Learning to read part three My least favorite sound

   I was recently asked  what my  least favorite  letter/ sound  is  and after  much thought i  think it is C


 I  have been  working on C   for a long  time.     It  has been  hard   work  and  i have memories of trying to say  Car  cat cookie    instead of  Tar tat  tootie.  

 Do not be fooled by the Graphic "c" is  a hard soud

 I  remember in  K  my teacher  had this  phonics book  of  letters in the alphabet.  I was  in a mainstremed class    and   I  remember  her introducing the  C book and  explaining  the  sound and adding    you  should be able to  say it.  I remember asking her why  I could not  say  C and  being  told  I was different/ I know  i owe you  guys   my inclusion story  and  i  will get to it. In the mean time  tomorrow's post will b about the concert I  went to   so stick  around.


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Recycle post Forever Kids

   I posted this last october   tonight i am  going to a concert so stick around  for new  post  later

 I am  19 years old.  With me  being an American  i am  considered  an  adult? or am I?   

kid or adult  you decide

Now  if  I did not  have any disabilities   the  answer  would be  at   yes  I am an adult    no questions  asked.  But add a disability  in there and  the     word  changes  back to  kid.   As of now this does not bother  me as i  miss high school   and  do a lot of things  like a kid ie live at home   do not drive   mom and dad  give me chores  and the like.      I do not think the word adult will scare  me though and I think  I will  take more  offense  to the word kid  more and  more with wisdom and   time   after high school.

   now  lets  talk about other with  intellectual  disabilities  it  may  be  me  or is it  that people will often  refer to them  as  kids  not  meaning  any harm.   It is  so much  better than the R word   for sure.  But  to say  they  are  kids.  I am  not sure about this so  i will look up   Adults in the   dictionary  this  is from  Dictionary .com

–noun

4.

a person who is fully grown or developed or of age.

5.

a full-grown animal or plant.

6.

a person who has attained the age of maturity as specified by law.

 

me  in Las Vegas summer 2005   age 13

 There  is no  mentioning  of intellectual abilities  or  going  off  to  work  or completing  collage  or any of that  so why should  people with disabilities be called kids  is it hard and  some times  it seem like they are children  ?  Sometimes   there are  people  I know  with disabilities  who  fit  this .  But  they are adults   in age.  They   can  vote   ( provided there in  a Democratic society)  can  work   and  do leave high school.   Disabilities   should not  hinder   the word adult being   associated with them.   We  may need help  flinging  adult  roles and  living on our own.  But  the definition does not   state that does it?

  The  reason why I  bring  this up is   from my history  lessons  and family stories. You know like how white used to do it to blacks   back before the civil rights movement  when  white addressed  blacks  as  boy, or girl  and    blacks had  to address   white adults   as  sir  or  mam.   Just a  thought  most of  you  reading this  have disabled  youngsters  so you  probably do not have to  worry about this  yet What do  you think?

 

plans for tomarrow

    help   LM  with  something 

 hw 
  Concert   
 hope everyone has a   good  saturaday

Guess who i met

 Me on the way up  on Mount Tam  Summer 2010

         Late breking news   From  today  but first a pre story


  A  few months  ago
           Mom: AZ   do you  know who    S  W is 
               AZ: No
                 Mom:  He has  CP and the speaker  at  the  annual breakfast  for   Community Gatepath"


 Cool
     A couple weeks later  I saw this.













 and i  asked  "Mom  are we going to Gatepath  so i can  meet him.




  Mom:  no  i have to present  far away


  These past two  weeks


  AZ:  I  have to go to the breakfast  I  have  to  go  to  the breakfast


    Last night


  Dad:  AZ you  can go to the breakfast.   Your mom will   drop you off and I  will  pick you up.


