Living with NLD Past Present and future

 A   Filmmaker with  Nld  recently asked me some   questions  about  living  with NLD  because  she  is making a  documentary  about this    disability and since  have  not blog specifically about  my NLD  before  I  thought I  would  share the anwsers   with you  guys
This  is  a long  post  so    make  sure  you  have a lot of time to read 

 Me in   Kindergarten

* When did you discover you have NLD and how did it affect you in school when you were a child? Were you ever bullied because of NLD?

   I  was  born  prematurely and   was  diagnosed with mild  Cerebral Palsy  as a  toddler   I  received early intervention for  the  CP which  include   OT PT ST hippo therapy    My parents  could  tell that  I was   bright so  after I  Graduated from  the  county program   for disabled  preschoolers     I entered a  Private school for pre-k til  first grade

  Me in first  grade   shortly after  I was  diagnosed with  NLD

     When  I was in first grade    symptoms  of   Nld  started.  I  sat on my  teachers  lap   a lot and  needed  a  lot of  intervention.  I  was  still  learning but having a hard  problems  with  behavior    anxiety and of  course  making  friends.  I  got diagnosed  the  winter  of    first  grade  so     around  1998.    The school  did not  want me anymore  so  I left and  was in public school  ever since. I  knew  I had NLD    as a  youngster but   it  took until  I was  a  freshman in high school  to  understand what it  really meant   to have it.

  For the next  ten years of my schooling  I  had  problems  with   social skills   behavior problems  and  anxiety: however  I  was still in  the  general  education  classrooms and  I  am now in college.  I  was   bullied   all the way though  elementary school  mostly  because  of  my speech  issues  which  were from CP.    In  middle and high school  I was  bullied  most   in  special  education classes  which    teachers  thought  I was the  bad  student.


*How does NLD affect you know in the following areas:

       Executive Functioning/Organization Skills/Time Management

            Binders  are  a  mess 
       Visual/Spatial Issues (Getting lost, math, etc)

 College Stat test I  passed  it with a B.  With NLD  that is huge 

 I am  good with directions    but learning math was  extremely difficult for me as a elementary student.   in high school  I  really  struggled  with  Geometry   but I   got though  it and  passed it the first time.    I sometimes  bump into people.

       Social Skills—friendships
 This  has  been   a  hard  struggle  for me.     I  get my social  time with others  with disabilities   and  the whole high school drama  thing actually happened   outside  of school.   It was  hard because  of  clicks and stuff  that  con sits  of people of  all types of disabilities. My behavior problems  are  a part pf  this   and   for high school  this  was  part of  OCD  and  anxiety

*What's the most frustrating part of having NLD? How do you compensate for these issues?
  Lack  of  friendships are the hardest part for me.  I compensate by   going on facebook  and  blogging and  talking to myself

*Do you feel that NLD has in some way helped you in your life? How? What do you like best about having NLD?

I  know  what it feels like to be picked on  so   I think the   challenges  I  have  faced   have  motivated me to help others.   I  like  how   NLD allows  me  to focus on things  I  enjoy   such as  Toy Story   Harry  Potter  and  disability advocacy.
*I'm really impressed with you activism promoting disability rights in general and within NLD and CP communities? Why have you chosen to be this active? What do you get out of it and what do you think other get out of it?

 Me and my cousin  in  2007   the  year i  started blogging

   Thanks .    I  chose this because  I   started  reading  blogs of  parents   mostly   who had  children  with DS  and   it looked  like   a  lot of  fun.   That was  back in  2007 and some of those  bloggers  who  I  originally  read are no longer around. I get a way to express myself  and others  get a chance  to   meantime.   I  really  love being a disabled  advocate  and hope to   keep doing  it for Meany  years  to come
*Why did you blog about your life and why did you choose to include NLD/CP?    Those  were my disablites  at the  time   I started blogging    

*What would you like to do when you graduate from college?

 I want to be a special  education  teacher  that  helps  kids  with  developmental disabilities    be include  in   there high schools  for the Marjory  of their day  including  academics.  I am also   a writer so I might  write  a book.

