long time readers  know, in my youth I was a Toy Story  fan.     I  have seen the movie  so many times that I know   all the lines and    when I can not sleep on  occasion I play the  first couple of scenes in  my head.  


   In this  movie  there is a claw  at the  Arcade   and   when  Buzz Lighter goes  into the claw  game    and asks for the boss  the   Aliens  say 


                  " The claw is our  master  He   decides   who will  go  and who will stay."  


   Woody   says  " This  is  ludicrous"  
 Woody  has  always  been  my  favorite character and    as a adult  I agree  with him.




      I am not  just  quoting  Toy story  for fun there is a  meaning.  Back  in  2006 around  Christmas time NPR  released a  story about  Misty Cargill    a  women who  was  25 years old  had a boyfriend and  worked at a job and loved bowling.      She also  needed a Kidney  transplant.     So  she needed to be  placed  in   a  metaphorical "claw  game.     Only this  time the claw  game  is  made up of many  people, doctors who deiced that she would be  better   stay  put with  the  kidney she  had because  she  had   an Intellectual disability.        On Sunday  Misty  died   at 31 years old. 31  when my parents were that  age they  were  just starting on their careers and  raising a family.    


  The  report in 2006   says that   she  did not  get denied based on discrimination.  I say that  is   not true.      Six  years  later  another girl with  ID was   denied to  have a   transplant surgery because    of ID.


 America  needs to  listen  to its disabled  citizens 
        I am  tired of this.    I am  tired  of  people  saying that  disabled people  are  not  worth the same  type of medical  help as  our  able body  counterparts. I am  saddened that there  is a possibility that     one day  society will have   wiped out   people  like me.  I can not imagine   the day  when   their is  parental  testing  for Cerebral  Palsy  and  that  parents are forced  to terminate.  It could  happened. It already  happens  for  conditions  like Down Syndrome.   People are trying to find  the cause of  Autism and   I  do not have to  be a genius to  figure out what is  next.  Soon    there will be a test for that as well. Society needs to stop trying to find cures  for disabilities.  Instead we need to have more conversations   about  inclusion  and  respect.   That will not happened  around here  because where I live kids with  Intellectual disabilities are segregated in separate  classrooms.    or when they are mainstream they have  bad teachers  who are invested  in    making sure inclusion fails.      This  is not in the south   in  the   1940's  this  is   2012   where we have a black president but  the  problems  still  happened.  Wake  up  America     lets  start a conversation with people with  disabilities   about  how we want to shape  our  future.   Let  it be broadcast   on TV  and online.   Lets  start  talking  about what needs to be done  by  listening to the people that  live with  the disability every day .  Let's  talk  now   before  it's  to  late.




 images are  from 


  alien 
http://johnlange.files.wordpress.com/2011/06/toy-story-aliens.jpg
 clipart 
http://cdn2.fotosearch.com/bthumb/IMZ/IMZ164/rco0030.jpg










Monday, June 11, 2012

Able to go to college Episode two : Top of the hill




  So  guys sorry   about the long wait but at  long  last I have a new Episode for you  guys.     This  episode  is an important  one because   it  shows  a myth that i had  about  college when I was a senior.  


 This is what I  thought   awaited me after high school  I was so wrong 
 High school was  tons  of fun  for me I  mean  we had  ralles  Senior  Activity Day  among other things.  At home  I had  video games and   tv and stuff to  keep  me entertained.

 One of   the big myths that I had  was that   once you  graduate high school  you  do not have any  fun.


 Oh  how  wrong  I was.


  Two  year later I  know that  is  not the case.  As  you can  see  there was  rock climbing on the  college campus  for a day.   Last fall I  went  on the  rock  wall  but   on that day I did not go on the rock wall. As far as videogames  go I  still  play them   like  I did  in high school.   Although  I must admit I do not have as much time to play because in college,  I am  in  a general education  program,  I have tons of homework and  stuff to do.     Its  only the  third  week  of school  and I am  having this much fun   who knows  what  fun awaits  me the  rest of the semester.

 




 No  fun sign
  http://image.shutterstock.com/display_pic_with_logo/123328/123328,1222362071,1/stock-photo-smiley-having-no-fun-sign-17923828.jpg

Thursday, June 7, 2012

Proof of focus

  So  today  I had ST. ( yeah  I know  u  need  able to go college  videos )   and  we  were doing  a  reading  that we got  from  IMOB  about  RJ Mitte , an actor  with CP  who plays  someone with CP   on   Braking  bad.      Today we were working on  breathing and    how to do  it when u  have a  long sentience  without  commas  This  was the sentience.


" RJ Mitte was using acting as a means to build friendship with kids his own age while living in a new city."    


me  taking a break from  writing  summer 2005 


  Now this  is  a hard  one  and  The ST  said that  there were three  easy  pauses  my job   was to discover  them. 


 I  came  up  with   this  


" RJ Mitte was using acting  as a means to build friendship with kids his own age while living in a new city.


       its a  transition  word    i  said 


    The  ST was sooooo Happpy.