 Today


  MOm  and  i got there late but i was able to get a ticket  and  a seat at  a table in the back and I heard  Steve Wampler  speak.  He is the first person  with CP  to  climb   El Captin in  Yosimitee.    This is not an esay task  for anyone  but   get this    he  only  has  use of  one  hand .    He was able to  grip on with both hands  and  pull up in a  chair.     It took him  six days  but  he made it.     Off the moutian  he  is a husband and  a father  to two  kids.    It  was soo nice for me to meet someone  else with CP  that I can look up to.  He has a new  movie  coming out  next year  and I  told him  he should  come back to the area to screen it.  I really  enjoyed   meeting him and hearing  his story.  I do not  know what my life will be like as I  get older  but    meeting   Steve shows me that    i may  end up  leading  an  adverage life( married , kids,  a career) and  a chance to inspire others    

I need to remind myself

 That   I am amazing.   You  know   somettimes   you get mad  or sad  or  scared    try thinking  that  your amazing.  I have yet to find    great friends and thats  gets me down   but  at the end of the day I  think   if i remember how   great    and things will be ok

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  A  penny  for your thoughts

In cas you missed this

Princess is powerfull

   I thought I would give  u an update on   my youngest sister  princess.   Princess is   a senior at my  high school  this  year.  She is  playing  v ball and  is  really good.  She   won best in torment  earlier this  year.   She does not  want to  do college  v ball  even though  she is good enough to  She is  stressed  about College  apps  but she will be fine.        

   How  are your  other kids  doing?

Buddy Walk recap

  Happy  Monday everyone  


   On   Saturday  I  went to my  first ever  Buddy Walk.   I looked forward to it all week and    i am glad  I went.  I work up coughing   on Friday  morning and   the first thing  i thought was  i might miss the walk  I did not miss  it and am glad  I  did not    I went with a family that I had met  from my special olympics  young athletes  days.   The family  has one son  and two little girls,   the little boy  with DS I  sat  next to him  and  we sung songs on the way down.  He is  Sesame Streets  biggest  fan  so  when  I sung  the theme song and  paused after  " Can you tell me how to get. '  he  new  what to say it was  soo cute.  Once we arrived The  weather was  beautiful and there   were lots of cute kids there.  I met  a little  four year old who  has  battled cancer twice and  is a savior .   some people get  really into buddy walk.  There were people with signs and banners celebrating the abilities of their love  one  with  Down Syndrome.  The Family I went with  had a sign  that was  right  in front.    It was a fun  walk.


   The only bad  part was knowing that  this great celebration   was not  for me, so selfish  I know.  There is no walk for CP and  I wish  there was.  Camp  Pals  was there  and they are going to have a camp pals  in   CA  summer 2012 which sounds like  fun except wait  I  do not have down syndrome.  I  signed the mailing list    maybe  my sisters  , or me. would  like to be  a consular  and  have a good time at Camp Pals.


 I really liked the  Buddy Walk  and   I  like to ask this of  the  organizers.     Why not have  a  Buddy  Walk for all  disabilities   or   people with Cerebral Palsy  lets     get a walk together.   I think its something everyone who  has   a child with Down Syndrome   should go  to.     Everyone needs  a buddy no  matter how  meny chromosome they have.


 got image  from http://www.dsconnection.org/images/NewsEvents/buddy-walk-logo_big.gif


off to go watch   The Time Square Video

This should make for an interesting Monday

 I left my  cell phone at the Buddy Walk. (apparently the phone  wanted   a new  buddy :)). I also  lost  
   
   My  alarm clock 


  My  phone  so  i can call  people for a  ride  from my evening class.
  
My  Camera so     if i  mange to make it to stats  i can not take a pic of  my  buddy's   classwork  which is   allowed so  i do not have to  do  hw


 I will  let u all  know  how it  all goes  

Eventful saturday

Bay area buddy walk and dramma more detalis latter

Terrific Tripplets

   Check them  out

Learning to read part two My first independent book

     Growing up   my family had a lot of  kids book  lying around  our house.    Among with the Disney   we had  lots  of    step into  reading books .    Out of  all of them  the book  I  remember  reading for the first time  was Tiger is  a Scaredy Cat.  

  Looking back    I say it was a sad  irony that I  remember  this  book   as  I  deal with  fear.      But that was  my 'first independent book.     I also have memories   of  reading this book in  pre  K.  