* Are there any specific issues about NLD that you would want to see included in a documentary film about NLD?
  dating and  Nld  as  i  have never dated before  but would like to find a husband  some day
*What would you want an audience who's never heard of NLD to know about the disorder and about the people who have it?

  I like  parents and  teachers  to know that students  with NLD  are not bad  people  are not  trubble  makers I would also  say to  teachers  to  treat all  students  with  respect.  I am currently blogging about   my middle school  years and will go though  all  this   in depth later
*Are there any misperceptions of people with NLD that you would like to see addressed?

  see   above

Happy Valentines Day

  Hay  guys  sorry I have not posted   much the reason for this  is  college  has started  and that means  homework  I  have some big  plans   next month so stick around.   

Why I am supporting the Patriots

 he grew up in San Mateo CA and went to the same church that I went to for CCD and basketball. I played on a inclusive basketball team there and now a little guy with DS plays there because I recommend it to them when he played soccer on our county special olympics team

A little video

 FYI  today  is  women  in sports  day   that is why  I  posted  the  video   stick  around in march as   I will be  blogging a lot   about CP  that month because    March  is  CP  awareness  month

rocky road

 So    the lack of blog post  should  single  readers that I am back in  school.   but  unlike  last semester  it has been  really  rocky thanks  to     OCD. 

  Anyway for the  good news 

basketball  looks   promising we have a tournament  next weekend.

 I love my biology  class the teacher is super nice more on   this  soon.

 I am  also  enjoying      most of my other classes    

 I  behind on homework  but if  i get caught up  I will  cach up on here .

   If anyone  has  a  facebook  page  click here  for   my  blog  page on  facebook.

Guess who I met

  So  last  Tuesday   I  went to  San Francisco's  pier  at night. It was  nice because it was  not crowed or  anything  but  I  was not  there to sight  see.  I  was not there because I  like the city but yet I was  there to go  the  Aquarium  by the  bay   but  I was  not there  to see  fish.

 I  was there to see  a  movie  and not just a movie  but a Q and A  with  the  film maker  do  you  know who  yet?

    I will  give  u  a  hint   he is also a  father,

      He is a fabulous  photo journalist his work has been in   Time  Magazine

 got this from http://elmercqegs.files.wordpress.com/2011/03/time_magazine_logo.jpg

   It Was  DAN HABIB OF  INCLUDING SAM.

 I was so excited to meet him and  listen to him speak.  He is soo good  with  presenting there were some kids there  and it was  really nice that   he  took the time to interact with him.     He  had  recognized me   and   during the presentation    asked  me  to stand up  and  I got a standing ovation.   I  really  loved   going  it was  soo   cool  because   I  finally got to 'meet' him .  Of course  we have been Facebook  friends  for a while  now.   I really love   having  IRLs.  I  was in my element  going to stuff  like  this  really  solidifies that I  want to  be a disabled  advocate   on the rights of inclusion of  students with disabilities. I am  norm,  something  I am  a part of   is   going to be having another  youth summit   and this  time  I will be attending.  The best part was that  the evening changed  people's   attitudes  and got the  conversation started. Thanks Dan  for  coming hope  to see  you again soon

MLK Poetry contest 2010

Happy MLK day


here is what I have to say to DR.King
Thank you Martin Luther King for paving the way for me. If it was not for you I would not have been born Thank you for laying the ground work for inclusion of those with disabilities wish you were alive to see how much closer we are to achieving your dream.

Ps when i do laundry I do the color load first then the whites

Make a video - it's fun, easy and free!
www.onetruemedia.com

America 2012

   I  have never been   to CHOP which stands  for   Children's Hospital  of  Philidelphia   nor do i plan to  donate  a   penny to them?

Why   you  ask


           Meet Amelia she is a little girl  whose  needs a new kidney  yet her parents  were told  by  CHop that she  can't because   she  has  as  the doctor's  put it ever soo nicely.   can  you hear  I am  being sarcastic here  Mental  retardation and brain damage.