  See  not only have I been on Dean's  list  I  remember what  Ms.S  said.

Saturday, May 26, 2012

Happy b day Book gal



 Love  u  sooooooo  Much. I  can not  belive  u  are  19  today   happy  b day


 love

 AZ

Monday, May 14, 2012

Talking and understanding are not mutally exculsive


                        Lets  say  a genius  who  spoke  Latin  were to come to  the United States.  Now  lets   just say  for the sake of the argument that  there was  no one elese  who spoke  Latin.    Is the  genius  still a  genius.    Of  course  many  people would say   he just  needs    needs to  learn  English.       Well  what if there was  a  person  who  could not speak  at all  and  had  no device,  could he  be  a genius?
`  
It  angers  me as a person living with a speech  delay  when  I hear  someone  who has  no  speech  due to  disabilities,  especially  CP,  and do not have any  device  and  are  placed   as  limited  intellecual  ability.  It  really   angers me    because   the person does not have a  opportunity to  prove  there intellengence one way or the other.  Why am  I pissed  off  let   me  tell you  my story.
 bookgal  princess  and  az We were so cute 






          I was  born   September   1991   a month  prematurely   resulting in mild Cerebral Palsey.  As  a newborn  I could not suck  from a bottle  to well  a feeding tube was  placed  though my thoat so  I could  eat.   When  my parents  took me   home  I  had a  hard  time  breast feeding and my  mom had to pump her milk out  and put it in a bottle.  My  mussles  were soo  weak that   feeding took  forever.




 When  I was a  toddler   I had diffculty communicating. I leaned sign langue  to comincate. I  remeber saying and  signing  craker  in the kitchen.  Useing  signing  I was  able to  express  my wants  and  needs  until my speech   came  along.




 With me and  my  speech  imparment  repeating  words  is   frustrating  espacaly when  no one  understands  me.    I  hear myslef  specaking clearly, My  mind   makes  the ideas  and  the words   that come out   are   fuzzy.   I  rember  saying answers  in class being  told  I was  wrong and   someone said the  same thing  and got it right.      That means that I  got  the anser  right.  


  Now  for me  I have a voice . Its  not  the best  but its  a  voice. As  frustrated  as I must  feel  it must be  ten  times more frustrating  for  people  without a voice.  I feel for those  people  and   can not igmane  being inside  and  not having  a  way to  commicate  and   because of  not being able to comincate  getting  llabled as  worthless.    Having the school system  write  you  off being  isolated  from your peers.  Being  talked to in a high  pitch  voice  every day when  you  are not a  kid. Then  because of  your phiscal limitations  being  labled   as  being as  smart as a  toddler.  That is not  fair  nor is it  right.  I  know  all about  history   understand  spainsh and  english  have a  talent for writing   can  play chess    yet I can not  say the  L  R   K   G sound   esaly.  Does  that  me   not smart  no. Now  igmane   if  i could not talk or  had a device yes  I would not be able  to   write  read and play chess  not because  I   was  not smart  but because i  had  not had  the oppertunites  to  learn.     If  you are reading this and have a child  who can not communicate  my  advice  is   to  go to the ends of the  earth  for your kid, Buy the i pads   the dynvoxs help your  child  find their voice.   If your  the  parent   or  know  someone  whoes  older  who can not commmicate   do the same thing.  The sonner  you  get it the better but do not give up on an older   person in fact you need to get  the information them faster to make up for loss time. In the  meantime  contiue talking to   the person   as  would with   a person as  there  cronolical  age. ( So obsouly  talk  to a baby  like  a baby
 All pepole deves  a chance to connect with others.  It  does not  matter how smart they are everyone  wants  to connect  with  others.    Think about  it  this way   if the person  is  said  to have an intellecual disablity  and you  talk to them about  stuff that  is  to hard for them  then  they it will be  to hard, but if   the child is smart  but has not fond their  voice they will  obseve  it like a sponge.  Please  remeber  speech  is  very  conplex  and hard but   the   spoken word  is   the end result.   The  process  may still be in place.








 