    Do you remember your first book        What books are/were your    kids   favorite ,

Learining to Read part one : intro

 This hurts  my hard sounds  a  three  year old can say :(

      Let me  start out by saying that I love to read.    It should be no surprise.  These next few  post   will be about how  I learned to  read.  I   read   in a way dispute  never learning  phonics .    Well  not in the traditional way.  I  know what the letters  are supposed to sound like  but   producing those sounds is a different  story.  This  is  due to   Cerebral  Palsy.  Not all   people with CP   have speech  issues.    They  range  from   no problems to   using     speech  devices to  talk.     I  would  classify myself  as   somewhere in the middle.    I  do not need a speech device  but sometimes people do not understand me.  This  can get  frustrating.   I do  a lot  of substituting   which  means that    I  would  say cat   as  "tat"   or  dog as  dod.  I  also  do this  for L's and R  which  i  replace with a  W.   Let me  make this  really  clear the reason  for my lack of substituting sounds has nothing to  do with intelligence. I am  smart  just see  Monday's  post.  Now   I hear myself fine  and understand myself  100 percent of  the time.   Now this sounds contradictory but despite being able to  hear    all the sounds    so  I can sound out  words  I am a bad speller. Not sure why  this is    but  I  would like to be a better speller and I want to  take a spelling class in the  near future.    Anyway  this  might seem  that  I  would be  a uphill battle to  make me understand  reading  but  it really wasn't.( at least that's not what I remember) 

        I  hated  learning  phonics  for me   it was  a reminder to me that I was 'different' in fact  I  remember being told that by my teachers,     For parents of kids  with articulation  delays  do not stress  phonics.  It is helpful to know phonics  but  it is not required.   Model the  sounds  read to your kids   but  do not  stress   hearing the phonics  from them.    People  who  are non verbal can still read as well  as long as people    know how to teach them.

 Here is a school that    proves this








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chart http://mommyspeechtherapy.com/wp-content/uploads/2010/08/sound_dev_chart.jpg
bookwormhttp://www.sewterific.com/images/BacktoSchool/BTSBookwormLove.jpg

Soccer

  My  AYSO  picture  from  eighth grade Fall 2005

  Today    had soccer practice and we  did  goal keeping. I  was  pretty  good  on the ground.   Just  call me   steel wall.

  Also did u know the us Para Olympics     has a  soccer  team  for males  with Cerebral Palsy 

Got my Statistics mid tearm back today and I Got

  My  tag line is     not only am i  in Statistics  but I am  thriving in it. What a great way to start my week.

Great story

Thats my Homework

    Today  I spent  the day  doing homework  by myself.    I have been doing homework on my own since fourth grade.
    In  the fourth grade    I had a teacher   lets  call her   Ms. Abilities.     She was a teacher  that everyone wanted to have and today  she now teaches as a  advanced teacher for  fourth and fifth grade.      The  year  was  2001-2002 and  she  taught  fourth grade.     I was  in a class with a lot  smart   kids.    That was the  year   I tuned  ten which  meant that  in  Ms. Abilities  eyes    i  was  ready to do  homework. Oh   I  tried   getting out  of  this arrangement with her and my  parents  but  in the end  I did my English,  Science,  History  homework   on my  own, math and spelling words  were  the  area  I struggled the most so I  got help with that,  because   in  Ms. Abilities eyes I was  one  of  the "smart" kids  as well.   Since  fourth  grade  i have been doing my homework myself  since  fourth  grade and   now  I am in college.     Can you imagine  me  doing homework with my parents, they could in theory,  now  i do not  think so. Thanks  Ms. Abilities  for    making me do my own  homework  by myself. 

 

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in case you missed it

  First Friday  of   31 for 21 2011  Here is what you  missed   (or read  but did not comment on hint  hint hint )

    Monday:  Great Young  Man:  He   and   I are now  face book friends

   Tuesday:    Tale  of two  twins : part one     part  two comes  next week

 Wednesday :  Ways to  talk to other kids  about  a child with disabilities     This  is   what  I  am post proud of this  week.

  Thursday:     A  little home  video    

   please comment before you leave   either on this post or   the others

The post i did not want to write

   I had ment to write  the  15 ways to explain   disability  and   blog tomorrow.   It was all set i was going to   eat dinner and  do   start  homework .