  IF  I  WERE  A CARTOON  I  WOULD LOOK LIKE THIS  

   This  is not  fair as a  advocate for those with disabilities   It feels as  if    we are  back to square  one  where   kids with   Intellectual disabilities   yeah    that is  the right  term    are  put into  instutions.       Socity  has  come  to a census that this is wrong yet   a  DR can  still  say fthis  in  2012     that is not fair.

    As a person  living  with CP  I  feel  deeply saden by the fact that   this  can still be said in  2012. I have been  preaty lucky so far  in that  I have not  needed  and surgryies and   would  hate to think that someone  would say  no  to me  because  I  was not fit  to live.     Isn't  that  what  Adolph  Hitler  did    in Germany   nearly  100  years  ago.  Isn't that  what   slave  owners  did  to blacks  when they treated  them  like   horses  during  slavery.  yeah  that is  exactly  what    they  did but  we  now look  back on that with same.   





COME  ON AMERICA WE CAN DO  BETTER.






 CLICK HERE  TO  HELP   AMELIA  BY  SIGNING A  PETION THEY  NEED A LOT MORE VOTES 

Cerebral Palsy is not hopeless

        I have many  memories  of  watching  60 minutes .  It has been  a tradition that    has    been    happening for a long time in  my household . I loved seeing Andy Rooney   at the  end    and  I am sad that he died.  He  passed away   the  day of my softball  torment  last year.

 So  On  sunday when     I was   on  face book and someone  posted that 60 minutes  would speak  about CP  I   do what  I normally do. I  sneak  into my parent's  room and  watch   TV as was the  case  Sunday  night.  I  really  like  how  60 minutes so far has  portrayed  people  with  disabilities   up  until this  point  but     the piece was a  exception.


    The way   the reporter  talked about  CP painted a   very sad  picture  of   my disability.  The  story starts  out  with   phrases   such as   "hopeless  disease."  Sorry  but   I  have    CP  and no it is  not  hopeless nor a disease, its  a disability.I  invite  anyone  who thinks  that Cp  is  hopeless   to come  spend  some time at my  place.   Laughter  is  a common thing in  my house  and  I  have  played sports gone to school   attend  college.      I  am  really funny .  yes  I have a disability  but  it is not the  end the world.


 This  brings up the  whole point  of the   article. The article talks  about wanting to "cure"  CP and   other disabilities  using  illegal stem sells.   I  find it  wrong because  I have  CP and  I  do not  want to be cure of CP.  It is apart of  who  I  am .     It is not  hopeless  nor is it the end of the world.  My advice to  parents of  kids   with CP is     step  back   take a deep  breath  and do not    go to other countries   to get stem cells  because    having  CP is not that  bad.  As  of    January  2012 stem  cells can not help  Cp   yet    CP is not  hopeless.  I  am  living proof that therapy   and lots  of  love  will do  wonders. For whatever   reason I  have  disabilities    and you  know  what   I am  normal. This  is  my  normal.

Sixth grade part one : orientation

 I  remember   going to school  for  orientation.  I would be  in  Pod  2.  My  sixth grade  class  was  split up into  Pods.   This  meant that   a group of  kids  would have the same  English Math  and Science class.    This  would be my first time rotating  classes as  well.  This system seemed  to be a good  idea  because    all the teachers  were  next door to  each other.     This was  also a good  idea because the kids in each  class   had the  potential to become  great  friends. I  stay   potential because    it  never  really worked out.    Due to social skills problems   I never really  had  friends without   disabilities   from  middle school on up.     Let me say that   at least I  knew  everyone  name by the end of the year.

   During ordination I  would  come to find that my  pod was the  cool  advanced  pod.    Our  pod  had  a mascot   the sea horse   which    none of the other  pods had as  well  as fun math.  I did not  do  very  much  math that year  instead we  did art  projects   it  was   cool.   My  teacher was  very  old   in  fact  back in 2003 he had   some  former students   children.   He is now  retiring at the end of this school year 2011. I  was the only  one from  my  family to have  him.    Book gal  went to a private school and Princess   was in a different  pod.    He   had  some  disabilities but  that  did not prevent him from teaching math  science   and PE as well as coach  sports.