My sister is going here

  Congrats   princess  of the ducks 

Sunday, May 13, 2012

an essay I wrote for class on my mom


 Shortly after Rosa Parks gave up her seat,  a vice chancellor was  born; however,  when she was younger   no one could have  imagined it because   they were female, African American  and lived in  the same state that the Boycott took place in, Alabama.  This is my own mother who  had  to overcome insurmountable odds to get to where she is today  and this is her story.
            My mom was born on a June day.  She is  daughter of  .   My  grandmother was a country girl  who was the daughter of sharecroppers,  a system   developed by former slave owners  in which black people who   got  very little money for the crops they  produced and  were trapped on the land.    My grandma  was born  in the 30’s  during the  depression which made it  especially hard for her  family to get ahead.  My Grandfather lived  on the farm in Alabama which  his  grandfather, who was freed by the slaves as a  had bought.
              My  mom was brown in  a time period where  her mom was inevitably  referred to as a girl and her dad was  always a boy. Because of the color of their skin, my  grandparents endured   segregation.   In  my mom’s neighborhood was all black  and whenever  my mom went to town with  her mom she was  exposed to the bomb mine  of the ways of white people.  My mom remembers   asking  my grandmother  why she had to cross the street for white people. My mom remembers   hearing my grandmother  telling her about  that at work, as a cook she  was forced to go through the back door.  her job as a cook for white people, yet home was   still  home for  my mother.    When she was born  she already had four siblings, that all attended segregated schools, to look out for her.  My mom also grew up with both set of grandparents to look out for her.
            The  pivotal movement that would allow my mom and her siblings to reach their fullest potential came when my grandpa   moved the family to California.   It came shortly after  my mom  turned  five.  My  grandpa moved the family because he was  in the military and  had  to pick between Texas  and California.  He chose California because he had already had relatives  there.  I am  forever grateful that my grandpa chose California because without that choice I would not be here.
            One day when my grandma  was helping my mom study she  told her that she could be a doctor because she was so smart. My mom did not  actually believe her.  Even though my mom could attend the public school in California she had never thought  that she could be a doctor because   there were no African American doctors in Sacramento.  Still life was good in the state capital.  My grandma and grandpa became  really busy when they  moved to California.  Grandpa continued to work at McClellan Air Force Base in  North Highlands. My grandmother, who  knew that education was the key to a better future,  got her teaching credential  while raising her five kids  and working.  By the  time  my mom  graduated from high school after three years she  already had  siblings that had been in the college system.  My mom decided to go to  University of the Pacific in Stockton which was  close to her  parents and little brother,  who is  a decade younger than she.

            The future vice chancellor of diversity  for UCSF graduated  from UOP she went to medical  school  at UCSF.  She  spent a year in Los Angles, yet  she would return to UCSF for her residency. In residency one of  her black professors encourage her to go into academic medicine.  This choice would  ground her for  a very long time.
            In residency my mom met a handsome   half white half Mexican  man who was the eldest of  six children.  He also had an interesting story. This man, my father, was a wise  soul who loved to read.  He was  from a poor family and was born in Oregon. He was the only person to graduate from high school.  He  also came with a little  boy, from his first marriage, who was cute funny and enjoyed Ninja Turtles and baseball. Although    my father was a different race   and had a kid, she  fell in love  and the couple soon got married.
            Shortly after my parents  married. The best thing that happened to them was born.  I was born a few months shy of their one year anniversary.  I was  the first child that my mother had actually carried around  for  eight months, I was born  prematurely.  When I was born    Natalie Cole’s “Unforgettable”  was playing in the delivery room. My mom had thought that that song was  predicting the unforgettable stuff that I would do. It  turned out that it was the song  both mother and daughter  would live up to.
            A year after  I was born  doctors  told my parents that I had Cerebral Palsy. My mom  got me all the help I needed, yet  she never gave up her work.   I was joined by two little sisters that would serve as  good teachers  for me as I got older,  but until then  that meant she had three little kids at home the eldest had disabilities. Most people would have given up their jobs to care for their disabled   toddler, but my mom never  did  take off more than she had . During this time my mom  worked  at two sites, taking care of patients and  doing research,  Mymom and  dad found the best nanny’s to care for us  and they would assume all parental duties during the day.  Growing up  I wished that my mom had  been a Stay at home mom, yet  I am  glad she did not because  America needed her to work.
              When I was  seven years old  it was the down of a new  millennium and  the first time  that my mother would become  a leader who championed the  rights of minorities, That year she would become chief of staff  at UCSF.   Soon after that she was promoted to associate dean of the medical  school.  She would be a there   for a while. She also became  involved  in her community outside the hospital.  She joined  the Commission on disabilities and  the compassion  on the status of women.  She also started began to travel a lot.   When I was in middle school my mom began traveling to Washington DC to be on the board  on women in medicine and science, The  national board challenges the  fact that  not a lot of women are in leadership roles  yet they were more women in medicine.  All of this meant travelling  advocating and doing countless  hours  of writing  and practicing  long into the night.
             In  the fall of  2010 my mom  interviewed  for the vice chancellor of diversity. She  got the position. My family and I were so excited.  Last  January we went to  a ceremony honoring her work.  Going to the event made me realize her impact  that she had  in her  professional life. She became the  first female  African American vice chancellor  in the University of California system.     During that time my mom has  implemented  programs that improve the diversity at UCSF .
             Mom  is a hard worker, She began working at the age of 16  and has not looked back since. Renee is so  wonderful and amazing.  She has won numerous of awards and recognition .  My mom  has shown me that   with hard work anything is possible.  She has shown me the  racism  can be overcome and   we must keep fighting until everyone has a fair shot at life.  She is my mom  and  I am  so honored that  her blood   runs through my veins.   When  I think  of  her accomplishments I   feel  proud to call her my  mom.    She has showed me    through her actions, those  are  bigger than words,  anyone can make a  difference in the lives of others.




Happy mothers day to al the mom's out there