  Then  I  cheaked Facebook
And found out that Steve Jobs is dead

      .       Steve the one who  engeered   a great learning tool   and  favoite thing in the whole wide  world  my  apple  laptop that   I am  writeing on right on.  I am  going to miss him and his work.  Then there was Aladdin where   I sat  near  him because his son  was in the play and at the same school  as  book  gal.    He is  my age  20   where he  needs his dad   to help him out like my dad helped My Big Bro.      Rest in  peace Steve  Jobs  you  will be missed

Ways to talk to other childeren about a child with disablites

     So today  I came home from school and  caught up with  the  Bravermen family   from the NBC show  Parenthood.  This is a really good  show  but  last  nights episode   raised some  questions.  In the  show    Max, a boy with Asperger's Syndrome, wants  his  cousin  Jabber to sit with him every day during lunch.  Jabber did not want to sit with him and tried to talk to his parents about it.  His dad  told   Jabber  some  well  intention  information about his cousin   Max but  it  went all wrong and  the two boys ended up getting into a fight.  That got me thinking.     With so many kids with disabilities being  include  in stuff like scouts and school  and  (insert  typical  kid activities here)   kids will have questions  and that is  great as long as  the adult has  a proper answer  Here is my guidelines  on explaining a child's disability to other  kids. For this  propose  I am going to  relate it  to group setting.

 1 Don't keep  your kids  disability  information   from them.  This  is not a good  idea  if you want other kids to know about  your child's   special need  then  it makes  sense that the  child in question knows  what his or her disability is.  The first time your child/ student here's about the disability should not be when the other kids   are also finding out.


2   Find a time, sooner rather than later, to   talk to the group.    Talk to  the necessary people to make this happened pick  a time and a date that works well for  both parties.  


3Get the child in question involved  with the preparation as much as possible.    Make a poster   have them  draw on it  or   have them  wear their  favorite  outfit.   make it  fun for them.




 4 Ask the child   if they want  to be present when the information is being present  let them  make the choice.


5   Find a way that is age  appointee.   Some  disabilities have  children's book geared  towards the  specific disability.


 6   Whatever  the way you chose on in step four  practice  it     If it is a book  practice reading it out loud  try to  anticipate any questions the kids might have so  you can   plan an answers


7   When talking with the kids  start out on a positive  note   continue it though  the talk    Avoid using words  like  'broken, damaged, problems, or anything that give a connotation that it needs to be fix.   Most disabilities can not be fixed nor is that a bad thing.


8  Read a book/ talk about the disabilities  Encourage  everyone  to  listen and try and  engage those who are not. Also if the kids start laughing at a unapproved point   ask them why disabilities are not   good  reasons to laugh at someone else.


9    Talk about all the things the child likes   or elements of themselves  that  pertain to being a child. What  is there favorite toy, color, food, etc


10  Stress that even though  disabilities make it harder for someone to do things    they are  imposable. They have gifts and talents  just like the others in the group.


11 Use   respectful language.  Depending on the kids   age  have them sign the  R word pledge. Do this  weather or not the child in question has a  Intellectual disability. Tell  little ones about that  bad word.   It will help  make a world   a  better place to be .


12 Have hands on activities.  Chubby Bunny  is a great  game  for speech impairments.    Have kids  try using a  wheelchair.  Kids, especially  young ones, like   interactive activities.


13  Leave  time for questions.   In general all  questions should be answer but  if some are to personal   say so.  Respect the child's  personality.




14 Wrap it up .  Have  the group of kids   repeat back to you some facts  they know.  In soccer we do  this  and it helps  us  remember what we were learning.


15  Note that the  role  of  advocating  should be for the child with the disability to  be able to  speak up for themselves. The older  the kid is  the more   of this they should do


  Anything I missed  please comment below




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A Tale of Twins : part one

 

Once upon a  time  there were twin  girls , Anna andAmanda.   There parents  wanted  both kids to learn to berespectful. So  once they were old enough to talk they learned theimportance of good  manners   sharing and not fighting. Thissevered them  well and they were  successful in school  went tocollage and got married.  

             Bothtwins  wanted  kids and there wish was granted.     Anna  had two kids, Billand Patrick,     Amanda  had    three kids  Jasper, Jed  and Jada.    Amanda  had wonderful kids just like hersister.  but something was  different about twin b   onlygirl  she  had  special needs.    Amanda and herhusband , Ben, were fine  with the fact that  there  girl was a little different  and  both of them became very involved in  the special needs community.  