 Anyway  after orientation I went out  breakfast  with  DD, we were  friends all throughout  middle school,    I  had    no idea   what w to as    to come that  year.

My MIddle School Memories Introduction

  Hi guys      I  just want to let you know that    I  will be training to  blog about  my mid school     years from the best of  my  memory.  There are a few  reasons  for doing this.

   1  The  people  I started  blogging with   now  have kids that are  almost middle school  age

2  It was a  rough  years  for   me

3 I hope  my story can  improve   other   middle school, or  future  middle school  students.

  So   have a  great  weekend    and  be sure to  tuin in  Monday  to read  about  orientation to   sixth    grade.

Something that has been on my mind since the new year o

      So    we had a  New  Years  day party at my house   yesterday.  I had a great time  ; however    some  one said  something about Dick  Clark


  Dick Clark   and  new years  eve  have been    a  package deal   most of the time since  i  was born.      , It is  only  recently that  I  became aware  of the  person who  has  hosted for a long time   apparently  to  long   for some  people.

 here is  what I heard  by two  people  say about  Dick Clark.

  Dick Clark  should not be  on  tv anymore.  I could not  understand  him.


   First off  Dick  Clark  had a stroke   that caused  his speech to be slurred  but  HE  IS  THE ONE  WHO CAME UP  WITH THE  NEWS  YEAR  EVE.  When  he started  if  ,40 years ago  he  was  abled  body the only thing  that happend  is  he  had  a  stoke.  What would have happend   if  Dick Clark had   the stork  around the time he was born ie  Cp,  Well  back then   his  parents would have been advised to  put him  in a institution  and    the   New  York  new years   thing would have not existed.

 So  here is  my option  on the matter.   Mr.Clark should get to contiue   bringing in the new years as  long as  he wants to. It is  a good   awareness    for people with  strokes.    Having a stroke  should not hinder  anyone  from   having   a  fun   New  Year.  Happy  New  Year  Everyone

2011 Year in Review

 

   It seems  like  yesterday I  did a  2010  year   in  review  now it is  time to  do  it for  2011  and  before you  know it  will  be time  for a 2012  year in  review.  I  honestly love  doing these it is  a chance to  reflect on all the  great  things  that  happend    during the  year  so  without  further  delay  here  it is.


 January 2011:   I  had a   my  first  long  winter break  and  started taking college level  classes   at  my local  community college .  Book gal   started  her last semester  of high school.

 C, me and R  2/2011

February 2011 :    I  made  a  buzzer  short  my  cousin  came to vist
 March  2011:    The  college  thing  just  clicked  for me.   It  took long enough


 April 2011:       I   actually  aced  a  college   essay.   I     competed  in the Menlo  Games .Book Gal gets  accepted  to UMass Boston.


May  2011:  Book Gal  turns   18. I  go to a job   intake  but  it did not work  out  yet I  had  fun  in the process. .

My  Dad and I  fourth of  July 2011

June 2011:  Book Gal  graduates  high school  we  celebrate with  friends and  family,.  My grandma comes   up and  My  parents  grandma and  me    take a  day  trip to   Monterey.  I    became a  Hope Solo  fan   watching the Women's world Cup.


July 2011; Celebrated    our country  independence   day  in  sacramento  with my   mom's   family Book  gal  leaves  for  college .  My  big  brother turned  27  and my  dad  had  his  b day as well

   "Sexy" minni mouse Halloween  2011  

 August 2011:   I  saw  my  old aid in the park,  Princess turns   17 and starts her senior year .   I    begin my  second year  of  college.
  September 2011:  I turn   two  decades   old   how   did that  happend


 October 2011 :   I  met  Steve  Wampler and   rocked out at  the 25 annual  bridge school   concert.     I also attended  my  first buddy walk


  November2011:      I  got  to be a goalie in  the  special olympics  tournament   and watch   power soccer at the Ability  expo  in  san  jose .  Princess   became  the  first     African  american   to win  homecoming    at  her high school


December   2011 :  My parents  celebrate 21 years  of  marriage . My  dog has been  in our family for seven  years  Christmass  eve   I enjoy  Mario  games on my  three Ds.  My mom and I had   a Comical  Costco  trip.


 

  Me and  Santa  at the Christmass  tree farm   December 2011 

Disability Awareness  post  that  you  do not want to miss

   Having  CP  is not the end  of the world
    Value of  my  Life 
    My  name is  AZ not  az








 Happy New Year  Everyone
   



 Got  image  from :
ehttp://www.2dolphins.com/images/blogpix/snoopy_happy_new_year.png

A Comical Casco trip

   It all started   earlier today  my mom and I  were   in  Costco  we are having a New Years Day party at our house sunday   so   we need  some  Sparkling apple cider.    My  mom    needed  this  drink and  had been  looking all  over  for  it   no   luck.  i ask someone  he  tells me it is  in the  asile  we come to this  

 it is  up  high   we    get  it  down  After  we  got  it done someone  told us it was   here

  behind    us  on the  table


      Other things that made me laugh   on the Cosco  trip
 The jacket   we  wanted to buy  did not have a tag in it

and   my mom left  her  card    at the cash regster
Costco
  will never be the  same

  Any  Funny things happend to you  guys  today


   Stick  around   for   year in  review  coming  soon

A great holiday story

Winter Break

  Hay  guys  so  I have been  ultra bussy with finals   but they are over so   over the break  i will be blogging  and  maybe trying  my hand at web design.   


  sorry for not  being here  finals  with  OCD  is   not fun   but  anyway  I am  glad to  be out 

Let's chat

  hay blog  readers   AZ here  i have a  question for you guys that  is school  related Finals  are coming up  and  I have  a question  for those of  you what  do  you  guys  do  to help  you  not feel overwhelmed

Finally

So   I was  working with boy on a film project.  It is all about  zombies.  In the film  there is a voice over.    I thought  because of the voice over was   the host   who  asked an  question then  answered it  I   thought it be better to have a different   voice   and scene no one was there I  volunteered.   I used Audacity to  record  it but he  thought we  needed  a ' normal  voice aka  not  A  Cerebral Palsy  voice,

  In  class  that day   I  told my  suggestion and the teacher  agreed  but said maybe I could do the lines on  camera. Now let me tell you about this teacher,  They do voice over for a living. They  can do cool things  with  there voice and  have done numerous  voice  over,  Now  for me    with me speaking  gibberish and  all  I get jealous really  jealous.  I  wish  I  could speak as well as they do. 

     Our  film class  is not  specific   special need class, yet for some strange reason we have a  bunch of students with  disabilities. Some of my fellow classmates  are  on the Autism   Spectrum disorder  some have  learning differences  and  one  has Down Syndrome, she is  a funny one  in class and   both  the student and this professor get along  really well.

  Then  there's  me     

    Me  with some  video class  last semester February  2011

  back to the  class.  The  teacher was  talking about  next week.  Now  this  is a media class  so we do not have class every week.   So  I asked  her  something along the lines of   do we  have  a mandatory class next week? 

She did not know what I was saying   none of the other students  knew what I was  saying.    Its  like  running into  a  invisible wall and not  being able to  figure out  whats  blocking it.   I  deiced to leave the class room  cool off and try again.   I talk to the teacher does not   get  it  right away. When she finally  gets it  I say finally  and  she  heard me  correctly and walked off. She thought I was being disrespectful. I was  saying  Finally for me  not  for her

     I  have  been  in school  since August and  the teacher still has a  hard time understanding me.    Yes  I have  CP    NO  it is not her  fault but there  comes a time  when I  know  someone a while  I  kinda hope   I can be  understood.  I  i am looking ahead  to next semester where  I have a professor  who  understands me a little better.  