              Amanda'sboy's  went to their neighborhood school they loved  it and got involvedin after school activates.    The parents  were veryhappy  with the school there kids attended   so as   their little  girl, lets call    turned  five they wanted her to go  to thesame school that her brothers went  to.    The school did not want her.   They  told   Amanda and herhusband that  Jada would have to goon a bus  to get to school on the other side of town.    Amanda, who had been taught not to fight, agreed and so  when fall rolledaround  Jada got on that  busand went to the other side of town.      Jade  hadsome commutation disabilities so  Amanda   sent some  commutation icons  to  theschool.      As Halloween approached    Amanda decide  to  volunteer in  Jada class for   the Halloween party.    What she saw  wasscary, and I do not mean the other  children's costumes. She saw walls with art work  without her child’s name  she saw  Jada   in the just sitting there. When    the womenasked where her daughter's artwork was the teacher told her that Jada couldnot  do  it  so she did not  have to.     Amanda asked  if  Jada  was learning how to read  and the teacher laughed in herface   and  told her that  Jada  would not be able toread  even though   in preschool Jada could   recognize the letters.

    To Be Continued 

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Great young man

Watch the full episode. See more THIRTEEN Specials.

Stressful Sunday and imput on what u want to read

 Hay guys   today is stressful Sunday because i  have an essay due  and a mid term  I will talk about    more about school this month  but   I was   wondering what would u  like to read about 

That time again

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  Time  for   31 for 21    for down syndome/ disablity Awarness  month. This  month i will do my best to  post every day in october. I have lots of    post  about.  I hope to be going to a concert  for people with CP  and  other stuff..

 I  kicked off  the month by going to the   Big wave harvest festival.  Big Wave  is a housing project   that  is trying to  go up in half moon bay.     This  year both of my parents went  and we  won  big time.

  We  won  a  gift basket gift cards  a  cake   and   four  tickets to the happiest place on earth Disneyland!!!!! I was  soo  excited.   The tickets  were from a silent action which  I did not  know that my mom  bid on it. When  they called  us  as we were heading home  well  I was   very  happy.  Pictures coming shortly 
   here is  the   video about  The big  wave project  see if you can find me

This is not ok

   <iframe width="560" height="315" src="http://www.youtube.com/embed/vbshMZFLn4U" frameborder="0" allowfullscreen></iframe>


     i am angered and upset by this story.   This man    was   a minority and he had special needs  police should not profile especially someone  with disabilities.      This is not ok

 I hope this young man   feels better my heart goes out to them tonight

  your thoughts

Not an abyss

  I  remember on the eve of leaving high school  I saw  my future  as an  abyss.    Since i do not have a intellectual disability  there was not  a  program  I could go too.  So  i  am now in a typical  collage  program  with supports and it  is going  well.    I do  wish   i had more independent living skills    thats  why  I think programs  like  this  need  to be replicated     Any thoughts?

My first two decades of life

A look into my life thus far tomorrow I will be 20 How did that happened

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So many choices

  hay  guys   its me AZ

      For those of you   that   have been  fallowing for the past  year or so  you  will know that    Tuesday  will be my birthday.        Not  just  any   birthday  but  I will be  20 years  old.  No longer a teenager  which  leaves  me to   the  title  of  so many choices.  i know  I  want to continue blogging  but    i do not know  if   i should do the  fallowing.


  A close  this  blog and adress   but leave it up for achieves  or

  B keep the adress  but  change  the  name

 Either  way  i have to change the  name    which is  soo  sad :(

   this  blog / online  community  has been there through    good  times and  bad times.   i know   whatever  i do   i will hopefully continue to  have   readers  so that  part  hopefully will not change  but   I do not know  what  I should do  so  I ask    you  readers  what to do.

  Please comment I need  ideas  for a new  name   no matter what  and  weather  to do  choice  A or B

   Thanks  in advance

ANGLES ON STAGE

This is a great program take 25 minutes to watch this it will make you smile. The best part is that it is near my house

Softball Sunday

 My  first ever SO event 2005

            Today  was softball for me.  Our  team did well  we got third  place  meaning we  won   one and lost one.

   On the way back to my area  I heard about the violence  at the     49ers  game.  For those outside California     there   had been an  similar attack on the fans at a  Giants   Dodgers  game  earlier this year.      These  two attacks  make  me reflect on something.   The  world should be more like  a special Olympics competition.    take today  for example.   During the  game we are all   want   to win.     Athletes  are   happy  when    their  team  wins and  get sad when their  teams  lose.   The major difference  is  what happened  off the  field.     People  have  friends  on the  opposing  team ( yes  some  of this  results  from  athletes  move  to  cities)  but  this isn't  always  the  case   during  lunch  time   a  athlete    came  around  to  ask  us  if we  wanted lickerish.  This  athlete    was  not  our  team  mate   but it  did not matter    the  person   had lickerish  and  offered  to share it.  Couldn't the  world be  more like  that     Have    a healthy  competition where everyone  tries  his or her  best  but   at  the end of the day  watch out    for each other  because   it is  just a game.   Please  remember this    the  next time you are  watching  professional sports