     If  my  professor  actually end up reading this  ( or anyone dealing with  CP) 

 Understand that   I  want to be able to  speak  clearly

 Not   your  fault  nor  is it mine 

Once  I  get the message  across  I  feel  better  and   may say finally   it is not meant to  be sarcastic.  In  fact if  I   offer to help me  say it  clearly its  in the  moment  Speech  Theaphy.

 This is the first  post  apart of  CP  connection go here to find  out more about  CP and tune   in for the next blog post 

Finally

Oh the  joys   of having a speech  impairment 

   So   I was  working with boy on a flim project.  It is all about  zoombies.  In the flim  there is a voice over.    I thought  because of the voice over was   the host   who  asked an  question then  ansered it  I   thought it be better to have a different   voice   and sence no one was there I  voulinteered.   I used Audacy to  recored  it but he  thought we  needed  a ' nomrmal  voice aka  not  A  Cerebral Palsy  voice,

  In  class  that day   I  told my  suggestion and the teacher  agreed  but said maybe I could do the lines on  cammera. Now let me tell you about this teacher,  They are a voice over extrodanare. They  can do cool things  with  there voice and  have done numberous  voice  over,  Now  for me    with me speaking  gibberish and  all  I get jelous really  jelous.  I  wish  I  could speak as well as they do. 

     Our  film class  is not  specific   special need class, yet for some strange reason we have a  bunch of students with  disablities. Some of my fellow classmates  are  on the Autism   Spectrum disorder  some have  learning differences  and  one  has Down Syndome, she is  a funney one  in class and   both  the student and this professor get along  really well.

  Then  there's  me     

  back to the  class.  The  teacher was  talking about  next week.  Now  this  is a media class  so we do not have class every week.   So  I asked  her  something along the lines of   do we  have  a mandtory class next week? 

She did not know what I was saying   none of the other students  knew what I was  saying.    Its  like  running into  a  invisible wall and not  being able to  figure out  whats  blocking it.   I  decied to leave the class room  cool off and try again.   I talk to the teacher does not   get  it  right away. When she finally  gets it  I say finally  and  she  heard me  correctly and walked off. She thought I was being disrespectful. I was  saying  Finally for me  not  for her

     I  have  been  in school  since August and  the teacher still has a  hard time understanding me.    Yes  I have  CP    NO  it is not her  fault but there  comes a time  when I  know  someone a while  I  kinda hope   I can be  understood.  I  i am looking ahead  to next semester where  I have a professor  who  understands me a little better.  

     If  my  professor  actualy end up reading this  ( or anyone dealing with  CP) 

 Understand that   I  want to be able to  speak  clearly

 Not   your  fault  nor  is it mine 

Once  I  get the message  across  I  feel  better  and   may say finally   it is not ment to  be sacastic.  In  fact if  I   offer to help me  say it  clearly its  in the  moment  Speech  Thearphy.

 This is the first  post  apart of  CP  connection go here to find  out more about  CP and tune   in for the next blog post 

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I am thankful

I am doing a research assignment on institutions for people with disabilities in the United States. That right guys We used to have institutions for people with disabilities. The article I fond described terrible conditions for people with disabilities. I am forever thankful to the people who helped closed institutions. I am also saddened by the fact that this is not talked about in United States History. This was a major movement, yet it gets no attention this movement has history and it needs to be taught to all kids in school. We do not forget to teach about Segration of minorities or Hitler  and the Nazi's   anyway  food   for thought
  Happy Thanksgiving everyone




 got image from 
http://yang-sheng.com/wp-content/uploads/2011/08/be-thankful-and-be-happy.gif

Halloween pics

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The value of my life

   It all started   on  Monday  night which  is my English  class. Now  i   want to say  i really like this teacher  she is  nice and has  tolerated   taught me two  semesters now. 

  We  are  reading a book  by Toni  Morison called Sula  in the book  a mother  kills  her  son  after  he  comes back  after  fighting  in the  war and  has  a addiction   to  drugs.   After  discussing this  fact   the  teacher asked us  to  write of all the ways  it was  moral  or immoral  for  the character to kill her son.   After writing stuff down   we discussed it  and  someone said  it was  ok to kill  her  son  because   he can not  take  care of himself.


    It  hit me like a fist   I am   20 years old and  still live at home.  Many  people with disabilities  spend their  adult lives  under supervision of  others.      Dose  this mean that  we all  should die.   I asked the teacher and told her  to  erase the  point that  it was invalid  yet  she left it  up there.     I  know  the character was once  able bodied  and    had  regressed to  a infant level but   that sould not mean death  right.   I  voiced  my option  and ended class on a high  note with laughter



 Tuesday:  I  went   to an  online  support group for people with CP. ( IF  you  want to know  what group   message me  below)  I  then saw this  link to a research  of  scientist  trying to stop  brain damage  which results in  CP.    Now  i am  100 percent  against that  abortion  because  of  disabilities is wrong and   i am not supper religious.  This  is  not  right  what  they are trying to do to my disability.    Why  used the word  damage  or  broken.    I am not broken  because   of my disabilities.  I  have speech  differences  and  movement differences and   behavior differences, yet  i am not  broken  far  from it. 
  As a  young person  i am   trying to find  my place in the world and   how  is  anyone with disabilities   supposed to develop  good self  esteem  if   scientist  are  saying that   I   was a mistake that   should   be  avoidable with science .  Having a disability  is  a part  of me  I do not  know differently.  Do  I  wonder what its like  not to have a disability?    sometimes  yes.   Would  I  want a cure for  CP?No  way.   I know  I do not  know what it feels   like not to have a disability but  come  on  guys  you  mean to tell me that it the best thing in the world doesn't   everyone have problems.  struggles. 
I wish  if science was  being done to help  people with disabilities   speak, move  learn   easier instead  of  abortion.    I wish people  without  disabilities  would stop lowing  the achievement  bar  for us.     that would make a  bigger difference.

      What do u all think

Accessible Media presents: Jeff's Day

Some photos to end 31 for 21

 Buddy  Walk 2011

Big Wave    pumpkin painting

 i won  this  along  with a mystery box and  tickets to Disneyland 

I am  proud i have blog every day this month  i will try to do it more often  in November    keep those comments coming  they help me blog 

  halloween  pics  coming soon

October is also Spina Bifida Awareness month

  I know3 people with Spina  Bifida.    All three  of them  are in college      Blog wise    Cassie  at  Beyond  Messures  has   been blogging about  featuring all  kinds of people , including some  cute kids with SB.   Her son  Caleb    is  a  cute  six year old  with SB

Having Cerebral Palsy is not the end of the world

         

Me at  the Bridge School concert 

      I  have lived  with  CP for  two decades  now.    It was  something I   was born  with.      When  I was diagnosed  as a toddler  with  it  my life did not end.      My  mom sometimes wonders   what  i be doing  if  I did not have  CP collage wise  and  I  told  her   I  might  have still  wound  up in  Community  collage  nothing wrong with that.     Someone apologized  to me   when  I  told her I have  CP. There is nothing to feel sorry  for  I am  not  broken  I  still have  feelings /fears. (No    I am not always  happy   )   Having  CP  does not make me less  of a person.     




  Does  CP  make it hard for me to talk  yes   Does it make   hard   for me  to play sports?  yes.  Does it make my handwriting  bad  yes .    Is it frustrating  at  times  yes.    Isn't  frustration apart of  life  yes.


 I think  having  CP has  made  me appreciate the little things in life. For example  if  I see a dragonfly  I  will watch  it for a while  I  took this pic last fall  of a inchworm.     This does not mean  I have a  intellectual disablity, I  did  get an  88 on  a statics test.  Things come a lot harder  for me   simply  means  that i get to  celebrate  things  more.  I am not a optimistic  person, yet  when it comes to  CP   I  do not feel  like it is the worst thing that has  happend to me ( in fact it is the easier then   OCD which  is  not lifelong)  My  view on life  may be different  then others peoples  but     all I know   is this  if  I had a chance to  be average I would do it for a day, yet I would want to go back to being me  Cp  and all.    