Starting Strong

  I have been  in collage  for two days now  and  things are  going well.    I  feel a lot  more cofident in myslef  and  my abilities this is different  than  last  year.  Progress  is happening 

  Me  a few  days before  starting collage

  Let me  give u a  run down of  my classes 

   Statistics:  I had the first meeting  yesterday  and   it went  alright  espacaily because   I had a  friend in that class.   I sat by him   and did  class work  with him and another person.   The  instuctor seems  very nice  but  she   will demand a lot from us.   Every week  with have a  reading    quiz which seems odd considering  that  this is  a math class but it is  vocab and   I took the first one  tonight  and  I only missed one (on my first  try, we  can  take  it up to  two times) so  I  will take it again   most likely when  I   done  writing this.   One of the big  projects   that kinda freaked me out was  writing a  mathmatical esssay luckly   it is with a partner  and  she has not assigned it.

 English   I took this  today. I already knew the teacher from  my first sesmester.  i  may  swich  to the teacher  I had  from  last sesmester if  she  takes  me back.   I  would like to  take this class  again because  her class is in  a computer lab full of  macs and I  know  quite a lot  about that considering I own one :) Obviously this is   to be contiued

  Adapted  PE:  WE  do not   start  yet   but  I will    be  going in for assessment tomorrow.   Since   all  the   students  have disabilities    PE  is my social time    plus   I have fun  :)

 Film making:  Another fun class that  I  enjoy.     I think there   is  someone  with DS and  another person  with AS. The  teacher seems  nice   she also  does voice over.  This class    might prevent me from   playing  Special Olympic Soccer this  fall  as it in the late afternoon  I  do not know  for sure  yet so  again to be continued 

   I finished  all my homework    for math  yesterday ( we also have problems for homework as well as  reading quiz) and  have been  taking    the bus    I plan on  getting  binders set up on Saturday   and  i have   a softball game on Sunday to end   the season   My  ocd is a little to high for my liking  but hopefully it will settle out soon.

Summer Recap

Hay guys so just a quick note to tell you that tomarrow i go back to collage. I will be around however I am going to try to concentrate on my studies (you know not leaving homework til midnight) so my blog and FB may be negeted we will just have to see.

The summer camp job did not work out this summer but as you will see below I still had a fantastic summer.



I will try and do my best to post around here and read blogs. If I get comments that will motivate me to post hint hint hint :)

Princess started senior year but I did not get anything out of her as far as teachers go. I am not giving up I hope to document her senior year on this blog as the year goes on

Make a video - it's fun, easy and free!
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Summer 2011

     Hay  guys  so   just a  quick note to tell  you that  tomarrow   i go back to collage.   I   will be  around however    I am  going to try to concentrate on  my studies (you know   not leaving homework til midnight)   so   my blog and FB  may be negeted  we will just have to see.

  The  summer camp   job  did not  work  out this summer  but     as  you  will  see  below   I still had a fantastic summer.






  I will  try  and  do my best  to  post   around here and  read   blogs.     If  I   get  comments   that  will motivate me to post  hint  hint  hint  :)


   Princess  started senior year  but I did not get  anything out  of her as  far as teachers  go.   I  am  not  giving up   I hope to  document   her senior year on this  blog as  the year goes  on  

A little different but it is still normal to me

    First and  foremost  today is  Princess's 17 b day  happy  b  day  princess.


   One of  Princess's  friends called  last night   to  ask  my mom  to   have a surprised  b day  party.     So  my day  was  spent   getting  ready for the surprise  b day  party.   Throughout the course of  the day I  talked  to  book gal  (who is  doing well thank you  very much)  and  i mentioned to her    it would be  cool  for me to have a surprise b day party. But then I  thought about it.  I do not have many of my own  friends and social situations are  hard.    Princess's  friends   and her  went out   to do stuff  I have yet to  learn how  to drive.    I have  average  friends, flocks without disabilities, but   for me it seems   to hard.  I  can  really  be  myself more around  my peers  with disabilities and  adults.


 Flash forward to  shopping for a card for princess. I found one that said   that sisters  know each other best.  I picked it up   because my dad and I (Mom is in  DC hope u  are  reading this mom ) had a lot to do.   The  card said  that sisters  know  each other best.   Yeah   maybe   typical sisters  know  each other best and  have  the same friends but that is not me. That is  book gal and   Princess  they are inseparable  and   their  friends   are  friends   too.   I know  about their   relationship  because they now  always  fb  each other  I am happy for them  but sad  at the same time.


  The  actual  party   the  girls    let me surprise them  and  cake  was  nice.  I  thought  I   had an allay in one of the girls  who does not come  over here that much.  I  told  her  jokingly that I  had a crush on  Mr.T (they  went to the same high school I   graduated from ) and  she  told the others  and they  laughed.  I get so confused  socially I mean  do  i make fun of myself on  purpose to fit in   Do I talk about boys?    I do  not  know  it is  soo  hard on me.

 After   they kicked me  out of   Princess's room   I  went to my neighbors house   and brought back  my  friend D  (who has  Autism and is 24)  and  we played  Lego  Pirates of  the Caribbean on the wii.   I  enjoy playing  wii  with D   and  it  showed    me   this  I may  have  a disability and  not a lot of  average  friends but  I have  lots of friends    on Facebook and    among the disability com minty. My life  may  be different then a typical  teenager  but  it is  my  normal.  Stay  toon  for more

About United Cerebral Palsy of the Golden Gate (UCPGG)

I am really happy I found this I hope to start UCP hoops in my area

My abilities abc style

This post was inspired by this post from   Ellen  who  blogs  at  Love That  Max in the post Ellen ,who was sharing stories about the 2011 special Olympic world summer game said Special Olympic is great because it is about abilities not disabilities I agree so much that I am going to post my abilities abc style

A I can get an  advocate for people with disables

B I can be beautiful

C I can catch a ball

D I can dance

E I can explore

F I can have fun

G I can go golfing

H I can hold a baby

I I can invite people to hang out with me

J I can jump high

K I can  kick  a ball  

L I can get licked by my dog

M I can make a movie

N I can be nice

O I can overcome  obstacles

P I can be proud of my work

Q I can be quick

R I can  raise money for a cause I believe in

S can swim and ski

T I can text people

U  I  can  understand   things 

V I    can    play   video games

W  I  can  run  really fast in the water 

X I  can sign  my name on the  X

Y  I  can   yack  people's heads off 

 Z  I can  takes  some  Z's

  What  can    your child  do ?  how  about  you  leave a comment  and  or  post about it and let me know  if  i  get  enough  pictures      I might make a  short   video  montage  

 Ps in case  you missed  it    a  look at the  2011 world Summer Games

Oldest??????

    Two  days ago my   sister  book gal  left  for   collage.  For those of you  that do not know  Book gal is going to  UMass Boston to play on the volleyball team.    She  left  early Saturday morning  and   my mom is  still  with her   getting her  ready to move into her dorm .

  I  have    mixed emotions about  her  leaving  . I  mean    we  go back   18 years  and a few  months.  I have  seen her   mostly  every day  of her life  and  now she is     across the country from  the family.  I am  excited that  she  is  going to continue her education while  staying  fit and  get to explore  a new  city  new  people  and new experiences. I am  sad  that   she is not here  anymore  every day  and   can not hang out with me  but    I  am pretty sure  I will  see  her   for Thanksgiving and Christmas. 

    I am also  reminded  that     my middle sister and  I  have  different skill sets.    I should have  moved out  to go to collage  this  past  year  and   my parents  should  had  helped  me moved  out.     Its  as  if  Book  gal is the "oldest"  out of   the girls  and   I am the youngest.   Book gal did not have to move out to prove that though   when we are  all at home  I need  the most help to   house hold  tasks  such as  doing my hair  and cooking   I  have yet to learn to drive    and  my siblings  have .    They let me tag along with their friends   Its  just a different   life   and  even though  I  got to experience many  numerical firsts    ie   first to  graduate  high school  first   to  turn 13  the big things   my two sisters  get to experience.   I   think it  must be  hard on them to have  to  be the  oldest  to me  but that is  what the  cards.

                 For those of you that have   childern  Have you  seen  this  with your kids?

  For  people  with disabilities   How  has  sibling relationships  worked in your homes?