   A  penny for your thoughts 

CP or something else

Visit msnbc.com for breaking news, world news, and news about the economy

  interesting stuff 

Today is my Cousin sixth b day

  happy b day  R  hope    all  is  well  give your mom and sis a hug for me 


  AZ 


  in honor  of  R  b day  here are six things that would make  my  life easier


 Free  Speech Therapy


 Friends and  Parties


  Being able to  handle  my OCD 


   Help   when   I need  it 
    More Comments on the  blog 
     Being  Able  to drive  


    Happy  b day   R 


  To see what    would make  special need  mom  happy  click here

Work first play later

  Today I had a math test   which i  take in the disabled  help center at  my college Then we had a  party.   An  open  house  of sorts it was  fun I  demonstrated the Smart Pen.     I   really   enjoyed myselef today  What did you do today 

A revist of church basketball

  For anyone  reading a long time  you  may  remeber  that  from  fifth  thew  eight   grade  I  played in   Church  basketball.  I really  liked   it.  I  was a die hard basketball  fan   so  putting me on an  inculsive   basketball team  seemed right.   I was the only  phiscaly disabled  kid on  the church  team.   The team taught  me good values  such  as  working hard   listening and minding and other things.    All three  years  I  was  on  the   B  team, and  yes  every year  I  tried to   make  the  A  team  at  tryouts.       I  am  reminded  of    chruch  basketball  because  a kid  with   unique  needs   has  a twin  that  will be  playing  on said  team   but  the kid well  was not  going to  try.      This  is a ashamed because  really  ought to try  because    as  you can see  from the photos   I wasn't a disabled  basketball  player   I  was  a  basktball  player   just like my  peers  plane and  simple.

Bridge School Benifit Concert

  Over the  weekend  my  parents and  i  went to the Bridge  School  Benefit Concert.   It was    quite the experience. 

  The Bridge  School  is a school  for  kids   pre preschoolers though  middle schoolers  with severe disabilities.  These   students  may be   vary  smart but   they need help   to  express themselves.  I am  friends with a mom  of  a son  with CP  who  goes  there.      I did not go to  Bridge  because I   have  mild CP.    I had  begged and begged my mom  to go  and we got the tickets on the  lawn. We  naively thought that would be ok.   

  It was not. When we  got there,  about an  hour into the show, we went to    the lawn; it was  packed.   There was no  room to sit on the grass  to watch  the music  we went so far up that we could not   see the stage and   I could not see the  projector.    I turned  to my mom  and   said we  could  go home.   My sensory  stuff was not  going  well and  I do not mean the noise.   It smelled horrible   from  smoke and other  drugs.

  My  mom  took  me back to the   bottom of the hill  where  there were all these booths  for food.    I wanted  to  get   a t shirt so  we  stood in line  for  one.     I have  a ATM card   so  I had to sign   my name.  The lady  helping  me says,

 " YOU HAVE THE NICEST HANDWRITING I  HAVE SEEN ALL NIGHT." 

   The  irony of that statement  is that I have CP and NLD aka   poor  find motor control. That gave my  mom  a chuckle.  I  took it as a compliment but I laughed to.

   We then proceed to the parent  booth where I met   the  twins  of the lady  who  i knew from face book. ( They really should start playing it's  a small world  now).   we then found some picnic tables and waited for my dad who   stayed up on the lawn.

   While we were  waiting  I got   a churro, and my dad brought back some garlic fries  while we listened  to Carlos Santana shortly  thereafter we left.

 My thoughts   I   really liked the cause it was  going  to  but disliked all the  drugs.    Next Year I  think  I will go to the dinner party  and   try to reserve seats   near the stage.  I  really like  watching  the news reports that the school  i  watch them  often enough that I can match  names and faces.  I hope  I can meet all the kids sometimes  or   whose knows maybe  I will work there down the line  only time will tell.